JennyC

Thanks guys, I planned on buying this cereal!

Most people say that you do not need to worry about paper products, but I figure as long as you're going to buy them you might as well buy them gluten free. Besides, to my son the paper rolls are occasionally used as telescopes and microphones! Here are gluten free products, according to the Clan Thompson software:

Paper Towels:

Viva

Bounty

Scott

Toilet Paper:

Charmin

Cottonelle

Facial Tissue:

Kleenex

Puffs

Napkins:

Vanity Fair

Zee

The link is actually the the GIG Portland OR blog page, but the U-Tube video is on the top. I'm too lazy/busy to track it down on the U-Tube site. There was nothing ground-breaking said, but it is nice that the disease was talked about on a mainstream TV show.

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Thank you for all of the replies. They do not use play dough, but I will bring up the art supplies and cross contamination issues in a team-like manner. I have been providing gluten free food so that he can eat similar things to the other kids rather than premade lunches. Maybe I will discuss that possibility with her.

Thanks again

I think that these crusts may be too thick to make them crunchy. I cook mine until the edges get brown and then I take them out of the oven and put on the sauce and toppings. Maybe if you put olive oil on the sheet and brush a little bit on the crust and broil it or cook it at a high temperature for a little bit before you put the sauce and topping on. It might turn out greasy and still be soft though.

Please let us know how it goes.

I'm not sure what to think. My son has been gluten free for over 2.5 months. Initially his diarrhea was gone along with all of his other celiac symptoms. For the last couple of weeks he has been having diarrhea on and off, been cranky, and yesterday he developed a mouth sore. I am over the top careful at home. I suspect that the yogurt that I have been giving him (with a Lactaid pill) may be giving him trouble. It's Yoplait yogurt with no gluten in the ingredients. Maybe it is too much lactose for him to handle. He has no other common food allergies. I will stop giving it to him, but it just does not seem to always be consistent with his symptoms.

The other issue may be at daycare. My son's childcare provider is fantastic! She goes out of her way for him by preparing food for him on her weekend, changing the frequency of some menu items for all the kids, and putting up with my bombarding her with gluten free foods, lists, toasters, baking sheets and so on. I do worry about her cross contaminating him. She says understands the concept and is careful, but when she is constantly cooking with gluten in her kitchen it seems likely that mishaps are certain to happen. She has 10 kids! I'm not sure if she washes his dishes with gluten dishes and I'm starting to wonder.

Does anyone have any advice on how to ask her these kinds of questions and give her more information on cross contamination in the nicest, most appreciative way possible? It is so hard because she is great and she tries so hard for him. I don't want to come off wrong, but this is really important.

Thanks!

Here's a Bob's Red Mill recipe that I plan to try soon.

Coconut Country Biscuits

contributed by Chelsea Lincoln

When you take a bite of these flaky biscuits, you won't be able to stop thinking of all the ways you can eat them!

Ingredients:

3/4 c. White Rice Flour

1/4 c. Organic Coconut Flour

2 Tbsp. Potato Starch

1 tsp. Sugar

1 Tbsp. Baking Powder

1/4 tsp. Sea Salt

1/4 c. Butter

1/2 c. Buttermilk

Preheat oven to 450

As you already said, you should continue to eat plenty of gluten. I would also ask/demand that your doctor take many samples during your biopsy. Celiac disease is known to be a patchy disease and the fewer samples your doctor takes, the greater the likelihood that he will miss the atrophied locations during the biopsy.

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Companies that will list any gluten and not hide it:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hershey, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Smucker, Stokely's, Sunny Delight, T Marzetti, Tyson, Unilever, Wishbone, Yoplait, Zatarain's.

Companies like ConAgra, General Mills, Unilever...etc are huge companies and own many, many brands...so make sure you always turn the product over, look on the label, and see if it is made by one of the above companies.

Are you sure that Con Agra will list their gluten? When I called about their Act II microwavable popcorn. They told me that it was gluten free, and then they proceeded to tell me how they list the top 8 allergens. When I asked them about barley, oats and rye I never got a solid response.

How about when the doctor tries to describe Celiac disease my comparing it to a reaction to poison oak! Totally insulted my intelligence. I never try to flaunt my degree but I had to in order to get him to stop talking to me like a child!

When they tell you that Celiac disease is not a spotty disease relative to intestinal biopsies. Every case he had ever seen had a positive biopsy. (Go figure. )

If the biopsy is negative then the highly positive blood tests were wrong--go home and order pizza.

I called Hidden Valley Ranch a couple of weeks ago and they gave me a list of gluten free products. They told me that their ORIGINAL ranch is gluten-free, but many of their variations like garlic are not.

There's nothing like Hidden Valley ranch!

If the product is from the US then caramel coloring is supposed to be made from corn. When in doubt call or email the company, they can give you the most accurate information about their products. Natural flavoring may have gluten in it, especially if it's in a meat product.

I looked it up on my Clan Thompson software and it said that it has stabilizers that may contain gluten so they have it listed as NOT gluten free. Yoplait is a General Mills company so they will list any gluten. Tillamook yogurt is also gluten free.

This site has a great list of gluten containing ingredients that people with Celiac disease should avoid. Malt flavoring is on that list because it is usually made from barley. Most mainstream cereals (including Rice Crispies) do have it. General Mills and Post brand cereals will clearly label their gluten. Post is a Kraft brand, and all Kraft and General Mills products will label their gluten. Once you start looking you will be amazed by how many foods are made by Kraft or General Mills. Some mainstream cereals that are currently gluten free are cocoa pebbles, fruity pebbles, berry pebbles, dora stars, trix, and neopet island berry crunch. Health valley makes corn and rice chex like cereal. Make sure that you read every label every time.

Many bouillon cubes may add gluten as a filler. If you have a specific kind at home, then you should call the manufacturer. In general, if the product is not made by Kraft, General Mills or a few other safe companies then I do not buy the product if it lists unnamed "modified food starch" or "natural flavoring." There are gluten free bouillon cubes that say they are gluten free on the box. I forgot the name but you can probably find them at any health food store.

Don't you just love Safeway! I wish that Fred Meyer/Kroger would do the same thing. My only question is that I got my own email list from Safeway a month ago and Cocoa Astro cereal (like Coco Puffs) was on my list, but I have not seen it on other people's lists. Hmm. I bought them for my 3.5 year old son who was so happy to have them, but now he won't touch them. Maybe I should just throw them away.

I hope your son continues to do well. Being free of oats should be a lot easier than being free of gluten! Please keep us updated on your son's progress. It is so nice to hear about kids getting better after watching my son go from sickness to being able to thrive and grow like crazy!

Considered entorlab, but they ONLY test IgA, and at the height of his sickness his IgA test was about as negative as you can get. So no real reason to think it would be any different now. The most objective test will come in a month or two my new insurance is in place and we can do IgG testing. Since we plan to keep him oat free, the IgG should be negative for gluten unless we some how are missing something.

I know you are all concerned that I am wrong, and I appreciate that. I really do, but look back over his test results that I mentioned. He did not have any typical celiac disease test responses, and everything is consistent with a non-celiac disease oat intolerance. As in regards to "reacting to small amounts", he has gotten small amounts in the past and not reacted.

If I were you, I would get the full allergy and celiac panel run on him after he has been on gluten for a while. I don't think that anyone is trying to second guess the parenting decisions you have made regarding you son, but as you know celiac disease is a tricky and complicated disease. As I mentioned before once you get the allergy tests done, you will not have to second guess about additional allergies and while you are at it you might as well do the celiac panel to confirm that he is not having an internal reaction. (EMA and tTG are the best indicators of celiac disease.) You would not be doing this out of self doubt, but instead to be absolutely sure that your son is as healthy as can be.

Best of luck.

To be on the safe side I would not eat it. People with celiac disease mount an immune response to this enzyme (when bound to gluten?) and this is what ends up causing intestinal damage.

What yogurt are you talking about?

Coppertone and Banana Boat SUNBLOCKS are gluten free. The tanning lotions may have gluten. I called Banana Boat yesterday and Coppertone was on the Clan Thompson software.

Hope this helps.

Wow. I'm glad you are finding answers for your son. I've never heard of an oat allergy before. A small part of me wonders if my son is really has celiac disease because he did not have a biopsy. He too had all the symptoms, but he had positive blood work (tTG) and a great response to the gluten-free diet. Did your son have his tTG or EMA checked initially? Based on what I understand, EMA and tTG are pretty specific for celiac disease. It is probably parental doubt/hopefulness working on my part. It may be a good idea to have your son's blood drawn for allergy testing. They can test for tons of allergies and then you know for sure and you won't have to worry about various challenge diets. When my son had his blood drawn they ran the celiac panel, food allergies, common environmental allergies, and season allergy tests all at once. I think that I will check to see if he was tested for an oat allergy.

Thank you for sharing your experience

Thank you for the replies. I'll make the cookies this weekend and give them a try.

1) Try to make a shopping list using my many incomplete lists of gluten free foods, trust-worthy brands or buy specialty food.

2) Read label & watch for terms like modified food starch, flavoring, ect.

3) Try to decode the manufacturer (and hope that it's Kraft ). Before I started looking for the brand names I did not realize that most of our mainstream foods come from a small handful of companies. Before I would have likely found it disturbing, but now I am thankful.

4) If it is not on the list, or if I'm still not sure if I trust them, I go home and try to contact them. This can be frustrating. For example, I must have had 10 windows open on my computer trying to find the contact phone number for Pepsi-Co this morning. It kept referring me to this cyber chick named Lisa. When I typed in a question about gluten free products, within 1.5 seconds I was transferred to a top 8 allergens FAQ page.

5) If this does not work to my liking, then I pose a question on the board.

*I also try to keep running lists of others' posts of gluten-free foods.

Ok, I'm still relatively new to the Celiac diet. When my son began this diet he could not have wheat, barley, rye, or oats. Then I read that it is not the actual oats that cause people with celiac disease problems, instead it is the nearly inevitable cross contamination. I have seen certified gluten free oats put out by a few companies. They have been grown in separate fields and processed in dedicated factories. I even bought some delicious frozen cookie dough with gluten-free oats in it but I have been too afraid to give it to my son.

Has anyone tried gluten-free oats?

Thanks.

In a book that I read there were some interesting cons about medical bracelets that made me think twice about it. If there is an actual life or death emergency do you want the EMT wasting precious time trying to figure out what gluten is and if the medications that they need to give your child to save his or her life contain gluten. Unless my child has an anaphylactic reaction, saving my child's life should be the top priority, not worrying about a possible "glutening."

Just a thought...

There is an Asian specialty store near my home that sells rice flour and tapioca starch for much cheaper than I can get at Bob's Red Mill. I am worried about cross-contamination since the flour is not made by a specialty company. Has anyone had any experiences with the flours at ethnic stores?

Thanks.