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Amooliakin

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Everything posted by Amooliakin

  1. Amooliakin
    This is a late post since we are leaving tomorrow! But it occurs to me that just maybe someone has been to Havana and knows something to share. We have traveled extensively and know some Spanish and will be staying with friends... so I'm not too concerned. But if anyone has experience in Cuba please let me know ASAP. Thanks, Amy
  2. Amooliakin
    Does anyone know if this is safe? It is clearly marked as Gluten Free but the fine print says "Be aware that this loaf shares equipment with and is produced in a bakery tht uses flour, nuts & dairy products" So what's the deal? Is it less than 20ppm because it says gluten-free? Or is it anyone's guess? I am certainly hoping it is OK because it...
  3. Amooliakin
    This is the kind of thread I need to read more often..... We try so hard to be 100% gluten-free... but I know from my daughter's mood etc. that we are probably only at 97% due to errors and CC. It has been 6 months on the diet and in some ways it is easier - but then I learn more about how cautious I have to be. We are going in for the 6 month checkup...
  4. Amooliakin
    The reason I am particularly interested in the genes is that after my daughter was diagnosed I got a blood test to see if I am a "carrier" and I had ONE HALF of the DQ2 gene, which would indicate to me that the father provided the other half. Only in our case there is no biological father around because we used an unknown sperm donor (hope this is not...
  5. Amooliakin
    My heart goes out to these kids like your son and my daughter. It helps that they know they have been "glutened" but to the outside world they can just look like difficult kids. And I know my daughter was very good natured until celiac reared its ugly head. .... not to say I don't feel bad for all the kids whose symptoms are more physical...
  6. Amooliakin
    I am talking about a whole other level of cranky.... In my daughter's case she can't tolerate anything from anyone, she cries at the drop of a hat, she has no sense of humor, and she is tired to the bone. There are certainly times when we can't tell which is gluten and which is normal life of a kid.... but there are other times when it is all too clear.
  7. Amooliakin
    We found it helpful to have a batch of gluten-free brownies in the freezer at school so that if there were any celebrations, like birthdays, she would not feel left out. Also I'd be sure to continually check in with the nurse and teacher about mood changes and such. My daughter's main symptoms are irritability and tiredness, so if she gets gluten in her...
  8. Amooliakin
    I could not agree more! This is EXACTLY the problem I am having with my 8-year-old. We try to be 100% gluten-free, but there seem to be so many times when we make a tiny mistake... or don't know if we have. Then she may have a really bad day or two (cranky, irritable, tired, mopey, burping) and I have to guess what the culprit was. To make it worse...
  9. Amooliakin
    My daughter loves the Annies gluten-free Mac and Cheese. And since I make it for her and the regular kraft orange stuff for my son I can throw in a bit of the kraft cheese on top of hers to make it extra cheesy. I like it too. I agree with everyone about not going half way... or even 97% of the way, as we seem to be doing. We try to be 100% but it seems...
  10. Amooliakin
    Thanks everyone..... I am going to take the high road and bring a good attitude, our own turkey, stuffing (either in or outside the bird), and some gluten-free desserts for everyone to share. As usual, the practical matters are not really a problem. I was upset because of my history with my mother and feeling that she was not taking me or my daughter...
  11. Amooliakin
    I'm feeling really sad right now about Thanksgiving which is usually one of my favorite holidays. I had called my mother, who hosts the gathering (there are 18 of us all together in 3 generations) weeks ago to offer to make the stuffing so that Rebecca would be able to have the turkey and not feel left out. She agreed, but then suggested we make two...
  12. Amooliakin
    That is outrageous! My daughters test was only a tiny bit above normal and our GI doc still reccomended the biopsy which showed that my daughter DOES have Celiac....
  13. Amooliakin
    I really feel for you and your son. This is so hard! My daughter was diagnosed a couple of months ago. She is 8 and I agree that one of the biggest and clearest symptoms on the outside was her mood change. Because she complained of tummy aches on and off since she was 5 and no one could find anything wrong, I just thought she was overly sensitive....
  14. Amooliakin
    Hi. My daughter was recently diagnosed, so my son and I got the blood test as well. We were both negative. But I developed lactose intolerance a couple of years ago and wondered what else could cause that at the grand old age of 47. I guess I am looking at/for celiac in everything now that I know so much about it. So my question is - Are there...
  15. Amooliakin
    I know I am going off the topic now... but you bring up an interesting phenomenon. Now that I know about celiac, and we are taking care of our daughter in the right way, I find there are SO MANY adults who I meet who think they outrgrew celiac years ago, or their adult kids did, etc. They do not want to hear differntly - and I don't know them well enough...
  16. Amooliakin

    ARCHIVED Confused

    Amooliakin posted a topic in Coping with Celiac Disease

    I read two things that seem to contradict each other. I'm wondering if they are both true but for different people. One said that it is common to go gluten-free for a few years as a kid, then let gluten back in the diet with no symptoms. The book was explaining that no symptoms does NOT mean no Celiac disease. But I had not heard before of symptoms...
  17. Amooliakin
    I don't know exactly when my daughter first got celiac disease - but I do know that over this past summer things were getting worse. She had stomach aches and gas and diareah and reflux. She was cranky and tired and although she was a good sport about it most of the time, she just was not herself. It finally got to the point in September when we brought...
  18. Amooliakin
    Thanks - I think I changed my settings now
  19. Amooliakin
    I understand the concern about the anesthesia. I was worried most about that as well. It was explained to me that they use an anesthesia that is not really deep like a general anesthetic for surgery. I don't remember the name of the drug, but apparently it just puts you in a kind of dozing state. But then you don't remember anything later. I would...
  20. Amooliakin
    I agree that Celiac can present itself in a myriad of ways.... or none at all. It certainly sounds from your description that Ryan could be intolerant of gluten. The size issue is not conclusive at all. My daughter has always been tall and never lost weight. She has been right on her growth curve all along. She did have intermittant stomach aches since...
  21. Amooliakin
    Hi there - I am new and noticed that each time I start a new post I have the option of being notified by e-mail when someone has replied to my post. So I have two questions: First of all, why did it not work for one of my posts but only for the other? Second of all, how can I make that a default so I am always notified and don't have to remember to check...
  22. Amooliakin
    I also agree that if the diet works it works and you should use it. Especially since you and your daughter have been so sick. I suspec though that your blood tests will come out positive for Celiac. After that it is up to you if you want to do the extra step of the biopsy or not. In our case, my daughter was right at the begining of the disease. Her...
  23. Amooliakin
    Well the discussion went fine this morning. I started out telling the teacher that Rebecca LOVED the dissection and talked about it all evening. Then I "casually" mentioned that it was really not OK for her to have tasted the cooked fish. The teacher was apologetic and said she was carful that Rebecca only got the center piece of fish that had not touched...
  24. Amooliakin
    Thanks... I will be talking to the teacher soon and will let you know how it goes.
  25. Amooliakin
    My goodness! I had no idea there would be so much experience in China! We will be going to southern China - Hong Kong and Shanghai with some side trips. My partner speaks Chinese fluently - because she was born and raised there..... hence the relatives..... I will keep the MSG thing in mind and definitely bring our own soy sauce. I think we are also...
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