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Nikki2003

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Everything posted by Nikki2003

  1. Nikki2003
    I think I have asked this before but does anyone know really? Should I take her to an allergy dr to find out? Her norm IgE should be <30 and hers is 272 and the GI dr said it wasn't celiac related. Any thoughts? Thanks
  2. Nikki2003
    Ttg is definetely celiac. Aty least her lab. I am not sure about entrolab but Ttg is the celiac. The norm is <20 and hers was 80. My older daughters had her some where else and the norm there is <4 and hers were 32.?
  3. Nikki2003
    Nicole may also hasve Periodic fever also along with the celiac. Her rheumatologist told me to write down her fevers and if she has any symptoms with them. So far here are a few,What do you think: 6-9-06 fever 102-105 8-8-06 fever 103-105 10-9-06 fever 101-103 Thanks for any advfice. She doesn't have another appt there until the middle of december...
  4. Nikki2003
    Hear anything back yet?
  5. Nikki2003
    Whe Nicole went and had the biopsy they didn't put the IV in until she was out. I think that is the best idea. But as for the levels the oly test thatw as positive was the TTG ? The celiac one and her others were normal. They even ran some allergy testing and showed she wasn't allergic to wheat. Strange. Wea re stillt rying to figure out what caused her...
  6. Nikki2003
    In july We put my 2 yr old daughter out and it really is the hardest thing. She didn't scream though. It was real sad because righht as she was going under she said in the faintest saddest voicve Mommy. I lost it and broke down. It took a total of about 15-20 seconds before she was out.she looked at me with the mask on and looked fine then the anesthesiologist...
  7. Nikki2003
    I called the makers of carnation and it does have barley in not just the chocolate but all of them they say it is a small amount but it is still there. I use pediasure with nicole and that has no gluten or barley eyc. Nicole was losing weight also when she started but now is finally starting to gain some back. Goo Luck celina
  8. Nikki2003
    Nicole just went through this at the end of july so it is still fresh. This is how it was at childrens in boston. But they have you arrive 90 min before (If general anesthesia is given) usually used for younger children. They check all vitals and don't eat I think 12 hrs before. They do paperwork I can't remember exactly why it took so long for the prep....
  9. Nikki2003
    Welcome. I am pretty new myself. My 2 1/2 yr old daughter was just diagnosed after a biopsy on 7/17/06 and just found out my older daughter tested positive also the beginning of this month. It has been kinda tough because she has some developmental delays and has never really liked food anyway when she was 1 yr she basically stopped eating altogether. And...
  10. Nikki2003
    Got nicoles results from the rheumatologist and they were all neg for other inflammatory diseases. I am suppose to keep track of her fevers and we follow up in 4 months. She did mention about PFAPA. So we will see if she stays healthy or not. So far each winter she had had pneumonia. Hopefully we can skip it this year. The rheumy also suggested she see an...
  11. Nikki2003
    She is going to be 7 in october. She ahs never been gluten free. And the last 2 months have been her best,She put on 7 lbs and grew 1/2 inch. But before that she was not a very good eater and sometimes when she was she couldn't gain weight. She was with my mother in law for the summer and they ate mostly organic. But she loves her oatmeal and yogurt. She...
  12. Nikki2003
    I had my older daughter tested for celiac because of nicole. And she tested positive so the dr said to schedule an endoscopy an a reg appt. tomorrow. But I don't get it because withing the past month or 2 she has been doing great she is gaining weight and growing.
  13. Nikki2003
    My 2 yr old was just diagnosed in july of this year and her symptoms were the constipation,not eating bloated belly weight loss,the tooth enamel thing also,some diahrrea after constipation, the Gi we saw basically just asked about her medical history and family history of different things. They also did a rast wheat test which hers was neg also,But her TTg...
  14. Nikki2003
    I have the toaster separate from ours in the box,I take it out when I use it,then put it away when done. She seems fine. She has the appt with the rheumatologist tomorrow afternoon. celina & Nicole the only gluten free waffles wouldn't be a bad idea, except the fact that we do toast etc also. I think after this I will remember to use her toaster...
  15. Nikki2003
    I just thought of it last night. For breakfast yesterday morning I made nicole a gluten free waffle,But I forgot to use her toaster and used ours and it didn't even click. I feel so bad. If she gets sick I am going to feel even worse. Celina
  16. Nikki2003
    That is great. You must be feeling a little relief,Minus that the fever still exists. can someone else give you the refferal? Hope he gets better soon. Celina
  17. Nikki2003
    Something is definetely going on it is not norm to have that many fevers especially reaching that high. I am so sorry you are being treated like this. My older daughter is going through something now. She started with a 104.2 fever sunday and has been spiking ever since then yesterday started with a viral looking rash on her chest and back. last night it...
  18. Nikki2003
    Does anyone know where I can get a t-shirt for nicole that says she is gluten free or dont feed me. I can't seem to find any. It would be a good ideae when we go places. Thanks
  19. Nikki2003
    Nicole has an appt with a pediatric Rheumatologist on the 28th,Because over the summer her knee and foot swelled up about 2X the norm size and was very red and warm. Without doing any injury to herself. Celina I think it's diarrhea. I will ask about other intolerances also.Thank you
  20. Nikki2003
    She is 37" tall and weight 27 lbs exact. A few weeks ago she was 28.3 at the dr's. But we are waiting for my older daughter's results,We won't know until sometime this week. I am always offering her the gluten free food,It just depends if she wants it or not. But if my older daughter has it it will be harder in some senses because she is already in school...
  21. Nikki2003
    We may be visiting the Ped's office tomorrow anyway because my older daughter has been running a fever of 104. all day I give her motrin and it goes down until it wears off. Usually with her indicator of strep throat. But if we go I will bring up nicole with him. Thanks
  22. Nikki2003
    There was a carepage I was reading on for a few months it was a little girl about 2 years old with cancer. And just recently she passed away. I havn't read it in a little while,So it was a shock. I was balling my eyes out. Because it is so sad. Her photo gallery is what did it. she is such a cute little girl.
  23. Nikki2003
    If anyone is interested I have a care page for nicole. Her is the site Open Original Shared Link You have to register but it is free and you can read about other stories also. The page is called NicoleandCeliacDisease just like that. celina&nicole
  24. Nikki2003
    She is 33 months,I know it is rare for kids under 5 to get it. But it does happen. Celina Alot of this started after a high fever for 3 days of 105.
  25. Nikki2003
    I have taken her off milk. She has been on soy and the almond milk which both are lactose free ,They both have very close the same calories etc. I started this a few weeks ago. I think it is the pediasure that is bothering her but she did fine with it yesterday afternoon. So I am confused,But hopefully get better with time.Thank you for all your advice. celina
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