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confusedks

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Everything posted by confusedks

  1. confusedks
    My diet is already squeaky clean, so that won't and hasn't changed anything. I've tried EVERY herb including Vitex (??) and nothing has helped. I will be starting progesterone as soon as we get the proper tests done. I don't have any PMS symptoms, thankfully! My main concern is that my ovaries are FULL of cysts. The Dr said it was a good thing I got...
  2. confusedks
    She said that if I tried to get pregnant soon, it would never happen. We have to see if we can get all the cysts to "pop" so there is room in my ovaries for pregnancy. She kept using the words "severe" and "not good" and "bad case of PCOS." So I don't really know. She is "very" concerned about fertility. Through all of this health stuff, I have hung...
  3. confusedks
    Update on me: I had an "inner" pelvic ultrasound and guess what?! I am FULL of cysts. My ovaries are "textbook" for PCOS. The Dr didn't even ask me about Lyme, etc. and she was SO so sweet. She said that this is extrememly urgent. She is sending me for a full evaluation with an endocrinologist. We are trying to get an emergency appt. next week. Unfortunately...
  4. confusedks
    Thank you! I hope it's okay too. I REALLY hope Dr H calls back too! I've been taking my cell phone everywhere! Well the good thing (or bad thing, lol) is that my uncle is really good friends with her, and he asked her if she's "Lyme friendly" and she said "Oh yea, I know all about it." So, we'll see. I hope it works out for the...
  5. confusedks
    My mom is forcing me to go to my OB/GYN. I don't want to see a "normal" doctor. I'm afraid of getting harassed by her about Lyme. And, I can't really avoid it because I'm on SO many meds, including IV's, so she has to know. Ughhhhh. I wish Dr H would call me back so I wouldn't have to go see the gyno.
  6. confusedks
    They're going well. My skin is having a really hard time with the dressings though. The home health nurse got the kind for extremely sensitive skin, and my skin is still almost bleeding when we change it. No fun. So far all the labs have been coming back normal, except my hemoglobin is dropping about a point every other week. I think I've been losing...
  7. confusedks
    :lol:
  8. confusedks
    I'll send him a message in a little bit. Gotta go infuse first. I hope it will help. I know the feeling of being invincible. Also, he might be worried that he WILL herx... and he doesn't want you to be right. It's better for you to be right, and for him to take the abx and get better before he moves on in life and then suddenly has to stop his life.
  9. confusedks
    :lol:
  10. confusedks
    Ewwwwww! I'm glad there's none here! Sounds horrible!
  11. confusedks
    Me either.
  12. confusedks
    I get really faint a lot of times when they take blood from me. Most of the time I have to be fasting, so that makes it worse. If they're going to take more than 2 tubes of blood (I always ask) then I lay down. Also, if you tell them in advanced (like, when they're prepping you) that you get really weak, they will do everything in their power to let...
  13. confusedks
    At least he got a job...right?! I guess I would see if he gets a rash? I'd also definitely put a call into the PA. You might want to put him on abx for a few weeks just to see what happens. Did you save the tick? I don't know if you maybe would want to send it to Igenex to get tested?
  14. confusedks
    Yay! I'm glad you're going to try to get tested. But you do have to realize that even though your test may be negative, you can definitely still have Lyme. Me too! I think SO many people end up on this board thinking they have Celiac, and then go gluten free and don't get better (like me). But eventually find out about Lyme or heavy metals,...
  15. confusedks
    I just wanted to say...it really gets easier over time! I PROMISE!!!!! I used to be really bitter about all the stuff I couldn't have, but it's an investment I'm making in my body. All the people who are unaware of what they are eating, aren't doing their bodies any good. So, for today, I make good decisions about what I eat.
  16. confusedks
    Open Original Shared Link That is the link to buy the DVD. It is SO worth the money!
  17. confusedks
    I don't think you can view it online. You have to buy the DVD. I will post the link in a few minutes so anyone who wants to can purchase the DVD. I STRONGLY recommend it to everyone!!!!!! About the blood draws, yea I get that! I HATE blood draws. I got ENLA cream (something like that) for when they access my port and they use it for blood draws too...
  18. confusedks
    He should be able to download AIM (AOL Instant Mesesnger) on his computer and then he will be able to talk to you through his computer. If he wants to talk to you from HIS cell phone, then he would need to have the same type of thing you do with AIM, etc. on his phone. That has to be the same program as you have (AOL). I think that answers your...
  19. confusedks
    I have both...EBV and adrenal fatigue. They are secondary problems to my Lyme disease. My EBV numbers are so high the lab results come back saying "high"...with no numbers! I take Valtrex and Olive Leaf Extract for it. My Dr isn't too concerned about the EBV because like I said, they are secondary to my Lyme. Adrenal fatigue...I'm not taking anything...
  20. confusedks
    It might by why I can't sleep well Paula. But I haven't actually changed my sleep meds very often. In 7 months I've tried 4 things. About the Turkey Bacon, it could be nitrates that you reacted to. Was it organic? We always used to buy Trader Joe's nitrate free turkey bacon...it's one of the few things I can usually tolerate no matter what. Everyone...
  21. confusedks
    It didn't work again last night. I'm going to definitely call Dr H back and ask for something else or something in addition to. Ditto to all of that! Adam is SO funny! Everyone, I think the Rocephin is starting to kick in. I'm extremely exhausted (after sleeping a whole night) and in a lot of pain. Just everywhere body pain...
  22. confusedks
    Lately I haven't been getting out much...been in bed herxing. I haven't tried it before. Dr H suggested something called HerbSom for sleep, but he wants me to take 5 caps at bedtime and one bottle (which is $30) only has 30 caps. So it would be SO expensive. I will look into Calorad. Haven't heard of it before. The thing is Dr H's PA keeps...
  23. confusedks
    I've had 2 of them for other reasons than your NP is suggesting. I'm doing it for detox because I'm on a lot of strong medications for Lyme Disease. It is NOT fun, lol. It's not the worst thing I've ever done, but I also have a really sensitive GI tract. If you tend to be constipated, it's probably a great idea. But I have D a lot, so it isn't as much of...
  24. confusedks
    I don't think that's the case. When I was in school, I was always able to sleep here at home without problems. When I have sleep problems, it usually doesn't matter *where* I am. They follow me.
  25. confusedks
    Yup, that's it! Thank you SO much!
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