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mythreesuns

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mythreesuns

  1. mythreesuns
    Celiac, fibromyalgia, ulcerative colitis, Chrone's, Lupus, Lyme, RA....... I fit the profiles for every one of these diseases, how do I choose which to focus on first!? Luckily, the rheumatologist I was referred to can help with the fibro, the Lupus, Lyme, and RA, and the gastro is following up on the Chrone's and colitis. But sheesh...at this...
  2. mythreesuns
    Oh, how I would love to know! I love eating there, and so do my kids, but I'm afraid to eat anywhere at this point. Plus, I can't have milk, so what's the point anyway? LOL
  3. mythreesuns
    Yeah, but it sucks when making a simple salad takes almost an hour.
  4. mythreesuns
    Oh, I'm TOTALLY OCD right now! And I had an already diagnosed anxiety disorder, so I didn't have far to fall. LOL What I'm OCD about is my own home. I wish I could be as strict as some of you, but I have DH, 3 small children and two pets, so it would not be fair (or cost effective) to only allow gluten-free foods in the house. I do have a shelf...
  5. mythreesuns
    Well, the symptoms are certainly the same. My dr is convinced I don't have celiac ("passed" the tests) and since I was still having symptoms gluten-free he's testing me for Chrone's and ulcerative colitis. I figure its worth ruling those things out, but more and more I'm thinking gluten is my issue. I keep waiting for a good time to "test" myself with...
  6. mythreesuns
    With the slightly positive blood test, why bother with a biopsy anyway? I mean it's good to rule out other conditions, but I wouldn't count on a biopsy for confirmation. There's no other reason your blood test would be positive without you having a reaction to gluten, right? All the negative biopsy means is that they didn't see any damage in the FEW...
  7. mythreesuns
    I didn't go gluten-free until several weeks after my blood test, stool test, and biopsy.
  8. mythreesuns
    Interesting.....I would love to have more information about adrenal functioning. Any suggestions of where to look?
  9. mythreesuns
    I don't think they checked any of that stuff. I'm picking up copies of all my labs, etc., next week when I get my referral so I'll be sure to look through them thoroughly.
  10. mythreesuns
    The dr just called to tell me that all my bloodwork (sugar, RA, ANA, lyme titer, thyroid, sed rate, etc) was all normal. I guess I should be glad, but I just want to cry! Why am I in so much pain if everything is "normal"????? Because I AM still in pain (from what I thought was arthritis) I'm being referred to a rheumatologist. What could he do...
  11. mythreesuns
    I just started to do that a couple of months ago. Glad I did, because no one told me my sugar was high with the previous test!!! Back to the original post...I'm feeling like this is going to be a D day. Isn't that sad, when you know as soon as you get up you're going to be running to the bathroom all day?
  12. mythreesuns
    Thanks, dr tested my thyroid and RA during the last round of tests. Won't know the answers until Wed or Thurs. As for the nightshades, I really don't eat a lot of those things, especially now. Well, tomatoes in my salad, that's about it. Haven't had a potato since I cut out butter (early June), don't eat peppers or eggplant, and only eat tomatoes...
  13. mythreesuns
    I don't know about reaction to glutening (still new, trying to figure out if I've been glutened or not) but I do know that before I went gluten-free I had an insatiable hunger. Even if I just ate, sometimes I would be so hungry my stomach hurt and I would eat EVERYTHING in sight. That's probably why I'm overweight.
  14. mythreesuns
    Thanks so much, everybody!! I did get my own cookie sheets and utensils, but I haven't used them yet because I can't figure out how to store them properly. I use stainless-steel pots, and I don't put them or the cooking utensils in the dishwasher anymore, I hand wash them. Is that sufficient? Although, I don't have a strictly gluten-free washrag,...
  15. mythreesuns
    Thanks so much Jenn, Laura, everyone else. I was told there was "no chance" of gluten intolerance or celiac because the blood tests and the biopsy were both negative. The gastro dr is the one who told me that. The continuance (though lessening) of the D and the arthritis is leading him toward testing me for Crohn's (finally, got the spelling right...
  16. mythreesuns
    If I'm really going to stick with this, I need to figure out how to keep my kitchen "clean." Impossible, I know, but if you're the only one gluten-free, how do you keep yourself free from contamination? Any and all tips welcomed!
  17. mythreesuns
    Since I have two drs telling me there's no way I have celiac, but most likely a combination of an auto-immune disorder and Chrone's (I know, another AI disorder). First of all, do you think commercially prepared sausage has gluten in it? Although I'm sure it doesn't matter, since I'm positive the tongs weren't gluten-free and the exchange of food...
  18. mythreesuns
    Just to add to the confusion....I'm left-handed and although my "gout" is in my left big toe, most of the other pain is in my right side from my ankle to my fingers!
  19. mythreesuns
    My dr's been pretty good so far. He's already confirmed arthritis from the x-ray on my toe; this was before everything ELSE started hurting, so he is not taking the pain lightly. He's already pointed out that some things don't make sense; I'm young for osteoarthritis which seems to making him curious about what's giving me the arthritis, and I didn't develop...
  20. mythreesuns
    The dr said if anything iffy shows up on all the bloodwork he's referring me to a rheumatologist. I USED to have a PPO but now I have an HMO. But I have a fairly good primary who listens and is willing to refer if he thinks something is over his head.
  21. mythreesuns
    Thanks, like I said it was a stupid assumption, given that people who tested negative most likely wouldn't bother with a gluten free diet (thus go looking for support on this website). I'm still too early into the diet to know if it's helping. It's been less than a month. The diarrhea is different now, though. The days I have it...I HAVE it. But...
  22. mythreesuns
    I just got a copy of my bloodwork for all three tests. I can't remember which was which, but for one 3 and below was negative, one was 4 and below, and the other one was 9 and below. That's according to the lab that performed the test.
  23. mythreesuns
    Hee hee.....yes I know. I was just joking, trying to look for some light at the end of this dark tunnel. I would LOVE to go to EnteroLab for testing (for everything, not just gluten) but there are two things stopping me. First, of course, is the money. I'll only be able to do it if DH gets a full-time teaching job, and as its nearing the end of August...
  24. mythreesuns
    Ugh! So then, how do I know?????? I'm planning on staying on the diet (despite continuing diarrhea, though not as bad as before) at least until the rest of the tests are in (Lupus, Lyme, RA, colonoscopy, etc.) because if it DOES turn out to be celiac I don't want to lose that time getting gluten-free. Oh, and if it DOES turn out to be something else...
  25. mythreesuns
    After reviewing my bloodwork, stool tests, and biopsy, the GI doc just told me there's no chance I could have celiac or gluten intolerence. PLUS, he said all the auto-immune diseases my primary doc is checking me for won't cause the diarrhea! But he did say it could be ulcerative colitis, which is also an auto-immune disease. He's recommending...
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