Jump to content

jcc

Advanced Members
 View Profile  See their activity

  • Posts

    78

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by jcc

  1. jcc
    This is news to me! If true, you might want to relay the information you received to the keeper of this list: Open Original Shared Link
  2. jcc
    In the end, one's response to the diet may be the best test of all. For others reading along who may be considering a dietary trial, it really is best to do at least the blood testing before experimenting with diet.... if you think you will ever want to seek an official dx. Then no matter what the results... I always recommend a dietary trial... because...
  3. jcc
    Joseph Murray, M.D, is a reknown gastroenterologist at Mayo~ Open Original Shared Link I may have a recommendation for you by the end of the day for a primary care doctor who understands celiac disease. My DIL is in medical school at Mayo, and she shadowed a doctor in the area who has celiac disease herself. I'm just not sure if she was a primary care...
  4. jcc
    Hello fellow Kenoshans and Wisconsinites! I was born in Milwaukee, grew up in Greendale, attended UWM, and have resided in Kenosha for the last 20+ years. I've been gluten free for eight years, along with my 13 year old daughter. I've been busy advocating about gluten sensitivity ever since we realized my daughter has gluten sensitivity. She doesn...
  5. jcc
    Increased cell volume (MCV) points to B12 deficiency, but I wasn't sure what increased RDW might mean. I tried looking here. It says that an increased RDW could be associated with pernicious anemia (B12 deficiency) Open Original Shared Link But, since B12 deficiency can shows as a high MCV, and iron deficiency shows a low MCV... if you have both B1...
  6. jcc
    I should have known better. I did check the date, but missed the YEAR. I was thinking.... WOW... that is a long thread for an April 17th post....thinking a few weeks, not a few weeks plus a YEAR!!! And no, I didn't read all thousand plus responses to find out . Glad to hear if things are going better for you now... Cara
  7. jcc
    lol.... some people will do anything for $$. Maybe it was one of those studies where you get paid for participating ~
  8. jcc
    Hi Rice Addict~ The research is ongoing, but it is looking at both gluten and casein sensitivity in regard to developing autoimmune Type 1 diabetes. Have you seen any of the research about zonulin? I have accumulated a lot of the information here... hope you find it of interest. Open Original Shared Link Open Original Shared Link Open Original Shared...
  9. jcc
    Betchya its the B12 deficiency. It was for me! Open Original Shared Link Haven't had one since! Cara
  10. jcc
    Hi Electra~ Oh my~ Neither pernicious anemia or celiac disease are rare! Yes, B12 deficiency can result from celiac disease, and may self correct over time. HOWEVER, it is equally possible that you also have pernicious anemia, and will need B12 for the rest of your life. There are antibody tests for pernicious anemia, although they say 25% of...
  11. jcc
    One of my daughter's had a comprehensive stool analysis done by Doctors Data (I think) that looked for bacterial overgrowth, but I think you are right that a breath test is often done~ Good thing to be looking for... though. You might find some other things to consider listed here: Open Original Shared Link While my daughter's diarrhea dropped...
  12. jcc
    This thread is really, really long... but I haven't read here in a while... so I thought I might as well add my 2 cents~ Hi Rachel, About six months into a gluten free diet, my daughters symptoms began to re-emerge. We found she also needed to remove corn.... however, some five years later... she does ok with corn although we try not to overdo (still...
  13. jcc
    My daughter with gluten sensitivity reacts to casein with gastrointestinal symptoms (stomach ache, gas, bloating, diarrhea). Apparently this is not uncommon. Thankfully, while she also had neurological symptoms with gluten, she doesn't seem to get neurological symptoms with casein (although some people do... I've heard of both seizures and peripheral neuropathy...
  14. jcc
    Here is some info I've found about fibromyalbia/CFS. Even without meeting the diagnostic criteria for celiac disease, many people suffer from gluten sensitivity (and possibly other food sensitivities, too) that may contribute to their symptoms. However, if this person hasn't been tested for celiac disease, they SHOULD BE, before removing gluten from...
  15. jcc
    I had a low positive of 160 homogeneous, and 80 peckled (less 40 negative). My only known autoimmune disease is Hashimoto's thyroiditis (anti-TPO > 900). They did look for some other antibodies, but none turned up for me. Celiac Disease and Hashimoto's can cause an elevated ANA from what I've read. as well as many others. This lists some of the...
  16. jcc
    You might be interested in reading this page as it has some interesting info about fibromyalgia and food sensitivity~ and you might find some other things to consider as well. I especially like the one titled What Doctor's Don't Know or Tell Patients ~ Open Original Shared Link Also look for the page on IBS, too, and maybe B12 deficiency. Have you...
  17. jcc
    Here are a couple references for interpreting lab tests~ Lab Tests Online Open Original Shared Link Merck's on high/low results Open Original Shared Link I know from experience that abnormal labs are often ignored if "not abnormal enough" or passed off as related to the one condition they know you have, rather than explore the possibility of...
  18. jcc
    In the US, I was told by the GI that the recommendations are to heavily sedate adults, but use general anesthesia for children. My daughter, at age 15, was under a general. The anesthesiologists will give special consideration for your son, I'm sure. They are pretty cautious. We were sent home the first time because my daughter's oxygen level was low...
  19. jcc
    Hi! I have not personally had IgG testing done, but I've been thinking of doing it for my daughter for a couple of years now...just never seem to have the money or make it a priority (plus she is squemish about blood!). Anyway, I've known quite a few people who have removed the foods shown positive on IgG testing, and saw positive changes. IgG testing...
  20. jcc
    Here is the link that takes you directly to the Dog Food page~ Open Original Shared Link At the very bottom are some links to a cat site, too. Cara
  21. jcc
    Nutro Lamb and Rice variety and the Dental Care variety are gluten free, but read the label carefully. Some varities of Nutro are not gluten free, but you will see wheat flour on the ingredient list of those. The lamb and rice based treats are also gluten free. Open Original Shared Link Open Original Shared Link Open Original Shared Link Open...
  22. jcc
    Yes, its possible. I don't know why our doctors sometimes act like they've never heard of it. When I described my symptoms of numbness, burning, tingling, buzzing and twitching, my doctor looked at me like I was the first to ever complain of such things. I'd want to rule out any nutritional deficiency that may need to be addressed. Many doctors just...
  23. jcc
    There are many causes of PN, including Celiac Disease. PN that is directly related to Celiac Disease may be caused by either direct immunological factors OR nutritional deficiency. In terms of nutritional deficiency, the major concerns are deficiencies in vitamins B1, B6, B12 or E, so it is a good idea to address these areas with your doctor. Also, as...
  24. jcc
    My daughter smelled phantom odors frequently during her seizure days. She smelled different lots of different things. Cara
  25. jcc
    I am a fellow B12er myself. I had neurologic and other symptoms for three years before anyone thought to test it. My symptoms were truly frightening for the last 6-12 months. I can relate to whoever said they couldn't remember their phone number. The oral B12 is about $8.00 for a three month supply, so if you decide you'd rather not have to deal with...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.