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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    One more thing...just a little venting. I am on the sulfur free diet, very strictly and as Rachel knows...there isn't a lot to eat! My stomach hurts more than ever! I wonder if it's because the diet is so boring, I find myself not eating in order to avoid trying to figure out what to eat. So if I'm hungry all the time, that might be why my tummy is...
  2. confusedks
    It is really hot here too! It was 90 today, and it's 12.30 AM and its still 75 degrees! It's going to be 101 tomorrow. I know her from a Lyme Warriors group through the Yahoo (if that becomes Lame Advertisement...it's y/a/h/o/o) groups. We talk on the phone quite a bit, and it really helps to know she understands. I haven't met her yet...but...
  3. confusedks
    Sheesh...gas is CHEAP if you can find it for $4.00 here! It's crazy! About the public transport thing...I can't do it physically. It's around 90-105 degrees on an average summer day here, plus it would waste all my energy (health problems). Not to mention, it's not very safe. I have thought about that...but it's just not possible for me right...
  4. confusedks
    It actually is fine now! I don't know what it was, but it sure was painful. I haven't been going for the past week or two. Last week I couldn't get out of bed, and earlier this week my tutor canceled. I still can't really get out of bed, but I have to go today. I'm a month behind the date I scheduled. It's really hard to force myself...
  5. confusedks
    Candice, I live in Southern CA... in LA to be exact. I have a Lyme friend who is 18 who lives in Northern CA. She's really sweet. You guys might live close to each other. Carla, I liked saying HI to Sadie! She's so cute! I didn't get her text until way after she sent it. I was in bed, my phone was downstairs. Everyone, Is it possible...
  6. confusedks
    Donna, About the B12, mine was the highest it could be according to my lab work. I freaked out and called my LLMD's office...he said unless I felt "zippy" that I should continue the shots. It's up to you...but I just thought I'd let you know what he said. Good luck with the Tindamax. I have been on flagyl for over a week now, and it's not as bad as...
  7. confusedks
    Candice, You live in CA? So do I! Do you live in Northern CA or Southern CA?
  8. confusedks
    Personally, I believe that there is usually something *causing* multiple food intolerances. So, I would try to find out what is causing them all, then treating that issue.
  9. confusedks
    Enterolab CANNOT diagnose Celiac Disease. They can tell you if you're gluten intolerant, but they cannot tell you if you have villi damage/Celiac. If you're still on gluten, I'd suggest that you have the blood panel done and/or a biopsy.
  10. confusedks
    Yea, breathing is hard. Apparently it's air hunger though. I asked my LLMD about asthma and he said that it probably isn't asthma, it's probably bad air hunger because we lowered the dose of my mepron. You can definitely herx after a couple days. Some people it takes longer, but some people it takes only a couple days. When I started flagyl last week...
  11. confusedks
    Good for you! Random question: anyone have a hard time swallowing? It's like my throat doesn't like food. It is like there is a lump in my throat...strange.
  12. confusedks
    LOL! I literally had to get out of bed, throw on some clothes, and then get in the car and go to my appt. I haven't slept through my alarm in a LONG time, LOL! I used to do it almost every day when I was in school...but so did some of my friends.
  13. confusedks
    Does anyone sleep past their alarm a lot? I almost totally missed an appt I have today because I was fast asleep! I don't know what woke me up, but it wasn't my alarm! My alarm is my iPod hooked up to an iHome so it blasts music when I set it...I slept through 50 minutes of that! :o I swear, it's a Lyme symptom! LOL! :lol:
  14. confusedks
    I have a Lyme friend whose throat closes up when she is around ANY chemicals! She can't go out anywhere unless it's totally outside, so there is some wind so that she can get away from the smell. Also, my Lyme support group, they say to not wear any hair products, perfume, etc. because of people with MCS.
  15. confusedks
    Happy Mother's Day to all the Mommy's!
  16. confusedks
    That's so strange! My computer keeps randomly crashing, and I am worried I'm going to have to get a new computer soon. I was hoping this laptop would last until I went to college. Oh...I got cable in my room, and TIVO! Wahoooooooo! Now there is no need to get out of bed!
  17. confusedks
    Why should it be away from Nystatin? I'm asking because I've never heard that before. Nystatin kills yeast, it's not like probiotics that need to be taken 2 hours away from abx because they will be pointless otherwise. I might be wrong...but I've never heard that before. Are you eventually going to take the Biaxin 3x/day? If you are...try to space it...
  18. confusedks
    :lol:
  19. confusedks
    Carla, I have read about that before. I tried it for sugar cravings, but it didn't really do anything. That's not to say it doesn't work, but I never experienced any benefits from it. Just like Rachel said about acupuncture...I never noticed any difference from it, but I know a lot of people do.
  20. confusedks
    I have to say...yes! I get nauseous just thinking about pizza! LOL! My whole life I've never liked pizza because from such a young age, I had terrible symptoms after eating it. When I would have pool parties for my bday, I would have steak and chicken and caesar salads. My friends loved it!
  21. confusedks
    I'm here too...just waiting for the custom kits to be ready.
  22. confusedks
    I can so relate to extremely painful bloating. My stomach gets so bloated, it literally adds up to 6 inches to my tummy...I look pregnant! It is very painful. I almost want to go into my Dr's office, and look really bloated, because he'll think I'm pregnant!
  23. confusedks
    Oh, lol. I guess we must have been missing each other. Last night I was out to dinner with my mom for her b-day. And I don't know where I've been the past few nights. Can't remember. I TOTALLY forgot Grey's was on tonight...
  24. confusedks
    Carla...we miss you in Lyme chat!!! Where have you been?
  25. confusedks
    I just got a call from Dr H to see how I'm doing! I'm so shocked! LOL! He wanted to see how the IV therapy is going...but nothing is happening until June 2nd.
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