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Rogol72

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Rogol72 last won the day on June 13 2023

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About Rogol72

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  1. icon Wheatwacked reacted to a post in a topic: is my celiac disease gone?
  2. icon Scott Adams reacted to a post in a topic: is my celiac disease gone?
  3. Rogol72 started following Purposefully Glutening Myself? and is my celiac disease gone?
  4. Rogol72
    I can confirm this. I no longer have any issues with Iodine since being strictly gluten and dairy free.
  5. icon Rogol72 reacted to a post in a topic: 7yo struggling!
  6. icon Scott Adams reacted to a post in a topic: Purposefully Glutening Myself?
  7. icon annamarie6655 reacted to a post in a topic: Purposefully Glutening Myself?
  8. Rogol72
    Hey @annamarie6655, I think we've all glutened ourselves during the learning process of what it takes to be truly gluten free. Don't be hard on yourself. You're not glutening yourself purposefully ... it takes time to figure it all out. You should stand up for yourself and advocate for yourself at all times. The family dynamic can be very difficult...
  9. Rogol72
    I'm afraid not. Try the Atly app free trial ... or blog posts by gluten free travellers.
  10. Rogol72 started following Probably the best Helminthic Therapy video I've seen
  11. Rogol72
    @Theresa C, I was in Italy last year for a family wedding. There were several Coeliac's on the guest list including myself. Never had any issues both days and the second day was a pizza party. The gluten-free pizza was excellent. Italy is one of the best countries in Europe for Coeliacs. The Coeliac Society of Italy have regional offices and branches...
  12. Rogol72 started following Travel Abroad , How many people here are aware that there are 9 types of gluten that Celiacs should be aware of? , Medicinal mushrooms 🍄 and 4 others
  13. icon Rogol72 reacted to a post in a topic: Medicinal mushrooms 🍄
  14. Rogol72
    Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form.
  15. Rogol72
    We've got plenty Tiernan's over here across the Irish Sea! I think anything will irritate an open wound in the skin. My dermatologist suggested Aveno moisturiser and E45 Emollient shower cream when she thought it was Eczema. I'm sure they will help during a dermatitis herpetiformis outbreak, or be the least irritating. Rinsing off after exercise should...
  16. icon Russ H reacted to a post in a topic: How to navigate living with dermatitis herpetiformis
  17. icon Scott Adams reacted to a post in a topic: How to navigate living with dermatitis herpetiformis
  18. Rogol72
    Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...
  19. Rogol72
    @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains.
  20. Rogol72
    I agree. PPI use long term is concerning. I believe a combination of PPI use along with a history of antibiotics for colds and sore throats led me to develop CDiff and Ulcerative Colitis shortly after a minor knee op. Lowering inflammation and bloating through diet can significantly help getting off PPIs in my experience.
  21. icon knitty kitty reacted to a post in a topic: Family education
  22. Rogol72
    @sillyyak52, If it makes you feel any better, I have a sibling who thinks the dinner table (at fine dining restaurants, and less formal pub grub settings etc.) is a personal buffet table and dips into the food of whoever is sitting beside or opposite to them just to get a taste (no plate is safe!) ... never asks for permission ... and has no consideration...
  23. icon Rogol72 reacted to a post in a topic: Family education
  24. icon knitty kitty reacted to a post in a topic: Family education
  25. Rogol72
    Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make...
  26. Rogol72
    Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case...
  27. Jean Shifrin

    Thank you so much for this helpful information!

    1. Rogol72

      Rogol72

      You're Welcome!

  28. Rogol72
    I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights. Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in...
  29. icon Rogol72 reacted to a post in a topic: Nausea and fatigue almost all day
  30. Rogol72
    Hey @itarachiu, Have you investigated any other Biofilm disruptor other than NAC?
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