
LyndaCanada
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Everything posted by LyndaCanada
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Hi Everyone I'm sorry but I just have to vent. I have a good friend who's husband is supposedly Celiac for 7 years. Well, I went out for dinner with her last night and she drove me insane. Her dh has never had the biopsy, the bloodtest and does not have low iron. He may very well have some of the other symptoms of Celiac, not really my business but...
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ARCHIVED Question About Sucrose Iron Infusion? Bone Density Scan?
LyndaCanada replied to LyndaCanada's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks Nikki, I appreciate the information. Honestly, i felt so brushed off at the doctor's office yesterday I was quite angry. He barely looked up from the report he was scribbling up to answer my questions. Like I said, I had NO CLUE my iron was this low, no wonder I felt so horrible!! He didn't explain anything ughh!! Thanks again, I'm so thankful... -
ARCHIVED I Have To Vent!
LyndaCanada replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
Wow! What totally insensitive teacher, she must just not be thinking. There are soooo many gluten-free snacks she could provide instead. What about fresh fruit and veggies instead of JUNK food. I think you should type up a letter to all of the parents of your child's class and do a sign up sheet for the parents to each bring some fruit and vegetables... -
ARCHIVED Colonoscopy?
LyndaCanada replied to Terch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, I would say if you DON'T have to have a colonoscopy, then don't it's truly awful. The preparation involved with drinking all kinds of horrible stuff not to mention the enema is HORRENDOUS!! I think in my case they were trying to rule out a colan infection, Colitis, Chrohn's Disease and Cancer hence why the doctor ordered the colonoscopy first. ... -
ARCHIVED Colonoscopy?
LyndaCanada replied to Terch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Actually, they can still see flattened villi on a colonoscopy, in my case they did I had a colonscopy first and they could see the flattened villi and they wrote "strong suggestion of Celiac Disease" on my biopsy report. My doctor then ordered the blood test that came back negative. They did eventually do and endoscopy after I had eaten gluten-free for... -
ARCHIVED Question About Sucrose Iron Infusion? Bone Density Scan?
LyndaCanada replied to LyndaCanada's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, it cetainly does! UGhh! The weird part is that I've always been borderline anemic for years. I was very suprised that I was going to have to have this done. Unfortunately my GI doctor wasn't terribly talkative yesterday so I didn't get a chance to ask him much. I guess the iron levels must be pretty low since I became really sick in the last 3... -
ARCHIVED Getting A Diagnosis
LyndaCanada replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would encourage you to have the biopsy. I too have had 2 negative bloodtests but two POSITIVE biopsies. They did things a little backwards for me, I actually had the biopsy done before the blood test which was probably a good thing because my GP was trying to convince me that I couldn't possibly have Celiac Disease because of my STRONG negative results... -
Wow, that's awful! I'm so sorry. Do you think maybe if you contacted your local Celiac Association chapter they might have a list of good doctors? Where did your doctor go, is he still praticing in Calgary or what? Is this your GP that you mean or your GI doctor? To be honest, my GP was completely useless in helping me with my diagnosis, she was...
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ARCHIVED Hickory Smoked Almonds? Maltodextrin, Smoke Flavour?
LyndaCanada posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Everyone In the last 5 days I've been eating Planters Hickory Smoked Almonds only to realize that I don't think these are gluten-free are they? I've had diarrhea since I started eating them. Is Maltodextrin and Smoke flavoring the culprits? I found some information about them and it seemed a little iffy? Anyone know for sure? Ughh, they were sooo... -
ARCHIVED Has It Stopped Since Going Gluten-free
LyndaCanada replied to Rusla's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh my goodness YES!!!! I never thought of that. My VERY first symptom before the severe diarrhea started was the horrible itching down there. I was convinced that I had some sort of infection, I had all kinds of tests done and they kept saying there was nothing, it was awful. I was buying all kinds of over the counter creams and nothing gave me relief... -
Hello Everyone Well, the doctors suspected for months that I have Celiac and today I heard him say the words, are you prepared to go gluten-free for the rest of your life? Wasn't an easy thing to hear, I was hoping they'd say, it was just an infection or it was going away, I don't know what I was hoping. I guess I'm thankful it's not cancer or something...
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ARCHIVED Do Anyones Symptoms Go In Cycles?
LyndaCanada posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone I haven't posted in a while because I've been feeling really good.... until today that is! I had my biopsy last Monday. The doctor had told me to eat lots of gluten before it which i was really worried would make me sick. I actually wasn't that bad, just really constipated whereas my problem before was always severe diarrhea. So after... -
ARCHIVED I Am So Glad To Be Here
LyndaCanada replied to jacey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome Jacey I've only been on this board for a day and I've already found it to be extremely helpful. I am very newly diagonosed with Celiac. I also have Fibromyalgia so it is interesting that there could be a connection somehow. Lynda -
ARCHIVED Can 1 1/2 Weeks Of Gluten-free Affect Biopsy Results?
LyndaCanada posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Everyone Another question from the newbie. I have had one biopsy that the doctor wrote "highly suggestive of celiac" on the report but yet I tested negative on the Celiac blood serum test or whatever it's called. When the biopsy was done(December 18th) and when the blood test was done I was NOT gluten-free. I was advised to start a gluten-free diet... -
Hi There I am just new to all of this and so far I've been eating next to nothing for lunch, rice crackers,cheese and salad and I'm already sick of it! I think I'm lactose intolerant so I think the cheese is going to be out too so some of you were mentioning lunch meat, I know alot of them have gluten int hem. Which brands of lunch meat are okay? I live...
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ARCHIVED Hello, I'm New And "almost" Diagnosed
LyndaCanada replied to LyndaCanada's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the welcome everyone. I'm in Edmonton and my dr. is Dr. Richard Fedorak who I know is really well known in the gastrointestinal field so I am thankful that I am in good hands. Ohhh, I hope the lactose intolerance goes away though! Lynda -
ARCHIVED Hello, I'm New And "almost" Diagnosed
LyndaCanada replied to LyndaCanada's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Hello, I'm New And "almost" Diagnosed
LyndaCanada posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone My name is Lynda, and I live in Alberta, Canada. I'm a married 36 year old Mother of two little girls. I am probably more fortunate than most given that my diagnosis has been relatively quick. I became sick in November with severe diarrhea of course thinking I had the flu. Once it progressed longer than 2 weeks I knew something else had to...