Canadiangirl

Just wondering if anyone has had any experience in this regard. I have some pretty low lows and then good days too. The lows, I beleive, are to do with gluten ( big suprise) but last month my doctor suggested I see a phsychiatrist as I was have a rough go. Is this a bad idea? Should I even bother as I know that I can keep myself gluten fere to the best of my ability and be ok. When I am low I am so negative that people don't want to be around me! Has anyone had problems with signifcant others getting tired of 'negativity'?

Thanks

Hi there,

Since there seems to be some knowledge here, I am a BC resident and have not yet had a biopsy but have had 1 posative blood test for gluten when I was eating it and one negative after about a year of not. I have been gluten free for about 3 years and get so so so sick when I eat even a wee bit of gluten (as you all can relate to). I have great medical with my job, and I have heard that one can submit food costs etc. with taxes. Is this true? If so do I need to have the boipsy to "proove" that I have celiac? And in that case I have had several doctors suggest i just suffer and eat gluten for a few days or weeks to get the offical biopsy, I cannot imagine how horrifically ill I would be. How long do you have to be eating gluten for for this test to be worth it? ( Can you imagine eating gluten for a time and being that ill and then having it not be posative!?!) Experience? Thoughts?

Canadian Girl

Thanks everyone for some great feedback. I am still feeling it...in waves. no fun! But thats life with this disease eh! Any other feedback is still welcome:) I apologize for all of the typo's in my first post! yikes!

Canadian girl

Hi there,

I am new to any kind of post board, but I am looking for some feedback. I have been living with Celiac for 4 years now, and proir to that was sick all the time. I have been strictly gluten free for about 3 years with the occasional mishap with suace on a meal or an unknown source. Yesterday I at breakfast with my family, my lovely dad made me gluten free pancakes and the rest of my family regular wheat pancakes. There was some confusion and even though I triple checked, I ate 3 wheat pancakes:( I discpvered teh mistale about 5 minutes after eating them... this was horrifying as I get very ill form even a tiny amount. I immediatly tried to make self vomit but after 30 minutes I gave up and went to the hospital hoping that I could get some sort of vomit inducer. But by this time I am sure the gluten was already digestingand we waited for 4 hours and then left as the wait was going to be a few more hours ( ah, the wonderful medical system of canada). So far I have had a nasty head ache since yesterday when I ate and feel like I have been run over by a large vehicle. I also have a fever. I am wondering if anyone has any suggestions. What the heck can I do to bring up a mistaken gluten source, is this even an option? What whould I expect over th enext while as a reslt of this mistake? I assuming i will be ill for the next few weeks...the normal cycle or head aches, then IBS type symptoms....I am worried about the damage I have done:( Its Christmas so my doctor and natuaropath are on holiday:(

I am suprised that I have not been hit hard and stuck on the toilet like i usually am when i eat a very trace amount. Why has a significant amount not cuased this ( yet?)?

Any advice would be amazing. It's a bit of a lonley disease:(

Thanks!

Canadan girl