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ROYAL BLUE

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Everything posted by ROYAL BLUE

  1. ROYAL BLUE
    Well we spent the last month at childrens hospital. It turned out to be Cystic Fibrosis, not Celiac disease. Not to scare anyone, but, if your symptoms are not greatly improving on the gluten-free diet, maybe look in to CF. According to the CF doctors the symptoms are almost identical. CF is not just a lung disease, it also greatly affects the digestive...
  2. ROYAL BLUE
    I would like to know if anyone has had a bacteria(normally found in the lungs )show up in the doudenum. If you have, please let me know what your Dr. did about it, where did it come from etc. They found this, quote, "strange bacteria in his duodenum that is typically found in the lungs." We did a test yesterday for Cystic Fibrosis and waiting for...
  3. ROYAL BLUE
    Hi fraggle, A little of topic here but where in Summerland is this restaurant? We moved north from Penticton a few years back and do not remember hearing that name. We come back south to visit family quite often and my son would love fish and chips. Tracy
  4. ROYAL BLUE
    Thanx for all of your replies. kirst4588, you ask if he had a biobsy before. We went through the motions but due to an asthma attack under anesthetia, they had to abort the procedure before getting any samples. Tracy
  5. ROYAL BLUE
    My son has not improved enough on the gluten-free diet and his ttg levels are extremely high after 9 months. His Dr. did his biopsy again and took other samples. Today they told me he has a bacteria in his duodenum " we are trying to make heads or tales of this, we will call you when we know more" Has anyone else had this, if so what is it and how is it...
  6. ROYAL BLUE
    Well, my son was diagnosed with Hypothyroid at 3 months of age. They did not think it was hypothyroid because when you are Hypo, your over weight. The reason for this, explained by his Endocrinologist is, his Pituitary gland was working overtime to compensate for the lack of his Thyroid Gland. His thyroid levels were normal but the pituitary levels were...
  7. ROYAL BLUE
    Does anyone know of any other conditions that can give you a high Tissue Transglutaminase# ? My son has been gluten-free for about 7 months and his numbers have gone up, not down. We have exhausted all other possibilities. He is going for another biopsy next month.
  8. ROYAL BLUE
    Oops, sorry. When I said flour I meant Rice flour, tapioca flour, garfava flour etc. As for switching brands, it is the only health food store in my part of the province and I drive 2 hours to get thier. The health food store told me it was appropriate for celiacs. She better not be wrong because I can only imagine how many other people are...
  9. ROYAL BLUE
    Is their anyone here that buys flours from Westpoint in Vancouver BC Canada? It is a whole sale company that distributes it the health food stores. If you do, can you give me your opinion on any reactions to the flour? The reason I am asking is I wonder if it is contaminted. Since my son has been gluten-free, his Tissue Transglutaminase numbers have...
  10. ROYAL BLUE
    It actually was the GI nurse that gave me the blood test results when I phoned. She said she would check with the Dr. and get him to call me. She also said I should also look at his symptom not just the numbers. I have not taken him off dairy, I thought he was taking it fine ( how would I know otherwise)? His bowel movements are normal almost always...
  11. ROYAL BLUE
    I just spoke to my sons GI doctor today and now feel sick to my stomach. Last summer my son was tested for celiac, his Tissue Transglutaminase was over 100. He has now been gluten-free for about six months. We re- tested to see if his numbers had dropped, so I know if he truly is gluten-free. Here is the kicker, his numbers now are over...
  12. ROYAL BLUE
    My son is almost 7 years old, he has no signs of loosing his baby teeth. Do Celiac children loose these teeth later than most others? Also, his baby teeth appear smaller than other children his age but otherwise look healthy. Is their any way to tell if his adult teeth will be healthy? I've seen some photos of Celiac childrens teeth and this has me scared...
  13. ROYAL BLUE
    I called them in December, they told me" they were gluten-free and produced on a gluten-free line, BUT, in the new year this may change" You might want to call on this again. In my store, I have noticed new labels on thier spice jars, so maybe it has changed. Keep in mind I am from Canada and do not know if what they told me applies to U.S. Tracy
  14. ROYAL BLUE
    British Columbia, Canada
  15. ROYAL BLUE
    Does anyone know of any gluten-free sunscreen brands? Specifically in Canada, but even U.S. to get me started. Thanx Tracy
  16. ROYAL BLUE
    Does anyone have a good Cup Cake recipe? I have only made some once before but they were so sticky and oily. My son has his first birthday party to go to since being gluten-free and I need something to send with him. Thanx for any help Tracy
  17. ROYAL BLUE
    I have checked all of the soaps and lotions in our house and they are said to be gluten-free. I usually use Lubriderm after he has a bath. I'll have to find some unscented baby oil, that will probably help hold the moisture in. Thanx Tracy
  18. ROYAL BLUE
    My son has been gluten-free for about 6 months now. His abdomin is getting smaller, his Asthma is much better as well . He is still having some problems, for example, his bowel movements somtimes are still runny but no longer fatty and his skin is still very dry. Does it take longer than 6 months to see improvments in these areas. His dry skin, does...
  19. ROYAL BLUE
    TRAVELTHOMAS, Just curious, did Oprah mag. tell you they need 10,000 e-mails before consideration on doing a piece on Celiac Disease/ Tracy BC
  20. ROYAL BLUE
    My son uses" Community Eggless Mayonaise", from Spectum Organics. They told me it was also gluten-free. Tracy
  21. ROYAL BLUE
    Frebey brand deli meats are gluten-free, lactose free and MSG free. It states this on the label. They are sold in most grocery stores in British Columbia. I don't know about anywhere else. tracy
  22. ROYAL BLUE
    Smack; Actually, I have not found any yogurt yet that is not gluten-free. But in the town I live in, our one grocery store only sells Yoplait, Dannon and Presidents Choice. As for Penny.ca, I have looked at the sight but find it does not help me alot because the dates are so old and possibly unreliable. I also sent them an update on some items listed...
  23. ROYAL BLUE
    Kraft jello is gluten-free, at least in Canada. Their web page has a list of all of their gluten-free products. Tracy
  24. ROYAL BLUE
    From: "Helen Aqua" <haqua@telus.net> Subject: Newspaper story on Birth Month illnesses Date: Thu, 5 Feb 2004 20:08:35 -0800 Hi everyone, This is the story - it appeared in yesterday's (Wednesday's) Vancouver Sun, and was picked up from the Ottawa Citizen. Science ties illnesses to your month of birth March is the cruellest month, with a...
  25. ROYAL BLUE
    It is potato flour Tracy
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