
geminigal
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Everything posted by geminigal
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ARCHIVED Blue Cheese?
geminigal replied to ebrbetty's topic in Gluten-Free Foods, Products, Shopping & Medications
It is baking soda -
ARCHIVED Blue Cheese?
geminigal replied to ebrbetty's topic in Gluten-Free Foods, Products, Shopping & Medications
I get sick when I eat blue cheese. I am also allergic to mold though. When I went to the Mayo on Monday they had blue cheese listed as a no no because some of them make the mold from bread crumbs. I just double checked the list and it said no for blue cheese and no for imported roquefort cheese and only eat "real" aged cheeses such as cheddar or swiss... -
definately make sure you call because that is what took so long for me. As soon as I got the slides down there they called back a week later and a week after that I was at the Mayo. I had a 10am appt, a 1:15 appointment, and a 3pm appointment with the nutritionist (this is the only one I was not impressed with) I am from St. Paul so I just took...
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ARCHIVED Test Results
geminigal replied to megdog1992ms's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did they check to see if you have the gene for Celiac? I am waiting to get my tests results tomorrow morning from the Mayo here in MN, and the doctor I saw said that he looks to see if you carry the gene if the other results are negative. He said that if you don't carry the gene then there is almost (99.9%) sure that you do not have celiac, but if you... -
ARCHIVED Neurological Symptoms
geminigal replied to Nan 70's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I forgot to ask my Dr. about this on Monday............ Do some of you get the feeling in your arms and hands like they are falling asleep...the pins and needles feeling? I had this start a couple of months ago and it is horrible. I also seem to have a very weak grip....as in it is very hard/painful to try to hold a blow dryer and blow out my hair, and... -
Just a heads up............ make sure they send you to the right place to get the slides sent down from MNgastro. I sent in the release to the fax they gave me and waited and waited and then finally got a letter saying that the glass slides were in a new building so I would have to call there and get them to send them. I still don't know why they didn't...
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After yesterday I don't think I would ever think of going anywhere but the Mayo for help with anything serious. Dr. Murray was as great, if not better than everyone said. He listened to me and every little symptom I had. He explained things well and took the time to answer any questions that I had or that my husband had (and he always has a lot). They...
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Actually, from the time I first called until my appointment it has only been 1 month! I was so suprised that I got a call back and an appointment so fast. The biggest delay was from MN Gastro in processing my request. It was a big ordeal which makes me not want to deal with them again...... I will let you know how it goes!!!
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ARCHIVED Gluten-free Antacids
geminigal replied to radgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are they really not gluten-free? If you have read my previous post you know I am not 100% sure I have a gluten problem, but when I read this I just about fell over...... Every time I went to the doctor with my symptoms they would ask "have you tried tums" and I would always say "yes, but I swear it makes it worse" and then they would look at me like I... -
ARCHIVED Getting A Second Opinion, What To Expect....
geminigal posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had previously went to MNGastro in Maplewood and the doctor there didn't do any blood test and just recommended and endoscopy. After the endoscopy the doctor said it looked like celiac disease (this was the first I had ever heard of celiac). I got a letter saying that they didn't find any cancer and everything was fine. I still went ahead with the gluten... -
I had previously went to MNGastro in Maplewood and the doctor there didn't do any blood test and just recommended and endoscopy. After the endoscopy the doctor said it looked like celiac disease (this was the first I had ever heard of celiac). I got a letter saying that they didn't find any cancer and everything was fine. I still went ahead with the gluten...
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ARCHIVED Enterolab And Insurance
geminigal posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Has anyone ever had their insurance cover their enterolab costs? I was just wondering if any body has had it covered or knows which insurances cover it. I really want to get it done, but to me it is a large sum of money.... Thanks so much! -
ARCHIVED gluten-free Cream Of Mushroom
geminigal replied to new to LI's topic in Gluten-Free Foods, Products, Shopping & Medications
I just picked up Creamy Protobello Mushroom Soup by Imagine and it says on the back that it can be used in any recipe that calls for cream of mushroom soup. I was going to try it tonight and see how it worked......I can let you know -
ARCHIVED What Do You Do For Lunches?
geminigal replied to prinsessa's topic in Parents, Friends and Loved Ones of Celiacs
As a daycare provider myself I know that here in MN we can/should provide meals that fit with your child as long as he has a doctor's statement explaining why. If you don't have that then we legally cannot feed them different foods. I have had lots of different diets come through here and I have either provided it myself or had parents bring their own... -
ARCHIVED Question About Bm's...may Be Tmi
geminigal replied to geminigal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks so much! It really does help to hear from other people that have gone through the same thing with the same questions and my DH is tired of hearing about my poop this week I think I am just happy only going 1x a day no matter what it looks like!!!!!!! -
ARCHIVED Question About Bm's...may Be Tmi
geminigal posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am on day 5 of being gluten-free and I have stopped having D and having to go over 5x a day, but now I am going 1x but they are HUGE and still floaty. I was just a little shocked this morning after seeing the size and was wondering if this was a good thing or not. I have also noticed that I seem to be able to breath a lot better through my... -
ARCHIVED What Are Some Things You Noticed Right Away After
geminigal posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am starting day 3 of being gluten-free and I was wondering what results you have seen immediatly? So far I haven't had any D and my tummy seems much less bloated. I am curious as to what to expect and what others saw!!! -
ARCHIVED Symptoms/endoscopy/opinions...
geminigal replied to geminigal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the endoscopy done and was told afterwards that there was very red irritated spots in my stomach and duodenum and that they took biopsies. I got the report back and it said the same thing. But just yesterday I got the "official" report from the biopsy and it said "no inflammation" and "no cancer" which doesn't help me at all!!!!!!!!! I... -
I would love to know where you are going and who you were seeing. I just recently had a visit with a Dr. at MN-gastro in Maplewood, but would like to have other options if I am not happy with him.
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ARCHIVED Symptoms/endoscopy/opinions...
geminigal posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
These are my symptoms that I have had on and off for the past five years. They actually started after the birth of my first daughter....... Severe (ranks right up there with child birth) stomach pains only when I eat. Sometimes it is only a bite of something that will start it off. Along with this comes gas, stomach distention, vomiting (mild to severe...