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gluless

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  1. gluless

    gluless...I saw in your profile you also have uveitis..hope that is going well. Our oldest D has that, any tips to keep it from recurring? I am back on the forum as EvieLS..formerly evie...hope to hear from you

  2. gluless

    Are you still active here, Robbin?

  3. gluless
  4. gluless
    Ok....here I sit with ten minutes to spare, so I decide to check in on my old friends here....o.m.g. this thread....Frenchmen's balls...Pleeting windows of opportunity...Dingo ...Mtndoggie...Patti...and even Judy..I am pshocked, yes pshocked and full of apallousness at the way you all have become so ....so......sigh...words fail me. Dingo--your behavior...
  5. gluless
    THANK YOU GUYS!!!! It was a great day. I am 39 again this year, lol. Big hugs going out to you all!!! gluess/Robbin
  6. gluless
    I think the urine test is one of those that you save for a week in a jug, remember how fun the last one was for you? LOL. I am one who is eagerly awaiting FDA approval for the o. formigenes. The longer I am on the LOD, the clearer it becomes to me that this is a very serious issue for me. If I even have a teeny bit of bell pepper, sweet pepper, or...
  7. gluless
    Wow, Donna, you have been through the ringer! I hope the low oxalate diet is the final piece of the puzzle for you. (It is me, Robbin, btw, lol) For anyone with any questions related to starting the low oxalate diet, this is a great link to help you -- Open Original Shared Link I hope this helps!! xoxox
  8. gluless
    Judy-I still am convinced the urination is part of the oxalate problem. When I have the dumping episodes, I have to urinate constantly. I drink the same -at least 8 glasses of water-but go so much more frequently. I do notice a cyclic pattern to the dumping too, Patti. catesfolly--Omg, I know EXACTLY what you mean about developing a tolerance to pain...
  9. gluless
    Yes!! I forgot to mention the skin thing! I had horrible hard calluses on my heels that are now softer and my skin is so much better and softer too! Another thing that I didn't mention on here is that my sense of touch in my fingertips is so much more sensitive too! Interesting.
  10. gluless
    Rachel, I am so impressed by how far you have come. How much of the lingering illnesses do you think is healing and how much do you think is something maybe still to be discovered? Do you take marine algae for the metals? I forget if you mentioned what you take for the chelating of them. If you don't see significant change, perhaps ask your doctor about...
  11. gluless
    I was just reading about biotin and wondering if I am getting enough! I am a little behind on what has been covered, but it is extremely important to get enough potassium and B vitamins while you are on the low oxalate diet. I have been very interested in a product/supplement called Ip6 with inositol. It is derived from rice bran, but from what I have been...
  12. gluless
    Hi Everyone! Yep, the nightshades are a problem for some in regard to other chemical properties they have, but they are high oxalates too, so if you cut them out and still have problems with other oxalate foods, then you can probably say with a degree of certainty that it is oxalates giving you the "business". I think I may be in a "dumping mode" tonight...
  13. gluless
    Hi Everyone! I have to agree on the problems with the yahoo site--the most I do on that site is sort through the information and find out what I can about the whole process and hope to learn more about the availability of the o.formigenes-(Looks like it will be a long wait on that one... RACHEL!! SO HAPPY TO "SEE" YOU!! Catesfolly--I don't remember...
  14. gluless
    This brings up a good point--how many of us women have had a hysterectomy due to endometriosis or fibroid tumors? I wonder what role oxalates play in the formation of the abnormal tissue?? The problem with the tissue cultures that are normally studied after biopsies is that a normal biopsy is not done under a polarized light (from what I understand about...
  15. gluless
    I forgot to add this--drink lots of water if you are going low oxalate-this is very important! Eight to ten glasses a day. The excess oxalates are shed in urine, through skin, eyes, & bowels. One thing I would advise based on my own experience is to try to get as much of your nutrients from food as possible. I eat two bananas every day to keep potassium...
  16. gluless
    THANK YOU JERSEYANGEL!!! This is a topic I have been researching for a few months and put myself on the low oxalate diet after doing an "experiment" with an oxalate overload and feeling like death afterwards. I have had fibromyalgia for a long, long time as well as celiac/gluten intolerance and I just wasn't getting relief with the pain and intermittent...
  17. gluless
    Hi--I was where you are not too long ago and had to pull myself together and attack this whole thing like I was fighting a battle--and it is a war, I know. Start from the beginning, keep a food journal and go to basics like white rice, bananas, plain meats. As you add new foods, wait a few days, record your symptoms, and you will find what is giving you...
  18. gluless
    Hi --I am the one doing "amazingly" well on the diet that JudyL mentioned. Gluten containing foods such as barley, whole grains, and nightshade foods are all high oxalate foods (soy included) when I cut out gluten foods, I got some better, but when I cut out high oxalate foods, the results have been AMAZING. Fibromyalgia has finally been leaving me-- with...
  19. gluless
    I read that first link when I stumbled on this by accident, BUT the second one with the reference to "orphan diseases" made me take notice. There is a doctor at Cleveland Clinic who specializes in "orphan diseases" ---I forget his name--starts with a W, I think. I am wondering if maybe your next course of action would be to try to get to see him. Ask your...
  20. gluless
    Hi everyone!! Dingo, I SEE YOU YA NUT, LOL. You called me a lunatic, I am hurt, lol. Well, since there is no way on earth I can possibly get caught up with this TOME, I will just skim and see what is going on with you all!! I guess it is Lyme. I had tests and was negative, not sure what tests, I think Western Blot. I am doing pretty good though. Just the...
  21. gluless
    I want to recommend a great new cookbook called, Mission in the Kitchen by Laurie Sadowski. Laurie is a highly accomplished cook and nutritionist who has celiac herself as well as casein intolerance and her recipes are absolutely delicious. This book is very comprehensive with a primer on living with celiac disease and casein intolerance, as well as an emphasis...
  22. gluless
    HAPPY MOTHER'S DAY TO EVERYONE!!! (IT'S ME ROBBIN!) OMG, I can't believe this thread is still going on!! A tribute to sisterhood!! Bev, your mother's day wish is almost exactly what I wrote in DS!! No, I didn't steal it!!! I swear!!! GMTA!! Have a wonderful day everyone and I hope you are all having glorious sunshine today!
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