
KathiSharpe
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by KathiSharpe
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ARCHIVED Rice Dream Ads!
KathiSharpe replied to Truleesmom's topic in Gluten-Free Foods, Products, Shopping & Medications
Yanno if it was minute or trace amounts of peanuts or tree nuts and people were dropping dead, they'd be quick to adjust their labels ::fume:: I'm all for the gov't staying out of private enterprise and all - but IMHO food labels should be tightly controlled and labels should contain ALL information. -
ARCHIVED All Of These Tests...
KathiSharpe posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So I have a question. Actually, three. Or four. Or six. #1 - if my new doc is unwilling to dx me on the spot and wants to send me for tests, what specifically do I need to ask for (to make sure she actually runs all the right tests!) #2 - I see the big ads to either side of the forum Is the genetic testing worth doing? And I think there was... -
ARCHIVED Doc Says I'm Gluten Intolerant... But I'm Not Sure?!
KathiSharpe replied to tygwyn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When I go to the store tomorrow I'll look to be sure - but I'm 99% sure both (some) raw and (lots of) frozen meat has the stuff in it. Chicken, pork, and beef (plain fish AFAIK is safe) What you're looking for is any meat that has "broth" or "tenderizer" or is "enhanced" - sometimes an ingredient list is provided, and sometimes not (sometimes it just... -
ARCHIVED Could This Be A Celiac Thing?
KathiSharpe replied to KathiSharpe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's my progesterone. We (well, I - hubby doesn't know) chose between that and his diabetes meds. Unfortunately it's something that's compounded at a local pharmacy, so there's no assistance in getting it. Yeah no kidding! ?????????????? That's a new one - explain? (Is sea salt "iodized" - that's what we use) That's... -
ARCHIVED Could This Be A Celiac Thing?
KathiSharpe replied to KathiSharpe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't think it's psoriasis - I've seen it before on others and this looks nothing like it at all. Last night I got burning/stinging/itching in my toe and heel and it feels like there are blisters forming there. The callous on the tops of my toes seems to be a different thing - it doesn't "do" anything but look ugly. It also occurred to me last... -
ARCHIVED Bulk Foods
KathiSharpe replied to RideAllWays's topic in Gluten-Free Foods, Products, Shopping & Medications
Some foods you can only find (at a reasonable cost) in bulk bins. Around here, yellow corn grits are one such food (seriously YUMMY! and gluten-free). I would go have a heart to heart with the manager. See if you can schedule some time to talk with him. Bring a short article about the dangers of cross-contamination. Ask if it's possible for you to buy... -
ARCHIVED Doc Says I'm Gluten Intolerant... But I'm Not Sure?!
KathiSharpe replied to tygwyn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most people have to try really hard on purpose not to eat gluten. If you've been eating a standard diet that fairly regularly has bread, pasta, breakfast cereal, pre-packaged meats*, McDonald's, candy bars, that sort of thing - it'll show up. Besides, if my understanding's right, if you'd gone gluten-free before any tests, and the tests showed intolerance... -
ARCHIVED How Essential Is Diagnosis?
KathiSharpe posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So here's what I'm wondering about. If a radical dietary change (gluten-free) results in the eradication of symptoms and alleviation of problems, how essential is it to actually pursue a diagnosis? (In other words, if you eat wheat and get sick, but abstain and get better, it doesn't take an MD to say, "Don't eat the stuff ever again") Would it... -
ARCHIVED Is What The Doc Said True?
KathiSharpe replied to bunnybaby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Time to fire your doctor. -
ARCHIVED Could This Be A Celiac Thing?
KathiSharpe posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A bit over a month ago, I got what I thought at first was a piece of glass in my foot. Then I thought it was a bite. It swelled up pretty awful, localized to a small blister-like spot (but it was harder than a blister, if that makes sense). It itched to the point of madness. Then it burst, and since then all the skin has fallen off the ball of my foot... -
ARCHIVED For $10/loaf It Should Be Fresh
KathiSharpe replied to NewGFMom's topic in Gluten-Free Foods, Products, Shopping & Medications
If WF is going to charge $10 a loaf, it really should be gold plated. Just sayin' -
ARCHIVED Celiac & Iep?
KathiSharpe replied to ccj's topic in Parents, Friends and Loved Ones of Celiacs
Any chance you can homeschool? -
ARCHIVED Doc Says I'm Gluten Intolerant... But I'm Not Sure?!
KathiSharpe replied to tygwyn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here's a question for you - what's stopping you from going completely gluten-free for, say, six months - just to see if it helps your symptoms? If your only reasoning is not trusting the doctor, why not ask for a second opinion - get a referral to a GI who specializes in gluten-related troubles? Or, would it hurt just to humor him and give it the... -
ARCHIVED Doc Says I'm Gluten Intolerant... But I'm Not Sure?!
KathiSharpe replied to tygwyn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The reason I'm going back to gluten-free - regardless of whether I ever get a diagnosis - is because my thyroid and hormones have spun completely out of control and no one can tell me why. It only did that after I returned to eating gluten after the doc told me I didn't have celiac disease. In the process I've gained 80lbs My research is showing links... -
ARCHIVED Disappointed, Irritated, Depressed, Miserable
KathiSharpe replied to hermitgirl's topic in Coping with Celiac Disease
:::hugs:::: You might call the pharmacist back and ask him if he'd be responding differently if it was your relative's lawyer calling to report your death and a lawsuit... Then you might cheerfully fill out the paperwork to file a formal complaint with Those Who Govern Pharmacies. We should have the right to be safe (or as safe as possible... -
ARCHIVED For $10/loaf It Should Be Fresh
KathiSharpe replied to NewGFMom's topic in Gluten-Free Foods, Products, Shopping & Medications
Back when I made gluten-free bread often (and will do again, very soon), I froze my own bread. Doing the whole loaf made things awful, even if sliced! So, I made 2 loaves at a time, sliced them, and put it in bags, 4 slices to a bag. That way I could only take out what I needed, it would thaw quickly, and none was ever wasted or re-frozen (or chiseled!).... -
ARCHIVED New Potential Diagnosis Confused And Need Help Please
KathiSharpe replied to snowangelheather's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow - it sounds like both you and your son have EDS, Heather. EDS is a disorder affecting the collagen, which is the "glue" that holds joints and tissues together. A gluten connection seems to make sense because proper nutrition/absorption is needed for the body to make the stuff properly. (which leads to "which came first, the chicken or the egg" type... -
ARCHIVED Rice With Taste
KathiSharpe replied to Synthia's topic in Gluten-Free Recipes & Cooking Tips
If you're looking to dress up plain ol' white rice, get some good basmati rice and rinse well (at least 3 times). Melt a knob of butter in the pot and add the rice, and "fry" until all of the rice is golden with butter and is starting to look a bit cooked. Add the water (2:1 ratio to the rice) and cook over medium heat, covered, until "holes" appear in the... -
ARCHIVED New Potential Diagnosis Confused And Need Help Please
KathiSharpe replied to snowangelheather's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hypermobility Arthralgia syndrome??? Is it connected to ehlers-danlos syndrome (EDS) - referred to by some docs as hypermobility syndrome (HMS)? (see ednf.org for more info) ... I can see a doc calling EDS type III/HMS "arthralgia" - it sort of makes sense. If so - or maybe even if not - there's a good chance that it's all connected. A few years... -
I had an absolutely horrific experience on Cymbalta - the docs thought I had MS! I was falling down, slurring my words, couldn't think, couldn't use the bathroom (went six weeks without a bowel movement!) ... and they never considered the drug. It was after I was released from the hospital with a grand "we just don't know..." that I found an obscure reference...
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ARCHIVED Melaleuca Vitamins
KathiSharpe replied to kaciemarie's topic in Gluten-Free Foods, Products, Shopping & Medications
We just started using Lame Advertisement stuff, so I don't know how long it's been there. If you go to Lame Advertisement.com and select your region (off to the right there's a drop-down list) you can see the products; most things if you click through to the actual product have three tabs - one that lists what the item is, the price, etc., another that... -
ARCHIVED Melaleuca Vitamins
KathiSharpe replied to kaciemarie's topic in Gluten-Free Foods, Products, Shopping & Medications
I know this post is several years old but it's one of the first things that comes up on a google search. I'm re-starting a gluten free diet, so meds and vitamins are a big consideration. I've been taking Lame Advertisement's Vitality brand vitamins (and love them so far). When I looked at the ingredient list my brain drew a blank on what's gluten-free... -
Wendy's at one point said that their FF's are gluten-free -- HOWEVER -- if you stand near the counter and watch how they are prepared at most stores, there is a problem. The Chicken Tenders and Patties are to the left. The FF's are to the right. The Tender & FF heater-holder-thing is to the right of that. So when they pull the tenders out of the hot...