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jcc

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  1. jcc
    Take it slow at the gym... it is really easy to overdo and complicate matters with injury. I've had migrating joint pains and what my family has commonly referred to as "wimpy joint syndrome" for much of my life. This is one of those things that improved significantly for me that I wasn't really expecting. At age 48, my joints give me less trouble...
  2. jcc
    That is incorrect. Are they still teaching that in medical school? It is a dangerous, although common, misperception that keeps people from being diagnosed while their neurologic disease progresses. Also, you may want to read the full text of this article, 1999, but very good. Open Original Shared Link A Guide for the Primary Care Physician...
  3. jcc
    Hi Matilda, All lab ranges vary a bit, but typically lows are set around 150, when there is evidence that some people begin experiencing neurological and other deficiency symptoms with levels in the 200-300's. Rarely, B12 deficiency can be present with levels 400 and higher, for reasons too complicated for me to address here (or really understand myself...
  4. jcc
    Congratulations on receiving your gold star! You may not feel lucky, but it is great when the diagnosis is clear cut. Best of luck with your gluten free life...you will do fine! Cara
  5. jcc
    daffadilly, You make a good point, and after I left this thread this morning... I did wonder if in the ten years IM's mom's doctors told her she was depressed, if they ever tested her B12 level, and what the result was. Normal isn't good enough. Both B6 and B12 deficiency can contribute to depression and anxiety, and sometimes even correcting the diet...
  6. jcc
    IMresident, thanks for your post. It helps to understand where you are coming from. We all form our opinions and biases based on our life experiences. The flip side to your experience also happens, and I hope you can appreciate that. Open Original Shared Link And how about this one? Now, to clear up a few other things~ Neurological disease...
  7. jcc
    Has anyone heard of the cookbook "The Garden of Eating" by Rachel and Don Matesz ? " Our purpose is to guide you toward greater health through optimal nutrition. The Garden of Eating is more than a diet book and more than a cookbook. It's a comprehensive guide to natural eating. It's principles are not new. They are based on the ancient, time-tested...
  8. jcc
    I agree with Steve.... oral B12 does work...and maybe you would do better with a higher dose. The response, however, can be quite variable, depending upon the length and the severity of the deficiency, and the dosage. Most people notice some improvement within three months or so, but it can take quite a bit longer. Sometimes the level comes up quickly and...
  9. jcc

    ARCHIVED Nightblindness

    jcc replied to cgilsing's topic in Coping with Celiac Disease

    I've had night blindness forever. I avoid night driving because of it...I really can't see! I also have to have lights on in the house always, and really bright light for reading. My daughter had major light sensitivity before going gluten free. She said her eyes HURT from the light, and we had to sit in the dark and slowly let her eyes adjust to daylight...
  10. jcc
    You know, all three of my pregnancies followed that exact same course....
  11. jcc
    Well, that sort of flew past me . There is a woman who used to post on BT who had some very interesting theories about fungus as being a trigger for Celiac Disease. Very interesting stuff, not that I could understand all of it. She was a biochemist or similar by profession, and I never even took high school chemistry. I like to keep an open mind as things...
  12. jcc
    Fresh this month~ Open Original Shared Link. PMID: 16960894 Sept 2006 And in July~ Anti-tissue transglutaminase IgA antibodies in peripheral neuropathy and motor neuronopathy. Open Original Shared Link Antibody to Tissue Transglutaminase May Fall Short for Accurate Triage of Celiac Disease Open Original Shared Link (must register, but its free...
  13. jcc
    oops...a repeat.
  14. jcc
    Ravenwoodglass, I'm sorry to hear of your history and suffering. I've been hanging around celiac boards long enough that I've heard so many similar testimonials over and over. I met a pathologist several years ago on the Delphi board who suffered severe depression for a very long time...can't remember how long exactly. He tried every medication...
  15. jcc
    I will only speak to my circumstance. In the case of my daughter, she had an isolated mildly positive antigliadin IgG antibodies of 30 (20-30 weak positive, >30 moderate to strong positive). She had diarrhea for two years, 5-6 explosive episodes daily for over a year. She had daily stomach aches. She complained of leg pain daily, and joint pain in her...
  16. jcc
    I think too often we think in all or nothing ways, and look for a "one answer fits all" solution, rather than consider it might be an answer for a subset of the population. I think it is a shame when science discounts a possible treatment for a condition because it doesn't work for everyone, and sadly, that happens all the time. 10% of schizophrenics...
  17. jcc
    I did find this that said 3 months of a gluten free diet would render the antibody testing inconclusive. https://www.celiac.com/st_prod.html?p_prodi...-39106468580.c6 I guess the concern would be that if someone were in early stage of disease that might show only a low positive, even a month off gluten might cause them to test negative? Editing to...
  18. jcc
    A tad off topic, but this is very interesting in regard to how it is determined which tests are cost effective, or if it is cost effective to screen an at risk group. You need to register, but access to this article is free. Serological Testing for Coeliac Disease in Patients With Symptoms of Irritable Bowel Syndrome: A Cost-Effectiveness Analysis Open...
  19. jcc
    Dr. Fine doesn't look for celiac disease. He looks for gluten sensitivity, and he isn't alone in believing that 30% or more of the population have some form of gluten sensitivity. I think it was mentioned previously by someone else that many people with total villous atrophy are asymptomatic. So, how does one determine whether one is really completely...
  20. jcc
    Back to original question, I just ran across this,~ Open Original Shared Link Cara
  21. jcc
    Found this: Antigliadin antibodies (AGA) mark celiac disease, but AGA are also encountered in IgA-nephritis, psoriasis, sickle-cell anemia, hepatic disorders, juvenile rheumatoid arthritis, autoimmune thyroidism and in persons who occupationally contact great amounts of wheat. AGA IgA and/or IgG were registered in 19 of 60 subjects (51 adults and 9 children...
  22. jcc
    The frequency of Lyme/Celiac co-existing is hard to miss. I have also known several who had both, and usually B12 deficiency, as well. The symptoms overlap greatly. All parts need to be treated for people to be well. My B12 deficiency symptoms looked a lot like Lyme or MS, so I have held Lyme disease potential in the back of my mind...although all...
  23. jcc
    It's a really good question. It can be elevated in people with MS, rheumatoid arthritis, gluten related neurologic disease, psoriasis, Sjogrens, SLE, thyroid disease, Down Syndrome, schizophrenia and more. And they say in 10-15% of 'normals' (although I have to question the definition for normal, because even those with biopsy proven celiac disease can...
  24. jcc
    Well, you would hold a minority opinion among physicians. The majority of doctors would not recommend a gluten free diet trial in the absence of biopsy proven celiac disease. My oldest daughter has opted against a gluten free diet because the GI made it crystal clear to her that it was not necessary, and what fifteen year old (now twenty) wants to give up...
  25. jcc
    Sparkles~ I've know people with gluten related neuropathy to show improvement, although not complete, but not getting worse. Here is a Open Original Shared Link on other things that may contribute to neuropathy in diabetes. If you were low in B12, you could improve just with the additional B12. Neuropathy due toOpen Original Shared Link is often...
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