azmom3

My son was diagnosed with EE 2 months ago when he was 26 months old. He did not have elevated eosinophils in his blood and his esophagus looked good during the endoscopy, (other than GERD damage), but the pathologist found way too many eosinophils in his esophagus when reading the slides. If prevacid is NOT working, that is a big sign that it could...

PM me and ask any questions you want. I'd be happy to help. I just don't check this site as regularly now. The best information I have found so far is at www.apfed.org. It's a website dedicated to eosinophilic disorders. Also, Cincinatti's Children's Hospital has an eosinophilic center there. They are the leading researchers on this. Our son is on...

Please also read up on eosinophilic esophagitis or other eosinophilic disorders. My son's high IgG was what led them to take biopsies and diagnose him with this after over a year of problems.

You're describing my oldest son when he was a baby. He projectile vomited after just about every feeding. We used bath towels instead of burp cloths and it would shoot out across the room. I breastfed exclusively for only 10 days, then started supplementing because he would scream non-stop, vomit what he ate, fussy all day, etc. We supplemented until about...

A few things I forgot to mention. First of all, celiac is much more likely as it occurs in 1/133 people. EE is fairly rare (1/10,000); however some have called it a mini-epidemic as it's being diagnosed a lot more often over the past 10 years. Secondly, most doctors have never even heard of eosinophilic esophagitis and wouldn't even know to look for it...

The diet should give you better answers than any test, but it may take a little time for some of the symptoms to improve. Also, you mentioned GERD...is he taking medication for this? If so, has it helped? If he is taking medication and it's not improving the symptoms and/or you don't get the results you're looking for with the gluten-free diet, please...

The diet should give you better answers than any test, but it may take a little time for some of the symptoms to improve. Also, you mentioned GERD...is he taking medication for this? If so, has it helped? If he is taking medication and it's not improving the symptoms and/or you don't get the results you're looking for with the gluten-free diet, please...

How did you find out you're IgG delayed allergic? And what exactly does that mean? That you react a couple days later instead of within hours? We had SPT and RAST for our older son and both came back positive but on the lower side. Our daughter just had RAST and was class 3 to wheat. Thanks for your help!

You'd think I'd know this by now, but is it possible to have celiac disease and not be allergic to wheat? I understand celiac disease is an autoimmune disease, not an allergy and I realize you can be allergic to wheat and not have celiacs, but I'm curious if all celiacs are also allergic to wheat if tested by SPT or RAST or if their chances of being allergic...

This is how I understand it, too. But from what I understand, a person may see that wheat is a trigger, but not all gluten, if that makes sense? They could find out eventually that all gluten triggers EOS as well, but I don't think it automatically means that....again, this is just the way that I understand it so far.

Sorry I'm just getting back to you on this. I talked to my friend again about the double-jointed / miscarriage correlation. She said that double jointed people have thicker blood adn as the pregnancies moved along, the blood would get too thick which would result in losing the baby. They put her on a blood thinner and next pregancy (after I think 7 losses...

Please look up the symptoms for eosinophilic esophagitis. It mimics GERD, but does not respond to medication. Other symptoms include failure to thrive, diahrrea, vomiting, etc. Most people diagnosed were originally seen for possible celiac and/or GERD.

Thanks Ursula! What I don't understand though is that it's not just food allergy. It can be from environmental allergies as well. Plus, from what I understand, you can have non-allergy foods trigger your EE and allergic foods not trigger it. What we've been told is to start on the elemental formula only for a minimum of 6 weeks to give the esophagus...

He's 10 1/2. What you said about low IgA is exactly how our dr's described it...said it would be closer to o.

CAn you explain this to me or give me some links that explain the connection as I have been unable to find anything showing this. I'm not saying it's NOT connected either...I would just like something to have the confidence that it is and/or be able to bring to my doctors. Our allergist is phenomenal. We like him and trust him and I would feel very comfortable...