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jcc

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Everything posted by jcc

  1. jcc

    ARCHIVED Dr. Rind

    Your symptoms sound similar to my family and we are also double DQ1. There sure are enough of us DQ1ers...it is great that your GI acknowledges we exist rather than dismiss you because you don't have classic celiac disease. Cara
  2. Angie, I have run across a connection between gluten sensitivity and narcolepsy...and the DQ1 gene. While the main celiac genes are HLA DQ2 and DQ8, a couple of different researchers have found that HLA DQ1 is associated with gluten sensitivity that rarely shows with villous atrophy, but can cause GI, neurological, and other symptoms. It was googling...
  3. You're welcome! As time goes on The Gluten File has become a collaborative effort of many, so I don't want to take all the credit for it, but I truly appreciate your kind words and its nice to know the information is making its way around. The Gluten File began out of pure frustration because although my family looks very much like your average celiac...
  4. oops...duplicate entry..see next!
  5. I don't usually post here, but would like to share some information about the wide ranging neurological problems associated with gluten sensitvity...with or without celiac disease. Check out Post #3. If anybody seems to fall into this category..please consider stopping by the Braintalk Gluten Sensitivity forum where we have an increased interest in the neurological...
  6. I just happened upon this post from an unrelated google search, and couldn't pass by without mentioning that these symptoms sound very much like symptoms of B12 deficiency, not uncommon at all in patients with celiac disease or gluten sensitivity. I had most of the symptoms you mention and many more with a low normal B12 level of 294 (150-1100). You could...
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