Jump to content

mat4mel

Advanced Members
 View Profile  See their activity

  • Posts

    74

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mat4mel

  1. mat4mel

    ARCHIVED Need Ped Gi Dr In Pa

    mat4mel posted a topic in Doctors

    Anybody know a good pediatric GI dr in Pennsylvania? We are in NE PA but can drive a few hours if we need to.
  2. mat4mel
    inmyhead, could you please tell me where you got those statistics-- my dd had both antigliadin igg and iga positive but all others were negative-- i did a lot of reading and it was over 95% chance of celiac with both of those positive. oh wow now i just read your email again and it says from your child's GI dr. that is very interesting-- i wonder what...
  3. mat4mel
    These menus sound great; I wanted to add that somebody mentioned Kraft's parmasan cheese and I almost 100% sure it has wheat flour in it (the kind you buy off the shelf in the green container). My dd can't have much dairy at all (little cheese here and there) AND no chocolate (usually has dairy anyway)... AND she is underweight, so I am having a hard...
  4. mat4mel
    I am a bit confused about genetic testing. I have one child (almost 3 yrs old) that I suspect has Celiac; she has been gluten-free for 9 months-- she is better gluten-free but has other issues (she is not completely better-- she is having more testing done soon). In the meantime I had my other kids tested and they both had positive IgG but negative IgA...
  5. mat4mel
    Renee, my dd's story is very similar. Around the age of 2 she had loose frequent stools exactly as you described. She also had positive igg and iga at her ped's office but he did not run the endomysial antibodies. We couldn't get into the ped gi dr for a few months, and decied to go ahead and put her on a gluten-free diet. her poops improved a great deal...
  6. mat4mel
    Renee, Yes, fatty stools is a major symptom in kids with celiac. My 2 1/2 yr old dd had frequent greasy (and mucusy sometimes too) looking stools until gluten-free diet. So your child is on a gluten-free diet? Is that helping at all? Mel
  7. mat4mel
    I totally know where you are! I have a 2 1/2 yr old, who also has low IgA and neg ttg. Did they also run the anti-gliadin antibodies? That might help, maybe not though with the low IgA. Anyway, I keep going back and forth on the endoscopy issue. Seriously-- one day I will be okay doing the gluten challenge and biopsy, and then one day I am set on just...
  8. mat4mel
    To the OP-- I totally know how you feel.. My 2 1/2 yr old was having horrible bowel movements and not gaining weight well (she is still small at 23 lbs) and in April, the GI dr appt was scheduled for July!! I was thinking the same thing.. shouldn't this be an emergency? Argh! Your story rang a bell with me, because my husband AND his brother, as children...
  9. mat4mel
    Craving milk like that (and drinking such a large amount) sounds to me like an allergy. Like someone else said, some people actually crave the thing they are allergic to. I would definetely cut out the cow milk for a couple of weeks and see if that makes a difference-- in fact, cut out all dairy and see. Mel
  10. mat4mel
    Be sure to get copies of the test results. Sometimes dr's will say negative when they are only mildly positive (sounds crazy, but it happens). Mel
  11. mat4mel
    Sorry I haven't replied sooner. My dd had diarrhea for 4 months before going gluten-free/CF. She has been gluten-free/CF for 4 months now. She does not play with play doh or glue. Sometimes she colors with crayola crayons, but I am pretty sure those are gluten-free. Mel
  12. mat4mel
    I love Tinkyada.. I really don't think it's that much different from wheat pasta. The color is a little different. Be sure you are cooking it in a lot of water. Mel
  13. mat4mel
    Hi, From what I have read (and I'm not an expert) I think that the ttg IgA is *the* most accurate for Celiac's.. so it being a strong positive, I would say he definitely has Celiac. What about his biopsy-- they said it was not celiacs, but gluten allergy? How do they tell the difference? I am just curious because I am debating whether or not to do...
  14. mat4mel
    That's a good point. I thought already that I would make sure the bread had no dairy. But I didn't think about yeast. She tolerates eggs just fine. Pasta would be easy because they like rice pasta and the brand we buy seems so close to regular wheat pasta. But they don't eat much at a sitting whereas I know they would gobble up a whole sandwich. As...
  15. mat4mel
    Just out of curiosity-- why pasta and bulgar and not bread- because they have less gluten? I am curious how I should do the gluten challenge if I do-- build up slowly or just start giving them one sandwich a day?
  16. mat4mel
    Like I said, I am very careful about products.. I know Rice Dream has gluten. We use Pacific rice milk. It says gluten free on the label. Tarnel I am not sure what you mean-- you said the gluten challenge was useful-- what do you mean, doesn't require to be eating gluten for as long as the biopsy? Are you talking about enterolab? celiac3270 I think...
  17. mat4mel
    Get ready for a long message.. My 2.5 yr old dd Zoe started having loose frequent bowel movements in January. My ped ran lots of tests, all negative, and finally I asked him to run the Celiac panel.. he only ran the antigliadin IgG and IgA and both came back positive. I read some on the internet and thought I would put her on a dairy free/ gluten free...
  18. mat4mel
    Amy, I totally know what you are going through. My dd has only had bloodwork and had positive IgG and IgA but that was the only testing she had before going gluten free. She had the ttg test done a couple of months after being gluten free (which could have caused a false negative), and it was negative.. but then they said that her total IgA is low (...
  19. mat4mel
    Kirst, I am wondering the same thing-- my ped GI wants her to do a gluten challenge as well after having positive IgG and IgA and improvement on the diet. I hear too any stories of false negatives on biopsies, and no procedure is 100% safe. I just don't get their insistence on a biopsy.. To the original poster, my dd didn't have a bloated belly, vomitting...
  20. mat4mel
    There was a post about this not too long ago. My 2 1/2 yr old with celiac was breastfed mostly until she was 18 months old (she ate a little solids starting at maybe 6-8 months old, but preferred nursing)... her loose frequent bowel movements started when she started eating more solids around 18 months old (because I had decreased milk supply with a pregnancy...
  21. mat4mel
    Megan, I would definitely *insist* on a referral to a pediatric GI dr. She definitely has something going on and the GI dr can order the appropriate tests. I practically had to beg my pediatrician to do the bloodwork for celiac and to get the referral to a GI dr. I had to wait a few months to get my dd into a GI dr, so the sooner you take action...
  22. mat4mel
    I am totally confused.. all of those results sound positive for celiac to me.. why would they say they were negative?
  23. mat4mel
    Long story, but my 29 month old had positive antigliadin IgG and IgA back in April, started gluten free/dairy free diet in MAy, have seen some improvement but not completely and she is still not gaining much weight. I think maybe we should do the biopsy recommended by my ped GI dr and he is telling me that as soon as she starts showing symptoms after going...
  24. mat4mel
    I am always skeptical when a dr says the results were "negative".. sometimes a dr will blow off a low positive. You need to see a dr that can do the right bloodwork. Antigliadin IgG and IgA, and serum IgA, and ttg. Be sure to get a copy of the results. You might need to see a pediatric GI dr to get the right tests done. Mel
  25. mat4mel
    Yeah, could be a bug... our family just got over a horrible bug. The kids acted fine but would just throw up spontaneously. Sometimes they would keep food down just fine, other times they would throw it up. This happened off and on for a week or so. Mel
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.