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Hi Was she free of pain when she was on her first month off of gluten? Unfortunatley, my son (who is 12) still has constant abdominal pain, albeit less than it was...and he has been gluten free for 4.5 months...so, sorry to say, it can stay around. He also struggles with limited bowel function. The Glycolax that we took for 2 weeks, only produced 2 BM...

thanks for all of the suggestions. I think simplifying and reducing his diet is probably a really good way to go. He loves food, and finds the only joy in the day from food, so it is tough, but we will try. RICE GUY: If I may ask, "Do you use the magnesium for constipation or lack of "going"? I am just so interested in finding a way to help my...

Hi Rice Guy, My original post got cut off, and in that, I had mentioned that we did use the magnesium Natural Calm (something I learned about from this forum). After 2 weeks on that, our son got really bad acid reflux and his GI thought that the magnesium was acting as a muscle relaxant, and had the sphincter to the esophagus, wasn't working properly. ...

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Thanks for your reply Bunny. I forgot to mention that we did 2 weeks of probiotics early on, and he takes Fish Oil daily and has since October. But perhaps we should do them again. This is such a mystery. He can't tolerate lactose/casein yet, so we haven't done yogurt. I hope that his intestine heals in a way that allows him to have yogurt again. ...

Hey there My son was diagnosed with celiac in November after an extreme stomach flu. He has been gluten free for 4 months, and continues to have symptoms, and does not really feel better on the gluten-free diet. His last blood test showed that his blood titers were down, but not normal. Upon his initial diagnosis, his intestine was completly atrophied...

Hi all Thanks for all of the suggestions. our son is slowly, progressing in a positive way. We have softened his diet and we was all of the time. We are also working on healthy mind activities as way to distract him during this very difficult time. We notice that he is more mobile and happier more times in the day, but he still clutches a pillow and...

Our son has been gluten/soy/dairy free since Dec. 1. Unfortunately, he is not really progressing at all. His last blood work (Feb. 26), showed that his antibody titers were coming down, but he is still extremely disfunctional. He is in severe abdominal pain and has one to two bowel movements a week. He shuffles everywhere because it hurst so much to walk...

Hi All this salmon talk made me want to share a new dish I have created and seems to go over well. Macadamia/Coconut Crusted Salmon Ingredients: Macademia Nuts (1/2 cup whole) Dried Coconut Flakes Coconut Oil Salmon fillets Lemon Salt/Pepper Garlic (optional) Egg (optional) Take a handful of macadamia nuts and finely chop them Add to them...

thanks folks The suggestion to research the lab is a really good one and I have been researching them whilst hoping for replies. I also like the double allergy test. Good ideas. All food seems to bother him. Or his system is just in bothered mode. Having a starting place is what we need. What is the best way to start an elimination diet? ...

Hi eberbetty he was never diagnosed with gerd, nor did his endoscopy show any esophogeal ulcers. he did have ulceration down in his duodenum(SP?) i wonder if he could be developing an ulcer or gerd. he was tested for h pylori several months ago, but so much has been going on, things could have changed. thanks for the idea

this mood thing really fits my son. he is so grumpy, irritable, sad, crazed, and in discomfort due to stomach pain and constipation, that he screams all the time. he acts like he is loosing his mind, and it is hard for him to communicate. However, since he has been gluten free for 3 months, we do see changes that he is slooooowly getting better. He has...

hi my son has been experiencing intense burning in his throat the last two days. Could this be a sign of "glutening"? If so, has anyone experienced this and have ways to calm it down? He has never had any symptoms of upper gastric juices like this before, but he does continue to have intense intestinal pain, so perhaps he is producing more than we know...

In our case, a fiber rich diet was and is really important to help with the constipation too. However, many folks equate a fiber rich diet with raw fruits and vegetables, which are hard to digest, especially with a "raw" intestine. What we had to do for our son, was really cook all the fruit and vegetables, which allowed us to still get a decent fiber content...

After being gluten free for 3.5 months, our son is still so very blue and is having a hard time seeing the light at the end of the tunnel. He continues to have intense, sporadic cramping and just feels awful all day long. How many of you have had emotional problems? Did they get better as the gluten was removed and the intestine healed? We know his antibodies...