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Sussex County NJ is now celiac friendly! Little Anthony's Pizza in vernon NJ is now serving Still riding Pizza. We had it last night and it is great. The owner is super nice. He was driven to provide gluten-free pizza when he saw a young customer in tears b/c he couldn't have pizza. the facts: Vernon NJ -- Route 515 in A&P shopping center 97...

Ivy, good luck. Everyone has their opinions on the validity of 'diagnosis'. If it were me ( a 44 year old housewife and mom), havinfg a dx'd realtive, and simply improving on a gluten-free diet would be enough for me. however, as a college student...you probably have the right to request special meal details - either a fridge in your dorm, a transfer...

Thanks for all the stories and input everyone. We are moving, so it will be a few weeks before I can really test my son and see how he's running. However next Sunday we are doing a local celiac awareness walk. it's in Queens, NY. I may be able to tell a little from that. I also called a couple of nutritionists today. I am truly drowning here - I need professional...

It is sucha kick in the head when you go through a long list of ingredients on a product, and you're almost safe...nothing obvious on there......and then you see.......malt. augh!

~Well celiac and gluten sensitivity are sometimes confused. I guess you coudl say "celiac" is the end result or manifestation of gluten sensitivity (aka intolerance), I believe the clinical def of celiac refers to villous atrophy. Most of us here on this parent's forum hope to prevent the villous atrophy from happening by catching it early. ~Gluten and...

brenda, my boys are 6 and 8 now, but YES, we had basically all the same symptoms. My older - he was the most insomniac baby I ever saw. He came roaring into the world with raging , inconsolable colic and went 2 months without a nap unless he was being physcially carried. And I dont mean being pushed in a stroller, I mean carried, ON my body, until my...

Fiddle faddle, I got a smile out of reading how you solved your son's problem of needing to sleep on top of someone. Put 'em in with his brother! Brilliant! That's what siblings are for right? they must have been adorable together. What's your spacing? I plan on contributing to the OP, but definitely my son had to touch a person to sleep as well. I...

We have been a gluten-free household for about a week. ~~~Flashback: my younger son (6) - obvious GI symptoms which abate with gluten-free. Older son (8), apparantly asymptomatic except very low BMI and ++ on Enterolab. End flashback.~~~ Today my 8 year old said to me: " Gluten Free sucks, but it helps me feel better. ". My first thought was, he is...

Wow - that is a nice example of how gluten-free awareness has eveloved in the last few years. Let's keep it going everyone!! :-)

Natalie - I hope that you are on track to making life healthy and wonderful for your sweet daughter. I cannot say I have BTDT , I am new here too and struggling. If you click on my profile and read my recent posts you will see the rantings oops I mean words of a desperate, distraught , extremely overwhelmed person. I consider myself an extremely proactive...

Hi - I am saving this thread. I am also a veg . Not a celiac, but just as bad, I run a veg household with a husband (dx 1999) and 2 young children who have been veg up til now. I have gone gluten-free in solidarity with my kids, and we are all struggling. I am SO distraught about the whole thing. in fact there is some hope of trying to be able to get my...

Well, hmm. Another thing you could do is, try the gluten-free diet now while she is recovering. This is kind of a "live for the moment" sort of philosophy, to get her better first, then pinpoint exactly what was making her ill later. Maybe you could do a gluten challenge in the summer once she is feeling better. That might be OK timing since she won...

Hi - there are some other bars out there that are halfway decent that are gluten-free. I have not found any that taste as good as Luna or PowerBars. However, here is a partial list. of course YMMV and it goes without saying to always check labels yourSELF and not take anyone's word that a packaged product is gluten-free. LaraBars. Clif Nectar Bars...

Tulsa, Welcome. I am also new. I am not super eloquent about writing out feelings either but I'll try. Since she is asymptomatic (that you can tell now), why not approach it as an 'experiment". Something must be off or else you wouldn't be testing her for mono. Rather than a life sentence, why not just present it as an experiment, to see if she feels...

Please everyone, keep it coming! (I realize I am not the OP, but..) You have no idea how reading these repsonses can help a person stay motivated. Each time I see a person who has a similar situatino to mine, it gives me a bit more hope that we can do this. I think in general anyone who is hanging out on this pre-DX board is going to have a huge level...