hillyb6

honestly i would have her checked for eosinophils it can mimick celiacs and crohns and you would have a neg blood owrk and neg biopsy for both and not all gi will look for eosinophils so you would have to ask and make sure on the pathology report it says none or zeron not that just that show anything on it because alot of times they dont look that is why...

where did you find the rates on teh eos of high>4 my daughter was just biospy her was more than 75 just cant seem to find much about how they determine the severity of it and and allergy testing doenst alway lend results for teh eos triggers since to get a pos allergy test its a ige antibody and for some resaon alot of the triggers for eos disorders...

just wanted to say thanks for all the helpyou all have been we have a diagnoise for my 8yrold daughter she has eosinophilic gastroenterist its an allergic reaction of the gi tract somewhat like celiacs but to alot more foods and eviromental allergys so if some of you with out pos biopsy find out if they checked for eosinphils alot of drs dont check...

yah well that is basically what they fed hannah too after her surgery was nothing but gluten so wonder she had amigraine and pain but she was on soo much pain meds proably good thing i am shocked that kids that were in there with pos blood test for celiacs were being offered nothing but gluten now for my dd its unclear but last night she ate chicken...

hannah been on previcid 30mg since sept its clearly not helping so i guess we try soemthing else now

my 8yrold just had the scope done she didnt even have to wear a gown go figure she got to wear her street clothes not sure how they managed that undressed her from waist down after she was knocked out was my guess but she was fully dressed when i got back to her room so she has no idea she even had a scope up the hind in which is all as well she is veyr...

ok my 8yr dd had her endoscop and colonoscopy done today and they ruled out crohns but we wont have the biopsy results back for a few days to a week they did find grade 4 errosion of her esophgus and some gastrist in her stomach can that be related to celiacs? or is that seperate issues altogether another thing i am shocked about is they are...

ye from what i can gather they didnt do all the test i dont know why other than they dont know about the others or what i will ask the gi dr about it

bitter sweet cup isnt it, now you know for sure but you were sort of hoping it wasnt ?

yes i think that is exactly what were gonna do this week i plan to go and start replacing our glutened food wiht nonglutened foods dd has been gluten free for 3days not on purpose just been soo sick she hasnt eaten anything with gluten i cant say she feels better cause she has the flu, but she hasnt complained once that her stomach hurt i just plan on continueing...

hannah is iga def but i knew that she had her tonsils and adnoids removed at 23month due to iga def and chronic infections in both by her ent but is that the same iga def you mean she doesnt produce normal amounts of iga antibodies to protect her muscus membranes so she is more likely toget nasty infections my oldest son is totally iga def he produces none...

all i know is the igg panel and iga panel under 11 was considered normal i have nothing else for the other panel that was done and the other ones they werent done just the two panels the gliadin panel, and the endomysical panel were the only two test run and the retiuline iga thats all the ran is that not the full panel?

or show me so a site that explains them i asked them to tell me what test they ran and what the numbers were and if i misspelled things please excuse gliadin anti bodie panel iga 3 igg 4 endomysial antibodie screen iga neg retiuline iga less than 5 no antibobies detected

ok if this makes any sense she had gliadin antibodi panel igg was 4 iga 3 endomysial antibodie screen her iga was neg and retiuline iga antibobies was less than 1-5 antibodies not detected does that at all m ake any sense

she is 8 not young so i dont know what to think she still has her gi appointment but still very disappointed