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    • Connie gave some good advice, the dairy issue is very common as the enzymes to break it down come from the villi which celiac disease destroys, Oats, 10% of celiacs react just the same and most oats are contaminated anyway. Here is some info on keeping a food diary that might help. https://www.wikihow.com/Keep-a-Food-Diary The elimination diet and going to whole foods will help find other issues, I used to have a huge list and many have come and gone over the years.  Now days I myself and paleo with keto macros with some other stuff avoided. And yes some foods just caused extreme stomach pain and sometimes vomiting for me peanuts were one for almost 6 years after no apparent reason. Another concept is healing and pain, how long has she been gluten free? Is she truly gluten free? It can take months/years to heal depending on accidental exposures. Celiac is a Auto Immune Disease, our immune system which can react to germs is having a reaction to a even smaller protein "gluten" in wheat, barley, and rye. Tiny amounts of cross contamination can make us sick, this can come from shared knifes, condiment jars/butter with crumbs/residue from spreading and sticking the spoon/knife back in, scratches in a cutting board, scratches in pots/pans with gluten residue, shared toasters, wooden spoons, even in a shared kitchen where flour is used as it can go airborne and settle everywhere for up to 24 hours, or get inhaled, stuck in mucus then digested later.  In some cases lotions, shampoos, etc can have gluten, sure your not eating it but how often do you get it on your hands from touching your skin/hair then touch food you eat? You have to have dedicated cook ware, dedicated prep area normally, some super sensitive individuals need to go whole house gluten free.
    • Hello Bshake, sorry to hear your daughter is struggling. Sometimes celiacs have additional intolerances apart from gluten. In many cases, these intolerances are temporary and resolve once healing has occurred. However, to speed healing and prevent symptoms, it is recommended to eliminate these additional foods and reintroduce them after a while, like six months, to see if they are better tolerated. The most common one seems to be lactose, which is found in milk and other dairy products. About half of the celiacs cannot digest lactose for a while until they heal. Other common intolerances can include soy, gluten-free grains like corn, quinoa or buckwheat, legumes, sugar, eggs, nightshades... and the examples can go on and on. Everyone is different and can have their own more or less severe intolerances. To help identify possible intolerances, your daughter should start keeping a food diary, logging everything she eats and her symptoms, to see if any foods can be correlated with how she feels. Also, she could look into an elimination diet that focuses on whole foods and eliminates processed foods. The Fassano diet for unresponsive celiacs is a good place to start: http://www.thepatientceliac.com/2013/03/04/the-gluten-contamination-elimination-diet/ Then there is the Specific Carbohydrate Diet, which eliminates all grains and starchy vegetables: http://www.breakingtheviciouscycle.info/ It is fairly similar to the Paleo diet - there is lots of information about this one, just google it. A quite restrictive, but very effective version of this is the Paleo Autoimmune Protocol: https://www.thepaleomom.com/start-here/the-autoimmune-protocol/ I hope this helps. Good luck and all the best to you and your daughter!
    • Hi ...my 19 year old daughter in January of 2019 started having stomach pain. Since we have had endoscopy and colonoscopy...in April it was determined she had a non functioning gall bladder and was removed, we were happy just knowing that once it was gone things would go back to normal but was not the case... a few months later still having stomach pain we were told she has celiac disease so once again we figured okay stay away from gluten then things will get better but once again nothing changed....so had another endoscopy  and colonoscopy to find she had to small ulcers...she’s been taking all medicine they’re trying to give us from protonix (for gastritis and small ulcers) to others vitamins like fiber and other stuff to try and keep her colon clean as possible...but to this point even after having gall bladder removed and diagnosis of celiac she has basically all the same issues we started with from day one...we also done had a full panel of blood test and everything was good even her celiac blood test (which she has been very faithful to avoiding gluten) but still having entire stomach/mid section pain...we don’t know what else to do as we’re on our second gastrologist and still looking for help...if anyone here is having or had similar issues please give us any info or advice you have...any help would be greatly appreciated, GOD BLESS
    • About 30% or a bit more of the entire population has the celiac genes.  Only a tiny few actually develop celiac disease. The gene test just rules out celiac disease.   My advice is to find a medical doctor who is celiac savvy.  One that follows all the national celiac disease research centers guidelines.  Those guidelines do not include stool testing.   Not sure how long you have been gluten free, but do not redo the celiac blood test panel until you have been consuming gluten daily for 8 to 12 weeks.   https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
    • I don’t know why you had a stool test instead of a blood test.  But taking the actual blood test for Celiac while gluten-free is not a good idea.  It tells you nothing.  If you have Celiac , and are eating gluten-free, you shouldn’t be making antibodies to gluten that are found in the blood.  So- the blood test would be negative.    
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