vampella

Thanks everyone for your support!! Emmah has a tummy ache & the D but she's going to live. U just made some yummy cho chip cookies that I am hoping she will try. she wouldn't eat this am because of her tummy but not that she's been to the washroom a few times I am hoping she will eat.

Thanks again everyone!.!.!.!

So I did C& P my op to them & asked that they consider changing the color of the gluten-free boxes so they aren't the same as the NON gluten-free boxes.

Her tummy is sore but I knew that was going to happen. I will be MUCH more careful from now on!!

Thanks everyone I feel much better.

I swear you are all the best!!!

I don't know what I would do without this site!! I will start the water pushing right after she's done her gluten-free milkshake.

I've learnt my lesson that's for sure. I threw them in the trash as soon as we got home. I would have kept them for DD#1 but I didn't want to have another accident.

We went to Organzo market today because we were told they have a lot of gluten-free stuff. I am grabbing different flav's of stuff we've had before & I was so happy to have more variety.

We get in the car & I open the envirokids chocolate animal cookies.

Emmah's eatting them as well as my other DD, they had 6-8 each.. After a little bit I'm bored so I start to read the ingreds. unbleached wheat flour, whole wheat flour & SCREAMED drop them. She did she threw them on the floor of the car & stopped chewing what was in her mouth. I made her spit the rest out. I feel like crap. I was crying so hard. I just assumed it was gluten-free just a different flav but NOPE NOT gluten-free. They should have the gluten-free in a different colored box or something.

Emmies going to be so sick tonight. I feel so bad!

Has anyone else done this. I know I will have to look much more close from now on. I just feel like I failed her.

I've done the tax claim for the last three years. It does make a big difference with our taxes as we are a household of two on a single persons pensions.

It does take some work though, so you'll have to decide for yourself if it's worth it to you with your individual income.

Note, that I am doing taxes in Canada. We treat it the same way you do with your other medical deductions.

Ya we are in Canada too I should have noted that. I have all my recipts so I am hopeful that the Dr will give me a letter. I know that I also only get the difference.

I'm getting my taxes done at H&R this year lol I'm not attempting that myselfLOL.

Thanks everyone for your advice, you guys ar ethe best!!!!

I would like to claim e's foods on our income tax but we need a note from the dr. Has anyone had a doctor write it up with only AMAZING dietary response? I am sure Emmah's ped will want to but I'm not 100 % sure if he can without breaking some law or oath.

TIA

ya she's pretty text book lol. We just can't figure out why the ttg's are coming back neg but like the ped said, no test is 100 precent & from what I am told it's not very accurate in young children.

Thanks for the good wishes & I hope the same for you!!!!!

How old is your son? do you have to wait long to see a GI spec? we only have 2 ped GI's here in manitoba so it's a bit of a wait. I just hope he doesn't yell at me because I tell him no LOL

Sorry about the spelling mistakes & I also ment to say that she was full of gas all the time and so on. she's been glutened & get's very ill & gets the D from it, there is no doubt about her dx's.

Not to pry, but just curious. I don't know your whole story. Why are you not doing the biopsy? I just read Dr. Peter Greene's book and he stresses the importance of a strong diagnosis for a child because some day they will be out on their own and start eating wheat again and may not have immediate symptoms. Even if the blood test was negative, isn't there a better chance that it would show up in a biopsy. Marsh 1 can take up to 6 mos to a year to heal and Marsh 4 up to two years. Again, I'm not disagreeing with your decision, I just would love to hear your rationale for my own benefit. My son's bloodwork was positive, but he's been on a gluten free diet for 4 months now. I don't know if he'll be able to handle a gluten challenge, but I feel like I need to know for sure because it affects his life so greatly in school and social situations. I know you said you have a family history, but we don't. I'm the lucky pioneer. I'm just curious why you're opting out of the biopsy, and not saying it's wrong. From what I've read on here, people say it's not that bad. Again, I'm just looking for help in my own situation as well. Good luck to you and your adorable little girl. :)

I understand, I know you aren't attacking me & telling me I am wrong!!

There are a lot of resons I am opting out of the biopsy.

1- I am not putting her back on gluten. She was SOOOO sick loosing pounds by the week, she lost over 5 lbs in a couple of months. Getting sicker and sicker by the minute. She was sleeping all day, pulling away from her peers hadn't grown since she was 18 months*she'll be 4 next month* she had D daily since she was a baby MANY times a day & so bad smelling. she's eat 1/2 of a med size pizza & still be hungry. she now eats normal sized meals

2- I could not torture/abuse her by making her ill again. it's one thing for it to happen by accident but not on purpose & I kick myself for accidents too.

3 I wasn't waiting from october to this month with her waisitng away in front of my eyes, so we dicided to go gluten-free. She mad a complete 360. she's healthy again and the DR is doing dances when she goes in because hse's doing so well. We are just seeing the GI this month, if she was still on gluten it could be another few months before she got a biopsy here.

She's gained 1 lb the first 2 weeks & 1 FULL inch the first month. that's the first height growth since she was 18 months and only 1 month after being gluten-free. she's gluten-free and has been for 3 months now and she's still gaining & growing. she's going to the bathroom regularly*NORMAL* poops

I am not putting her back on gluten to watch her get sicker & sicker again. I almost lost my mind the first time.

If she was still on gluten I would do the biopsy but I am NOT putting her back on it.

I completely understand some people wanting to know for sure but we know for sure as does her ped & that's all we need.

I don't even care if I get a paper saying she has celiac disease so I can claim her food expences because I would pay a million dollars a year to feed her to see her happy & healthy again.

If you have a positive blood test that's all the proof you need, no? biopsy just confirms and tells you

my dd is 4 next month and with the weight gain is 26.5 lbs & 36 inchs tall. We've been up graded by her ped from weekly visits to monthly!! yay!!

So after months of waiting , our GI appointment is this month. I'm nervous, I'm not sure why. I guess because I'm going to fighting with this doctor about what's happening and whats not happening.

I'm still not sure what the point is in going since I am not doing the biopsy.I don't need a Dr's note saying yes she has celiac disease. it's not important to me. I know she has it, her ped knows she has it even after neg ttg's. We have a lot of people with celiac disease in our family. I've told her ped I am not doing the biopsy and he say your going to have to tell him that. If I'm not doing the biopsy because of AMAZING dietary respons, what is the point of going at all? She's perfect & health now so, I don't get it.

I was already sportting a bump when I found out with dd#1 they were sure I was haivng twins and even after many ultrasounds said I "we should have seen baby # 2 by now" so I wan't having twins(I had many complications and weekly ultrasounds the last6 months, no second baby ever showed. just a huge baby. 10 1/2 lbs.

I don't know. all I know id they are gluten-free and I can get 200 for 37.99 canadian.

I can only find these gluten-free vit's where I am, they are gluten-free but are they any good? It's for my almost 4 yr old.

TIA

Char

THANK YOU SO MUCH, ALL OF YOU!!!!

I did pull her but I will be looking for a new preschool for this coming fall. I figure if I start now I should find one by spring*I hope*

We are still new to this, she's only been gluten-free for 2.5 months so I am still learning also. I'm glad I'm not the only one going through this but it makes me very sad at the same time. People need to get on board and relize this is serious. How we do that I'm not sure but I hope one day it will happen.

I had never thought about inhaled gluten, I will have to remember that!!

Thanks again everyone.

Thanks a ton.

Does anyone have a good recipe for gluten-free chicken finger breading?

tia

Char

Just playing Devil's advocate, but were the employees competently trained on Celiac awareness?

BB

I have to agree with BroncoBux. Educate your teachers, otherwise you are the dumb one. As a former daycare provider, I can tell you that you need to give written, literal instructions about how to handle every little instance. Why didn't you give the preschool two towels, one for her table and one for her hands? Or a container of disposable disinfecting wipes just for her table? Why did you get angry at the teacher for not instantly knowing something that took you months of constant study to learn?

They were WELL educated.

The director even said her MIL has celiac disease and can do this and this and this& she was told there was no way in hell that Emmah could do that. she gets even the smallest trace and gets ill. I had 3 meetings. 1- day of finding out emmah had celiac disease. Took them much info from this site. I provided a towel for her hands to be dried with called all the companies about soap and such.(from their office). I send her all her own food. I bake when there is a party. then meetings 2 & 3 were to remind them that they were doing something against how I had instructed them to. They just don't care, If this was a nut allergy they would be all over it but because they can't "see" it's effects they don't believe or care.

Trust me these teachers have been educated on celiac disease & cross contamination but they choose to not care.

I made play dough safe for emmah and sent it in, they only gave it to her instead of replacing their old play dough with it like I had asked. Plus for anyone to say we are doing our best is complete B.S we can all do better.

Isn't it great to see them thrive. my DD gained 3/4 lb in 2 weeks and at her month check up gained 1 full inch. she'll be 4 in feb & hasn't grown in height since she was 18 months. It's SOOO great.

Congrats & I know how good it feels.

Those are the best words I could come up with today.

I had to pull Emmah out of pre pre school. she wont be 4 until feb so it's not even her preschool year but I thought she's like playing and getting used to a school setting.

She kept getting glutened. I knew it wasn't me so I took her out of school for 2 weeks. she was fine. I put her back in on this past wed. Thursday..she had the poops and her tummy hurt.

I went in and talked to the teacher on friday(christmas party day) & she says well I don't know we'ree doing the best we can & I'm thinking to myself don't smack her, we can all do better, no?

So we keep talking and I'm like well she's getting gluten from somewhere & the teacher say " I wipe the table with her towel before she eats and then I wash her hands and use that towel to dry them and then she eats. I WAS LIKE ...WHAT? How dumb can you be, wipe the gluten on her GLUTEN FREE TOWEL and then wipe her clean hands all over the GLUTEN. I was so mad I almost burst. I walked away before I got myself in trouble. I let her have her concert and told them she was NOT stay for the party. That was her last day.

I am very angry and hope next year that when she goes to real preschool the teachers there are much brighter and atleast care.

sorry for rambling, I feel abit better now.

Hi,

My daughter has Celiac Disease and I was screened when we thought she might because a lot of members of my family have it. My results were aparently NEG.

As I learn more I keep wondering if I might have celiac disease.

I have symptoms that might be celiac disease but could be anything.

Constipation (all my life)

I'm always feeling very ill like I could throw up

headaches(daily)

I sometimes get numbness and tingling in my legs.

I'm so tired & I have animea

Should I tell my DR I want to be re-tested or should I go gluten-free?

I am thinking about going gluten-free but I also know it can take a long time to see results if I do have celiac disease.

I just don't want to do the diet to find out that I don't have celiac disease and we still don't know why I always feel so bad.

So get re-tested or go gluten-free???

Thanks

Char

wasn't

I wan't aware there was such a thing. Someone had given me a list of soups that were safe in canada and it included habitant pea with smoked ham, when my dh was reading the lable it said hydrolized corn gluten. I sound really dumb but I've never heard of it. I would think it's gluten so it's not safe but is that true?

Thanks

I'm confused!!! LOL

So Emmah's been gluten free for 2 months now and we have gained weight and in 1 month we grew a FULL INCH. This is huge for use, Emmie hasn't had any change in height since she was 18 months and she's going to be 4yrs in feb. The doctor did a double take. he said umm emmah can you back on I want to make sure I'm not seeing double LOL. we were both so excited!! he re measured her and he wasn't seeing double. YAY!!

It happens. Last night my DH make spagetti and didn'r relise it was wheat. I didn't know this until tonight. emmah had D & tummy ache and I didn't know why I was thinking about everything that she had and DH say after work. I just noticed that the spagetti was wheat I'm so sorry emmy and I said I wondered why she had d and tummy ache..now I know to watch what he makes. he thought because it said organic it must have been one I got for emmy but nope it wasn't. we are human we make mistakes. we have ti just try harder next time to not ACCIDENTLY gluten them.

Gluten should be the least of concerns when dealing with an atrocious product like Centrum Junior or Centrum for Kids. Go to www.centrumistoxic.com to find out the disgusting truth about the kind of poisons Wyeth is willing to feed our kids.

ALRIGHTY THEN what vit would YOU recommend then? curious????