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confusedks

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Everything posted by confusedks

  1. confusedks
    I weigh 114 and I'm 5'4.5" And yes I have lost a bit of weight since I saw you. I lost 9 lbs in a few weeks, not on purpose at all...and that is what freaked them all out. But if that happens again, I'll be way underweight.
  2. confusedks
    5 lbs is a lot on a 5'4" body. It will make it so none of my jeans fit...and that sucks. Today was a major push to get up to 1350 cals. I just can't eat much more. Plus, Dr B is working very closely with me on my food, and she wants me to eat certain amounts of protein at each meal. So once I eat the protein, veggie and starch she wants me to have,...
  3. confusedks
    Carla or anyone who has had Bart herxes...what are they like? What should I expect? I'm about to start Factive and I'm scared of the herx, lol! If it was anything like my first babs herx, I'm doomed!
  4. confusedks
    I'm annoyed...Both Dr H and Dr B said I need to gain 5 lbs. That my body right now is working too hard to keep weight up, and I won't get well. I really don't want to gain 5 lbs. My calories are around 1300 a day...at most. I really can't eat much more than that. It's just too much food and I get nauseous really easily. I guess I just needed to...
  5. confusedks
    I had an appt with Dr H today. We discussed what has happened over the past 5-6 weeks since I saw him last. He said it is possible that there is a GI problem/bleed causing the iron issue. He is open to having me tested, if the new Hematologist sees fit. He said that he doesn't want them to give me anymore Iron IV's or shots. He said that it would be...
  6. confusedks
    I'm not feeling so great today, and same yesterday. I'd say about 20%. I think it's the combo of everything...avoiding EMF's, changing my meds around and the NAET treatments. I don't know if part of why I'm not feeling so great the past couple days is because I over did it, or I just had a few good days. I really started to get excited about my life...
  7. confusedks
    That would be SO much fun! I was planning to go to China this summer, but got sick... One time I *will* visit!
  8. confusedks
    Mandarin was WAY easier than Spanish for me. I was able to memorize Mandarin characters faster than spanish anything, lol. I was fluent in Mandarin in only 6 months...could read, write and speak it. Now I don't remember almost any of it. Except I somehow remembered 1-10 today in bed, LOL! Re-learning Mandarin is on my list of things to do...soon. I...
  9. confusedks
    They write numbers differently than ours. I think they use the same addition signs, etc. but just different numbers...is that right Sherry?
  10. confusedks
    Yes I feel VERY hot! I too complain about the heat, etc. And I sweat...you can see it.
  11. confusedks
    I have another update. My hematologist called and my ferritin is at 20. He wants me to see this new Dr at UCLA still, and then just run everything by him to see what he thinks because he knows my case really well. Depending on how heavy my period is in the next couple weeks, the ferritin should last for about 1-2 months...then it goes down to 1-3. ...
  12. confusedks
    I've been taking questran on and off for a while. It doesn't constipate me at all...because lately I've had really bad D. But when I started the Alinia, constipation became a problem. I test well for the questran, so I've stayed on it. I'm supposed to take it 3x/day, but that's impossible to do...since it has to be taken so far away from stuff. On a...
  13. confusedks
    I'm not...except Questran. I don't know if that counts. My NAET lady tested me for chlorella and a few other toxin binders and my body didn't want any! I will ask her to test me for more stuff when I see her tomorrow.
  14. confusedks
    Rachel or anyone who has taken Alinia, Did you have stomach pain from it? And constipation? Dr. H had to have me go to half the dose because I was in so much pain...very strange for me.
  15. confusedks
    Another update... My hematologist doesn't know what to do with me, so he's sending me to UCLA. He is sending me to a really well known hematologist who he says is very well respected. I don't like the idea of going to another Dr, BUT we don't have much choice. I will get "critical" if my iron goes so low. We will get more results on Tuesday and...
  16. confusedks
    Hello everyone!!! I have been exhausted from the NAET treatments by Dr B. I have been sleeping 12-16 hours a day, PLUS naps! I guess I need the sleep. But on the days I'm not totally comatose, I have had more energy. I asked Dr B about heavy metals and she tested me and said that they are a huge problem, but there is no way I'm in any shape to...
  17. confusedks
    I can't wait to be telling you all about the fun stuff I will be doing...SOON! I went to the gyno today and of course my pain was gone! LOL! She said if I had gone in yesterday she would have given me a shot of a narcotic to help...since nothing was helping. Her concern is that my period won't stop. It is SO heavy, I am interested in seeing what...
  18. confusedks
    Just another update... I am having menstrual problems again. Since yesterday I have been in horrific pain from cramps. My period is also super heavy, which my gyno didn't want to happen because it's my first period post D&C, and the rate at which I'm bleeding is "bad." So I called her office today to ask for something stronger than vicodin (took...
  19. confusedks
    Just wanted to pop in... I don't know if Carla said anything, but I'm not supposed to be on the computer because electromagnetic fields. Dr B is testing me to see if it's a problem. Also not supposed to be on the cell phone. A lot of stuff happened at my appt and it went well. We did switch my mepron and zith to alinia and malarone. She said we...
  20. confusedks
    They're not, but they use separate facilities or something. I read on their site. I'm just going crazy not being able to eat interesting food.
  21. confusedks
    I think I might try McCann's and see what happens. I really like oatmeal, and its a great source of fiber.
  22. confusedks
    Does anyone here eat oatmeal? Is there a specific kind that is gluten free...like steel cut oats or something? What are your guys' thoughts? I'm running out of ideas for fattening breakfasts (I know oatmeal isn't, but I can make it fattening).
  23. confusedks
    The babs is pretty positively causing the iron problems. The bleeding doesn't really have much to do with the iron because I've had 6 month periods of time with no bleeding, and I still got iron deficient. Yea Lyme can hide itself. I talked to Dr H last night and he said basically that Lyme is a problem for me, and that just because the Lyme isn't showing...
  24. confusedks
    Did anyone hear about the 5.8 earthquake in Chino!? They felt it all the way in Las Vegas and San Diego! I'm not too far from the epicenter and OMG it was SO SCARY!!! I thought everything was about to start flying, LOL! Luckily there was no damage to my mom or I, but most buildings in downtown LA were evacuated. It was SO scary.
  25. confusedks
    I went today to see the Dr that Dr H wanted me to see for NAET treatments. I'm even more confused now than when I went in there! She basically muscle tested me for all the medications I'm on and apparently Mepron, Zithromax AND Rocephin aren't working. That is my entire Lyme/Babs treatment plan! She tested me for Malarone and my body "liked" it. So...
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