vbecton

thanks myquest7846!! I will keep an eye out for this and maybe even offer myself up for trials! i'll also check to see if any trials are going on in my area. right now, 7010 are in preclinicals. exciting. and no worries gemini! my situation is different. the whole blood sugar thing is a problem. i find that 100x worse than celiac! then traveling...

I would! Only because of my lifestyle. When I'm home in my own country eating gluten isn't necessary. When I'm overseas, it's sometimes unavoidable. And only because I have other medical conditions that further restrict my diet to a paleo type diet (but no fruit for me). When I'm in a 3rd world country and all that's available in a village are some...

Thanks for your help Gemini. I guess my post came across as blase toward careful meal planning, but that's not the case. In some countries, we've even done gluten-free reconnaissance missions (ha!) where we know people on the ground where we are headed and they get the lay of the land (restaurants, health food stores, etc...). Another medical issue...

Haven't been on here in a long time! In lieu of the article Celiac.com put out today about research furthering on a new "celiac" pill, which would be a lab created enzyme to break down the peptides. My brain is swirling. We travel overseas half the year. We are in anywhere from Europe to 3rd world countries. I always get contaminated as eating in some...

Your situation sounds like mine. I eat nearly 4000 calories per day and feel (most of the time) like I'm being starved alive. I have good days, but even those I don't eat much less than 2500 calories. I've had low blood sugar problems my whole life. I went gluten free 4 months ago and they seemed to resolve. Now, it's coming back. My diet is clean...

Try looking at this site: Open Original Shared Link Scroll down to Medical Advisors. Janet (the leader of the Houston support group) is very knowledgable and I'm sure everyone on this list is highly recommended for Celiacs. Someone on that list is bound to accept BCBS. Good luck!

Wow, I'm so happy to know Disneyworld considers intolerances/allergies! Very good info to know. I'm intolerant to all the above as well, but by far the worst was soy. I think it's because once you take out gluten, then dairy, anything left that is processed will be made with soy. So, I consider soy the worst Eating gluten & dairy free are...

I'm with ravenwood. If someone says that comment on a bad day, I'll blow a gasket. In fact, last week I went to the hospital lab for my monthly blood work (vitamin levels, etc...) and the intake lady looked at my lab sheet and said, "oh, 'weight loss', that's a convenient problem...poor you!" And she was very sarcastic. I kindly replied, with a sweet...

Good info! My doc did mention there was a qualitative and a quantitative test. There was so much information talked about during our meeting that I can't remember my head from my tail, but I do remember him saying he wanted a full 3 days of specimen to get an average of fat. But, I'll email him to make sure he's looking for both types of fat. Did...

Thanks ravenwood, I guess we are on the right track with the stool testing. My GI said the blood testing was too non-specific to really give us anything to go on. He also said the pancreas isn't easy to diagnosis. There are lots of things to rule out first, unless it's an acute problem.

Went back to the GI doctor yesterday for test results. I'm steadily getting worse. My bowels are in full-attack, military distress, calling all cars mode!!! Can't hardly leave the house for fear of "D" as I never know when it's going to strike. It's the sneak attack D, the kind without much warning. The doctor thinks my pancreas could be the problem...

Hi Chakra2. Thanks for the nutritionist info. I would definitely take the advice of a nutritionist, or dietician. I was referred to a nutritionist, but her prices were astronomical just for a consultation....and 1 hour at that. I'll look her up. That's actually the area I used to live in. I *heart* Montrose!!! Thanks!

Oh sweet baby jesus! I was actually holding my stomach while reading your story. I'm so sorry you had to go through all of that. And why is it that our husbands are always out of town during the good stuff? I know he must have been scared! And yes, mommies don't get days off. I was in bed all weekend and when I finally decided to peep out I saw...

BTW, I love Australia. I have spent many a' months in that great country, on many trips. I tried to find an Aussie to marry me, but no such luck . Great idea about the stir fry's with noodles. I'll get the cookbook because I need help on the sauces. That seems to be my biggest cooking obstacle...finding sauces that I can use that won't make me...

You are making my brain work...I like it!! I have been reading the Sue Shepherd information, as well as what comes from Monash. I never thought about a phone consult! Good idea. I've got the Patsy Catsos (IBS-Free at Last) book and it follows what comes from Sue and Monash. Although, I don't think the book is highly scientific, it gives the basics. ...