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confusedks

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Everything posted by confusedks

  1. confusedks
    Donna, I tested positive for parasites too...but Dr H won't treat me! LOL! He said it would be too much for my body to handle. And with all this IV stuff, I'm not pushing. Katy, Carla said it well about Flagyl. I wouldn't ever take half of the drugs I am taking for Lyme if I didn't have Lyme. I hadn't been on abx since I was 3...so 14 years without...
  2. confusedks
    Yup...that's what I keep reminding myself! LOL! I called Dr H yesterday, and he talked to me about my concerns and said that there won't be any problems.
  3. confusedks
    I've never had a paps. So, I have nothing to compare it to.
  4. confusedks
    I sure hope so! Dr H was VERY vague about it...I assumed it was just a regular pelvic ultrasound. I've had that before, but never a transvaginal! LOL! The tests are getting to be more and more interesting (read: INVASIVE!!!) as the days go by!
  5. confusedks
    I would be fine with trying anything. Unfortunately my periods have been so wacky...I would love it if it was 50-75 days in between, LOL! I've only had my period once since the beginning of the year. My main concern is that I will have fertility problems later. If left PCOS goes untreated, it becomes a real problem to try and get pregnant because the ovaries...
  6. confusedks
    Okay, since we talk about anything on here... anyone had a transvaginal ultrasound? :ph34r: If you have, can you PM me your experience? Ugh, such NOT a fun topic, LOL! So, that whole PCOS thing that my Dr thinks I have, it's really interesting. I've had just a pelvic ultrasound before, and it came back with "abnormal findings" that basically said...
  7. confusedks
    I don't think it contains sulfa. I could be wrong, but before Dr H wrote my rx for it, he asked me if I was allergic to any meds and I told him I couldn't remember, so he looked on the front of my chart. I am allergic to sulfa drugs...well, last time I had any I was about 3, lol. But I did break out in hives within about 1 hour or so of taking them, so I...
  8. confusedks
    Yea...that happened today. I was looking at a car who was pulling out of a parking spot on Sunset Blvd, and they almost hit me, but I was just like "silly car." I didn't freak at all...and it was CLOSE! It's really scary to be like this. Tom, I LOVE that...3rd person. That's so perfect! It's been all day almost every day for a week or so now. It's...
  9. confusedks
    I'm so glad someone brought started this thread! I have been having issues with this for along time, but I've always been too embarrassed to say something to my Dr.
  10. confusedks
    Glad to know I'm not alone! LOL! I was sitting in horrible traffic and I was like "Hmm, look, there's lots of cars." Usually I get really annoyed at traffic, but I just kinda looked and thought "oh well!" Also, there was a sudden death in my family. So I will be going to a funeral soon, but not to play the flute. Same think about watching myself feel...
  11. confusedks
    Has anyone here taken Flagyl? Or Diflucan? I've only taken 2 doses, last night and this morning and WOW!!! LOL! I'm already herxing hard. I went to my uncles house for an hour and had to leave because I was getting so dizzy, headachey, etc. Anyone get that feeling where you're not in your own body? Like, I'm watching me drive, walk, etc. but I...
  12. confusedks
    Thank you. I'm only strong for other people! LOL! I understand the isolation thing, all too well, unfortunately. I am actively working on talking to some supportive people about things, instead of going through things on my own. For example, I was talking to someone about my port surgery, and I don't know her well and she offered to help me in any way she...
  13. confusedks
    Yes, exactly what I was trying to say. You just said it better! Just to know that there are people out there who care about you is very helpful. Again, if you want to PM me, feel free to do so. Also, do you have other Lyme teen friends? I talk to a friend who lives fairly close to me, we talk on the phone at least once a week. It's great to talk to someone...
  14. confusedks
    LittleMiss, In response to your question about coping...basically some days are better than others. I really am trying to focus on getting better emotionally and physically, but more emotionally since that is something I can directly control. I do really miss so many things about being a "normal" teen, but I have had to just let a lot go. I want...
  15. confusedks
    Right now I'm just soy, gluten and sugar free. So I eat almost anything else, except I also react to everything I eat. So, I'm not really a good person to ask, LOL! I have been eating a lot of cheese as protein, which I know is bad. My mom's bday is on Wednesday, she begged me to go sulfur free after we go out to dinner on Wed night, so I can actually...
  16. confusedks
    Rachel, Did you know that epsom salt baths are not allowed on the sulfur free diet? It says that on the papers Dr H gave me, and a friend of mine sees Dr Amy, and she also said no. Interesting, huh?
  17. confusedks
    Update: Due to insurance issues, I have to wait to have my port placed after June 1st. I guess that's a good thing because I'm going to Las Vegas the weekend of the 1st, and I won't have to worry about only having done IV's for 2 weeks, and having to travel and infuse, etc. I decided I'm going to get a port-a-cath...NOT a Hickman/Groshong catheter....
  18. confusedks
    It's funny, I used to use B&P the enzyme, and it never made me feel any better...actually made me feel worse. But, chlorella tested REALLY well for me... so did all of my probiotics. I will leave those in my supplement regimen for now, and if I need to later, I will change them around. And, thanks for the list. It looks like I'll be eating lots...
  19. confusedks
    Rachel, Yea, I agree with everything you said about genetics, etc. My mom and I are going to sit down tomorrow and figure out where exactly we are going to spend money (IV, home health care, genetic testing, food testing, etc.) If I do have this test done, I will definitely email you the results though, if you're interested. And if you could re-post...
  20. confusedks
    I sent out my email update. If anyone didn't get it, let me know. I'm more than happy to send it to you, but PM me with your email address.
  21. confusedks
    I had my appt with Dr H... it went really well! He's changing lots of meds, etc. He decided that instead of dancing around with the slow progress (like, VERY slow) we are going to start IV. He said I will need it anyway, so we might as well just get going. I will be working out all the details of getting a Port, etc. I will type up an update soon and...
  22. confusedks
    That sucks! I didn't fall asleep until 2.30 AM and had to wake up at 8.00. I tried to go to bed around 11, but I had horrible chest pain and palpitations, it was really scary. So someone on lymechat was asking me all these questions, and suggested I go to the ER. Well, I hate the ER! So I didn't go, and I'm sure I was fine. I think it might have been a...
  23. confusedks
    Ok, I am going to post a list of questions I'm going to ask Dr H tomorrow...I'm really spaced out today, so can anyone think of anything I don't have on here? -IgG Subclasses -Detox HLA Gene -Something non-addictive for sleep/anxiety/depression -Detoxigenomic Profile, done at Genova Diagnositcs -Asthma or air hunger -anemia results -if unable to...
  24. confusedks
    Oh my goodness...no wonder I've been feeling so awful! Aunt Flo is here!!!
  25. confusedks
    That's so funny you posted this. My acupuncturist wants me to do their cleanse thing in the morning and a smoothie afterwards. I don't know how your health is, but I'd be worried about doing the whole 9 day cleanse/fasting thing. Just my opinion.
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