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mftnchn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mftnchn

  1. mftnchn
    Martha, I think you have to make your own call on the meds. From what I have read, it seems that some people on SCD ARE sensitive to the slightest amount. Generally, the advice I have seen is that try to get something free of starches if possible. If not, and you really need the medication, go ahead and use it. What I did was do this in stages, first...
  2. mftnchn
    I'm excited for you that it seems you are making clear progress! Congrats! My sense is that your flare was the 1 month one that is common for many. And you will likely have more of these. My suggestion would be that when you flare, go back to intro again, just for a day or two. (Reduce any strain on your gut.) Elaine never did figure out exactly...
  3. mftnchn
    People might be interested in this link if there are questions about whether an item contains any starch: Open Original Shared Link
  4. mftnchn
    Janie, I also noticed this. Actually some happened after going gluten-free but another more dramatic shift with SCD. I think your ideas about the inflammation are valid. My MD explained about the inflammation but it was too complex for me to grasp and remember. My overall impression is that its not so much a direct cause and effect, (i.e. the sugars...
  5. mftnchn
    Jan, this is a good question. For me the answer seems to be that it is both part of the illness and part of the healing. Teasing out the differences can be challenging. Keeping a detailed journal can help. For example, recently I noticed symptoms 4-5 days after taking a med that I only take 2 days every 2 weeks. My MD said, yes, it could be related...
  6. mftnchn
    Yes, totally. I chafe at it at times. Especially since there is an ebb and flow. It would be a lot easier if it was a stable level of energy every day, even if limited. It is harder when it changes all the time.
  7. mftnchn
    I'm on tons of treatments and supplements (prescribed by my MD). Lots of malabsorption problems and also infections. I wouldn't dare try this treatment on my own.
  8. mftnchn
    I think it is important to recognize that there are many other causes of the symptoms associated with candida. Candida is only one of the organisms likely out of balance due to gut damage. Parasites can be present causing similar symptoms. Food sensitivities are secondary to gut damage, not necessarily candida. Heavy metal toxicity can also cause the...
  9. mftnchn
    Yes, my guess is that enzymes might help. My doctor prescribed prescription enzymes for me, a pretty high dose. Carb enzymes (supplements) didn't help much. I can't help with over the counter enzymes, I haven't tried that. Others have though and may have suggestions for you. Probiotics: Kirkman acidophilus. Lucy' kitchen has something as well,...
  10. mftnchn
    Martha, I got worse before I got better. It was the shifts that let me know I was on the right track. I'd hang in there for awhile if I were you. Give it at least a month before you decide it isn't working. And you could have a lot of healing crisis happening off and on for months. Notice any subtle changes. It sounds to me that you aren't tolerating...
  11. mftnchn
    Bee-Jr...I wonder if you have some adrenal insufficiency going on? Puffer...SCD safe probiotics can be ordered online from several sites, it is pretty hard to find SCD compliant ones in stores. Most contain FOS and Inulin, plus not the strains recommended. For a plain acidophilus, I recommend Kirkman Labs. I totally agree, not to jump into the parasite...
  12. mftnchn
    Mia, what a terribly short-sighted mental health professional. Unfortunately these are like doctors. A few are wholistic, many are narrowly focused. In the U.S., the profession is generally moving toward a more wholistic approach. Even then, people aren't trained in the physical side of things. So unless they have personal experience, or know someone...
  13. mftnchn
    I'll add to the good summary above that because celiac damages the villi in the small intestine, it impacts the ability to produce carb digestive enzymes. The undigested carbs feed bad bacteria, and all of this keeps the damage going. The diet removes the carbs that are not being digested, and then the other goal is to use easy to digest foods to allow...
  14. mftnchn
    No, not the same experience. I don't test high for candida in spite of long term antibiotic therapy, so haven't restricted honey hugely. But what I am understanding is that the monosaccharride is absorbed high up in the small intestine. So would think you shouldn't have so much trouble with it impacting candida, although that is just my thoughts. I think...
  15. mftnchn
    I agree, Martha. The intro is kind of a place to start; a day or two, up to 5, just gives a jump start on the cleansing process. Its also a place to start if you are having symptoms as it eliminates a lot of hard to digest things. You'll want to tweak it to find at least a small group of foods "safe" for you. Then when you get symptomatic during the...
  16. mftnchn
    Pele, LOL. Yes, Ivermectin is commonly used to deworm animals. Its really rather amazing that Americans regularly do this for their animals but don't believe humans need to. Chicken/carrot soup, yum!!! I add fresh ginger when I cook it, puree it all, and when I eat it add more flavoring like cinnamon, salt, honey, or curry, fruit, salt and honey...
  17. mftnchn
    You may find that after the yogurt is in the fridge it will separate a bit and you can pour more liquid off the top. I just stir it in and use it that way. It's drinkable, so I put it in a cup and add honey. Acidophilus alone as a starter is much less tart in my experience, but I agree, it tastes better with sweetener. Kirkman has a number of SCD...
  18. mftnchn
    Hi Pele, I was in the USA for almost 3 months but am back in Asia again. I was absent for awhile for a number of reasons, mostly just too busy to be online much. I've been doing quite a bit of testing and adjusting of my regimen. I managed to get most of my many supplements and meds SCD compliant. Currently am treating strongyloides, (two days of Ivermectin...
  19. mftnchn
    Janie, I hear you. Many people have a similar experience. I am very lucky to have a wonderful doctor so I haven't been on my own with this. One of my symptoms for celiac was weight gain--it became very apparent after going gluten-free. It is inflammatory and also apparently a starvation mode due to the malabsorption going on. In my opinion there is...
  20. mftnchn
    Hi Janie, Yes, it is very typical to have some cleansing going on. The initial huge shifts lasted about a week for me, but cleansing continued for awhile. Longer term SCDers say it can happen on and off for the first year even. Healing of the intestine is slow for adults, 1-2 years. You can just use a safe probiotic for starter. The Kirkman...
  21. mftnchn
    Good for you for trying the ecoffee!! Actually, I find it helps with colds, reduces symptoms, shortens the cold. Sorry about the staph and hoping you do get some treatment for thyroid. That is so common for celiacs anyway. I'm still having the immune response--sure hope it means the strongyloides is being wiped out! Its like having jet lag all the...
  22. mftnchn
    Rinne I totally agree about listening to your own body. I find it very confusing though at times because there is so much going on with me. I think that is why having a basic guideline for starting point, like the SCD intro, and pecanbread.com stages has helped me. But beyond that I have definitely tweaked it over time to find my most safe foods. ...
  23. mftnchn
    Thanks, its nice to be welcomed! Its a little nerve-wracking for anyone to do ecoffee, but it rapidly became easy and second nature for me. I found the best bag is a "fountain" enema bag that has a larger opening in the top that stays open and you can just pour into it. Makes it also very easy to clean the bag. I also found that there is a green coffee...
  24. mftnchn
    I'm not really sure either what might help. I boil ginger root slices in water, and you can add honey to taste (as it is kind of "hot" tasting), and then sip it. It is very helpful for nausea for me. On another SCD forum, one person said that when getting very symptomatic, she eats only meat and broth for 1-2 days and it seems to be very healing for...
  25. mftnchn
    Hi Jan, My doctor said that it shouldn't be too hard to treat, although from what I read it can need several repeats. Basically, you treat, then retest, the re-treat, etc. From what I read, it can be eliminated as long as you treat the number of times needed to get at all the life cycles. And stop being re-exposed. Also my doctor is treating my...
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