GFhopeful
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Everything posted by GFhopeful
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ARCHIVED Missed Diagnosis Or Still Recovering?
GFhopeful replied to GFhopeful's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I do know that it's not seizures I'm experiencing as when I was in the hospital, when they were happening the most, they gave me an EEG, which looks for seizures, and said that they weren't seizures. So that's good. I think the jerks are called myclonic jerks but why they started happening so often, maybe Celiac cause? -
ARCHIVED Missed Diagnosis Or Still Recovering?
GFhopeful replied to GFhopeful's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the questions. My regular doctor and GI are just like, "Oh, really, that's strange" when I mention remaining symptoms. I don't think either of them think that headaches, jerks, etc are Celiac related but just don't know what else to do besides to refer to neuorlogist. But all of the remaining symptoms have improved since going gluten-free as... -
ARCHIVED Missed Diagnosis Or Still Recovering?
GFhopeful posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi. I have been diagnosed (I guess) in late May '07. I was hospitalized for dehydration, rapid weight loss, and my heart rate would not slow down. Anyway, during the hospital stay I was given many many different tests (heart, brain, blood, GI) and what they came up with was low potassium and then several days after I was released the GI doc called saying...