
KathiSharpe
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by KathiSharpe
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A few years ago, I was facing a very frightening diagnosis. In the end, it turned out that I didn't have the disease after all - but when the doctor raised the possibility I quite frankly freaked out and stayed that way for weeks. Barely could function. He referred me to a therapist who specializes in helping people cope with medical difficulties - cancer...
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ARCHIVED Odd Poops - Grainy?
KathiSharpe replied to OFIH's topic in Parents, Friends and Loved Ones of Celiacs
When I hear "poop" and "black" in the same sentence, I automatically think "blood" -- has your doc checked him for that? That said, my husband and I get what we call "sand poop" several days after recovering from an illness. It's odd, but pretty consistent. But if for your child it's consistently the oats causing it, I'd keep him on nut milks or homemade... -
ARCHIVED Does Anything Help?
KathiSharpe replied to KathiSharpe's topic in Coping with Celiac Disease
Benadryl? Really? Thank you!! I wonder if I have some lying around that I could take. Even if it doesn't "cure" it, the sleepies would be welcome... At this point, the "I ate a window pain and chased it with gasoline and a live hedgehog" syndrome has begun. I'm in so much pain I'm about to cry. -
Went to a friend's birthday party last night. The hostess, bless her heart, greeted me at the door almost in tears. "I didn't know what you could eat and I was afraid you'd be upset if I asked you but now I'm afraid there's nothing here you can eat. You can eat a hamburger can't you? Please say you can." So, of course, I did. The hamburger itself...
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ARCHIVED Are There Proven Medical Connections?
KathiSharpe replied to Chezza's topic in Related Issues & Disorders
Hi Chezza, There's a few recent discussions on here about PCOS+celiac ... but let me add my current personal experience to the list. A ways back the docs suspected PCOS and so sent me to a gynecologist who confirmed the dx. My primary symptom labs-wise is outrageously elevated testosterone. Despite an assortment of meds, it just kept climbing higher... -
ARCHIVED Alternative To Potato Starch In Baking Mix
KathiSharpe replied to Katsby's topic in Gluten-Free Recipes & Cooking Tips
I think the first thing I would try is using 2/3 tapioca to 1/3 cornstarch. The corn starch has a heavier consistency than the others, so it might be more like 2/3-plus-some and 1/3-minus-some to make it taste like the original. -
ARCHIVED gluten-free Restaurants In Raleigh, Charleston, And Savannah
KathiSharpe replied to mjr6's topic in Gluten-Free Restaurants
It sounds like you're looking for more of a sit-down restaurant, which I can't really help you with... but I was in the Raleigh area twice last week and discovered that a) the mall on 540 has a starbucks that still had quite a few gluten-free orange valencia cakes left Five Guys, which is a burger joint with locations all over the area, made me... -
ARCHIVED gluten-free Free, Peanut Free, And Other Peanut Butter?
KathiSharpe replied to Liddle4's topic in Parents, Friends and Loved Ones of Celiacs
I *love* SunButter!! It's made from sunflower seeds and is gluten-free and nut-free. It tastes looks and spreads almost like peanut butter... in fact, if you were to serve it to friends and say, "It's a gourmet peanut butter" they'd be delighted with it I would be very, very careful about using other nuts, because the possibility for cross-contamination... -
ARCHIVED Gummy Baked Goods
KathiSharpe replied to halfrunner's topic in Gluten-Free Recipes & Cooking Tips
Betty's recipes are pretty good as far as proportions and all go, but I no longer use the bean flours since I discovered cornmeal - google "gluten free goddess" and see the recipes there. I did previously make LOTS of bean-flour recipes and developed many of my own; if they're gummy it's usually because you're not baking them long enough. I do remember... -
ARCHIVED I Need Help Getting My Health Back
KathiSharpe replied to Li'l Buck's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Three (no actually 4) things I would do, if I were in your shoes - #1 - try Olive Leaf. It's a supplement that my Mom uses; she hasn't had a respiratory infection in years. WalMart sells a gluten-free version of the stuff very inexpensively. #2 - get checked for parasites; look at sites like curezone.com and humaworm.com and cross-ref that info with... -
ARCHIVED What The Doctor Said
KathiSharpe replied to KathiSharpe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Betty! I'm not sure. It's a lot easier to answer, "Which came first, the chicken or the egg?" My KNOWING ABOUT the hypo-t came first - quite a few years ago - but it was all nicely controlled by meds with few complications until relatively recently (over the last 5 or 6 years). But if I'd been gluten-free from childhood would I even... -
ARCHIVED What The Doctor Said
KathiSharpe replied to KathiSharpe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Answering a couple questions - #1 - Dr. Balen (endocrinologist) is in Greensboro, NC. I can post the name of her practice, phone #, etc. if anyone's interested. She's part of a largish conglomerate of docs of different specialties. #2 - I'm 99% sure that she will be referring me to the GI docs within her team either to do more advanced testing... -
ARCHIVED What The Doctor Said
KathiSharpe posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am so encouraged by my appointment with an endocrinologist yesterday that I'm practically floating on air this morning. I sort of unloaded on her - all the gastro problems, the off- then on- again gluten free lifestyle, the possible false negative blood test due to me being gluten-free at the time (she was outraged that a doc did that!)... the complications... -
ARCHIVED Job's Tears
KathiSharpe posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I was at the health food store the other day and discovered something called Job's Tears. They're a largish grain/seed looking thing... I actually thought that each grain looks like a cross between barley and a black-eye pea. I inquired and the staff was pretty sure that it's gluten-free, so I decided pretty sure means "don't buy it yet". Researching... -
ARCHIVED Think I've Been Glutened, Please Check My Menu :)
KathiSharpe replied to tygwyn's topic in Coping with Celiac Disease
That looks like the #1 possibility... tho my initial reaction would be "how". If I was gonna cook corn on a stick it would be in plain water with some butter or margerine. Cross-contamination, or maybe they put some boil (seasoning) in the water????? Lots of spices and seasonings have gluten and it's not exactly declared well on the labels. The other... -
ARCHIVED My Legs Look Smaller When Gluten Free
KathiSharpe replied to glutenfreejenny's topic in Related Issues & Disorders
Jenny, is there a difference in muscle tone before and after? I know with me, my legs and arms are building muscle like crazy - something I could never do whilst eating gluten. -
Even if there's grease+crumbs from other products in the fryer (droppage)?? Just curious.... it seems like some people (like me) are far more sensitive than others to the minute presence of gluten. McD's fries always made me sick and if I remember right that was one of the Great Mysteries when I was gluten-free before. Then they came out with the "contains...
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Hardee's low carb burger (lettuce wrap) is gluten-free, as are their "natural" fries ... can't vouch for cross-contam issues tho. That's probably dependent on the local store more than anything. Open Original Shared Link Sonic has some great options too - Open Original Shared Link
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ARCHIVED Shampoo
KathiSharpe replied to KarenFe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Karen, I can't really help on the gluten-free shampoo tho I know some people use plain castille soap (you can buy @ health food stores). It doesn't really lather, but bubbles really don't clean. They're just for show. It's a good "basic" shampoo. But I wonder - have you had your thyroid checked? My hair falls out in clumps when my thyroid is really, really... -
AFAIK = As far as I know What I don't know about is the grilled chicken at Wendy's. I know that in several restaurants lately I've either inquired about or researched beforehand and realized that the grilled chicken is marinated or injected with gluten-containing broth (like McD's, and McAlisters.)
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ARCHIVED Feel Like A Yo-yo
KathiSharpe replied to KathiSharpe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
OH! Now that makes sense. Thank you! -
ARCHIVED Feel Like A Yo-yo
KathiSharpe posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd previously been gluten-free for several years until the GI doc told me I absolutely, positively, was NOT celiac. So I went back to eating gluten and (some quickly and some over time) my overt symptoms went completely away... especially the odd feeling I always got in my mouth after eating gluten (it felt like my mouth was burned by hot hot coffee). ... -
AFAIK Wendy's "burgers" are gluten free (I put "burgers" in quotes because anything thinner than your average piece of paper is pretty questionable in my book ) BUT -- their fries are listed as gluten-free. They are fried in a "dedicated fryer". HOWEVER their fries do not remain gluten-free. In every Wendy's I've ever been in, the chicken fryer...
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ARCHIVED Possibly Allergic To Gluten Free Grains
KathiSharpe replied to Kenster61's topic in Coping with Celiac Disease
In a word, yes. For the same reason you could be allergic to, say, milk and peanuts, you could be allergic to gluten and tapioca. I have huge problems with millet - if I eat it, it feels like I swallowed a tasmanian devil and it's trying to chew its way out. -
ARCHIVED gluten-free Ice Cream
KathiSharpe replied to Liddle4's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't contacted the company to be SURE, but the Aldi's vanilla ice cream in the freezer lists no gluten ingredients and no eggs. There is a wonderful product available in most larger grocery stores called Tofutti (pints) ... it's gluten-free EF and also CF (casein/dairy) free... it really really rocks. I've served it to guests who raved about it...