Woolygimp

I've started eating grain free because I have Sjogrens (an autoimmune condition) and celiac disease. After over two years on a gluten free diet I wasn't getting better... Eating grain/dairy free has really been a big improvement for me, I feel like I have a lot more energy, my Sjogrens has died down a lot, and I feel much less inflamed.

I didn't have insurance at the time and was around 20 years old and remember thinking that they'd have to take me to court to get that money. I'd have paid something reasonable- and maybe $500 or so without much fuss, but not 8k. Not for a medication refill. The only bill I've torn up and refused to pay.

Well I'm feeling great. I don't remember my thought clarity being this good, or having this amount of energy...ever. I went from barely being able to walk from one side of my house to another, struggling to lift my arms, swollen facial skin, asthma, and just generally extremely poor health and now I feel awesome, and the only thing I changed was my diet...

They should be safe, unfortunately it's not just gluten that give most of us problems. I thought it was for me and wasted 2+ years doing a gluten-free diet by the book without improvement. Corn & Dairy were big offenders that I always thought were safe.

If it makes you feel better, I was skinny my entire life. When Celiac disease "started" around when I was 17 I literally jumped up from a lean 140-145lbs to 190lbs in a month. Keep in mind that I had NEVER weighed over 150lbs before that point. So I gained massive amounts of weight, at least for my size, when I got "sick". Everyone around me thought...

When I first started the diet, after a few days of eating nothing but beef... I had felt better than I ever had. I felt like I could run 10 miles, my awareness was through the roof, and for the time in seven years I felt amazing. I didn't have any muscle pains, exactly the opposite, and I don't ever recall having THAT much energy. It felt great. Then...

If autoimmunity is caused by increased permeability, which I'm almost positive it is, then have you seen people with RA/Sjogren's/autoimmunity improve w/ this restrictive diet? Both me and my sister developed autoimmunity and massive allergic problems to food I've NEVER had problems with in succession to Celiac disease. Our intestines were wrecked and...

I just don't understand why I'm the only person here that reacts this way to food? It's not like a generally feeling of malaise, it's literally being zombified after eating something that I react to. It may be a combination of anaphylaxis (cause of low blood pressure) mixed with my general fatigue to produce a double whammy effect? I don't know. ...

I've been gluten free for over two years. All my gastroinestinal symptoms resolve immediately after going gluten free, and return (along with DH) everytime I'm glutened. I know when I'm glutened and these reactions that I have to these foods are definitely not the same reactions that I get when I'm glutened. A reaction to gluten can take 3-14 days to...

It took me nearly 15 minutes to get off the floor to type this out. Everything I touch, eat, drink makes me sicker and sicker. I can go from feeling fine and energetic when I don't eat to literally crying in pain, unable to walk, collapsing on the floor because my muscles ache so much, everything feels massively inflammed, muscle weakness so bad that I...

I was never officially diagnosed with Sjogren's. The symptoms seem to come and go; before my diagnosis my mouth/eyes and such were extremely dry, but as of now when I'm typing this my eyes feel fine, my mouth has plenty of saliva in it (not as much as other people), enough to where I could drool/spit if I felt so inclined. However, the worst is in the...

I had very bad DH on my chest and back prior to diagnosis with celiac disease, but I've been on a gluten-free/CF diet for around a year and a half to two years now and the DH issues have not resolved themselves. It's nowhere as bad as it use to be prior to gluten-free and I notice things such as seafood, V8, and a couple others foods cause a flare up....

Chatycady, how long were you on the SCD before you started noticing an improvement in dryness? And did you follow the SCD to the letter, or were there additional foods that you left out and additional foods that you included? For instance, I know for a fact that I can't have any milk based probiotics or even the home made yoghurt as I reacted to it.

I have no problem eliminating grains, but on the SCD it asks you to eliminate all sugars which is much, much more difficult to do.

I'll be resuming SCD diet. I've noticed that I feel terribly fatigued after eating any type of grains, especially rice. I also wanted to add that I started taking a medication called LDN (low-dose Naltrexone) and I feel MUCH better. There's a ton of literature out there but it has been shown to help people with all forms of autoimmune diseases by adjusting...