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Eugenia Carvalho

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  1. icon knitty kitty reacted to a post in a topic: Neurological symptoms
  2. Eugenia Carvalho started following Really high celiac test results; what do the numbers mean beyond diagnosis? , Neurological symptoms , Need celiac pediatrician specialist in Portugal and 1 other
  3. Eugenia Carvalho
    I have several problems related to autoimunity, I'm have already gone gluten free for a a year, but I discovered I also have intolerance to corn 2 months ago. My all body and brain are suffering for 45 years without proper diagnose or treatment. My liver, kidneys, thyroid, ovary, brain and muscles were very attack along the years but nowone cared, my...
  4. Eugenia Carvalho
    I would like to find an updated pediatric specialist on celiac, in Portugal or Spain.
  5. Eugenia Carvalho
    I'm sorry but Portugal Association doesn't recomend doctors and it's very attached to the classic form of celiac, also doctors b ecause new blood scopes are not available here. So there i'snt more treined doctors here in Portugal, maybe Spain. My daugther made the genetic test using saliva there.
  6. Eugenia Carvalho
    I'm sure here awareness is very low between doctors, my country is Portugal. I need a good doctor for my child. Second I would like to improve awareness , I still don't know how...here it seems that it as become a fashion not a real disease. Also because it differs a lot from person to person...
  7. Eugenia Carvalho
    I need to discover the name of the best doctor on celiac disease, can you help? Thank you...
  8. Eugenia Carvalho
    The lack of vitamine absortion is the first sign of celiac, still blood can range not low enough for doctors. The blood as semi normal but we are not absorving in the gut..and there is not enough in the body... It is always better treat celiac... Be strong....
  9. Eugenia Carvalho
    Being celiac isn't the end off the wold...getting treated is the best, if not all kinds of problems show up.... Being healthy without gluten is amazing, we learn how to manage food and labels, the secure foods and brands, after sometime it becomes normal life (without restaurants, without bakerys and coffee, ...) but we can still drink a bottle of water...
  10. Eugenia Carvalho
    The genetic test and the duodenal biopy are the two other exams, but blood tests really indicate a good chance of having celiac. I am doing the same with my daugther and after 8 weeks eating gluten the blood tests were getting high but still lower than the maxixum value used for the laboratory, but she as all lot of symptoms (bone pain, hard stool,...
  11. Eugenia Carvalho
    The problem of testing celiac: even if the genetic is positive (I have 3 genes positive): - you have to keep eating gluten, until blood tests positive but nowone really knows what amount of bread will get that value! - you are getting sicker, but the dosage of gliadin in not there still for the doctors it is not celiac even if you have all the signs...
  12. icon GodsGal reacted to a comment: A New Neurosis: Gluten-phobia
  13. Eugenia Carvalho
    Most of the times family doesn't help...they simply don't listen... the doctor can help and make a statement about the disease.....
  14. icon Scott Adams reacted to a comment: A New Neurosis: Gluten-phobia
  15. Eugenia Carvalho
    Good night I'm starting to speak about celiac now, I finally have answers afters 30 years looking for answers literally.... Here were I live, not in E.U.A. my doctor is teaching me how to handle with the cross contamination problem, she is also celiac and even for her was dificult the diagnose, even between their pairs... Non celiac person...
  16. Eugenia Carvalho
    I am also had ferritin low <30 (funcional ferropenia) and ferritin saturation < 19%, my family doctor initially said it was ok, and I couldn't almost walk. Then the celiac disease doctor gave me folate, B12 and Iron, the ferritin is already 38% and Ferritin saturation 21%, and I already feel a lot better. But because I took probiotic before...
  17. Eugenia Carvalho started following A New Neurosis: Gluten-phobia
  18. Eugenia Carvalho
    During 40 years I had all those things, I was neurotic, to slow, I was an human mistake that was born...that was what my mother made me feel. When I was 7,8 years old I went to birthday party's, eat cakes like other kids. After at home, what I have eaten came out through my mouth and I felt so sick....My mother said I was a glutton, I have eated to...
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