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High-Tech Mom

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Everything posted by High-Tech Mom

  1. High-Tech Mom
    Lynne, So sorry to just read this thread - I've been overwhelmed getting my family gluten-free, and myself a low-fat diet (thanks to you!!), and haven't had a chance to catch up on the new posts. I don't know how you all keep up! My husband had latent TB, and probably got exposed while traveling abroad. The previous posts are true for our experience...
  2. High-Tech Mom
    Thanks so much for your response. That is consistant with what I have read and heard. It is interesting that your child has this symptom and is diabetic, though.
  3. High-Tech Mom
    Have newly diagnosed celiac in the family. I am considering purchasing a subscription and/or license for computer software listing gluten-free food products and drugs. Has anyone tried these? How helpful are the lists? How up-to-date are the lists? Which packages/subscriptions do you recommend? Thanks!
  4. High-Tech Mom
    Does anyone have a child that was diagnosed with celiac, and then diagnosed with diabetes type I? If so, what symptoms did your child exhibit before the diagnosis of diabetes? My child has been recently diagnosed with celiac. One of my child's symptoms seems to suggest blood sugar problems. If my child does not eat properly the night before, (which...
  5. High-Tech Mom
    From my experience, the Prometheus CeliaGene test is not accurate. My child was tested about 2 years ago at age 3, and the test came back negative. We re-tested my child at age 5 just last month through Quest (and tested the rest of the family), and my child's genetic blood test came back positive with DQ8. My husband's also came back with DQ8, so it is...
  6. High-Tech Mom
    Yes, this is another great idea and I'm going to see if I can get a referral from the local support group. Maybe they'll have someone with an emphasis on celiac. Thanks again!
  7. High-Tech Mom
    Thanks! Yes, with our newly diagnosed 5-year old, I desperately need a bread machine that can bake a decent loaf. I tried to do it with our current bread machine, and it came out awful. I'm ready to get the Zoji. I don't know what I'd do without Cealic.com and the forums!!!
  8. High-Tech Mom
    At the time that the blood test was taken, I was not gluten-free, I didn't want to bombard everyone with all of the details, but... My 3-year old and myself have very similar results: - Only AGA IgG is elevated - Negative AGA IgA, TTG IgA, TTG IgG - Genetic Markers: DQ5 and DQ7 Our 5-year old is our "celiac" and has positive everything (AGA IgA...
  9. High-Tech Mom
    Does anyone have any other sources for good gluten-free bread receipes that would come out nice in the Zoj? It sounds like this is a must-have for those of us with gluten-free family members. Also, how do you think the cost-per-loaf compares: - Buying a gluten-free loaf (like KinnickKinnick sandwich bread) - Making a loaf in a bread machine with a mix...
  10. High-Tech Mom
    Need insight on my test results. The only elevated blood test was the Antigliadin Antibody (IGG). The others, including Antigliadin Antibody (IGA) and TTG Antibody (IGG and IGA) are negative, and the Immunoglobuin A was normal. Genetic test reports DQ5 and DQ7. From what I've read, the Antigliadin Antibody (IGG) is one of the least specific/sensitive...
  11. High-Tech Mom
    Hello Liz, Which of your daughter's blood tests came back positive? I agree with nini's feedback - positive results for gluten intolerance are positive, negatives can still be positive. Sound like your daughter has a severe enough gluten intolerance that it is showing up on the blood tests. I don't think that she can get an "official" diagnosis of celiac...
  12. High-Tech Mom
    The blood tests aren't reliable. My child, who had classic celiac symptoms, was tested around 3 and everything came back inconclusive, even the hailed Promethius genetics test came back negative. We re-tested at 5 and the blood tests indicated a severe reaction to gluten. Even the genetics blood test was re-ordered with a different lab and that came out...
  13. High-Tech Mom
    Lynne, a huge THANK YOU, THANK YOU, THANK YOU!!!! You were absoutely RIGHT - it's my gallbladder!!!! I had an ultrasound today and there was no question about the source of the problem since there were visible gallstones. I have been suffering with these gallbladder attacks for 6 years through 3 pregnancies, not knowing the cause. Two different doctors...
  14. High-Tech Mom
    Thank you all for your feedback! I really appreciate your responses. Lynn, the back pain IS coming from the right side of my back, and the pain radiates around to the front. It is difficult to take a full breath when the attacks occur, so I find myself taking shorter, shallower breaths. I'm not sure if I'm carrying low or high, but I have not had any...
  15. High-Tech Mom
    I am ording tests for my 3 year old also. Here's the response from Entero Lab: "Children can be tested conclusively after the age of 18 months, and it may be closer to 12 months. Your 3-year-old is certainly old enough to be tested via the stool tests now." We're getting the whole family tested, since we just confirmed that my oldest child has celiac...
  16. High-Tech Mom
    I'm in my 25th week of my 3rd pregnancy, and I have a question for moms with pregnancies involving celiac. During my pregnanices, I have attacks that are very painful in my back and diaphram area. It's hard to describe them, but they are very intense, painful attacks. I can't move, it's hard to breathe. Relaxing does not help the attack end any sooner...
  17. High-Tech Mom
    Thank you all for your insight and feedback. This has helped us with decisions regarding how to proceed with testing for our children. It's easier making the decision for ourselves than it is for the kids. We will most likely order the Entero tests. I'm very excited to hear that Dr. Fine will be publishing results and hopefully soon.
  18. High-Tech Mom
    I can understand why the antibodies tests would change over time, as we experienced this in my child's bloodwork also. However, genetics don't change. There was a blatent mistake with the Prometheus genetics bloodwork. I'm very frustrated with the inconsistancy of the bloodwork and the hit-or-miss nature of bioposy. EnteroLab seems to have a new outlook...
  19. High-Tech Mom
    For those of you who have gone through a myriad of testing, what's your experience with the accuracy of Prometheus Lab's and Entero Lab's results? My child had Prometheus Lab's CeliaGene test performed 1 1/2 years ago, and it came back negative. When his symptoms did not resolve, he was re-tested and the genetic blood test came back positive. After this...
  20. High-Tech Mom
    Discovering this forum has been eye-opening - thanks for your posts. My pregnancy problems have been baffling us for years. Immediately after my first delivery, the labor and delivery staff were perplexed with the condition of my placenta, too. I have severe hyperemesis with all of my pregnancies, and have to stay on special prenatal vitamins (B-6, B-...
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