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GFhopeful

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Everything posted by GFhopeful

  1. GFhopeful

    Happy birthday and may God bless you today!

  2. GFhopeful
    I can really relate to feeling off. I feel like I have only had hours of feeling "normal", not even days, since all this craziness started. I too had a crazy reflux episode that I can't believe was reflux and it was so crazy and painful and heart attack like. I have also had dizziness, nausea, severe headaches, all in "attacks" that keep me in bed or at...
  3. GFhopeful
    i was tested for this by the GI doctor - it was a hydrogen breath test and it is an easy but several hours long procedure. you just have to drink a fructose mixture and then breathe into this device over a period of several hours. mine came back negative, along with everything else, so I'm in a state of waiting and still being gluten/dairy free until I...
  4. GFhopeful
    just at my little regular neighborhood grocery store, they have some gluten-free foods that are pretty good. there are mi-del mini chocolate chip cookies that i really like for a treat and so you don't feel deprived. you really don't need to feel deprived to be gluten-free and when eating at home.
  5. GFhopeful
    thansk for posting - i'll keep the gatorage or dehydration issue in mind. i have been having crazy headaches both before and after going gluten-free. i have been "un-diagnosed" with Celiac and Meniere's (inner ear problem that causes dizzy bouts) and doctor's now are saying that maybe all my symptoms have been coming from migraines and migraine variants...
  6. GFhopeful

    ARCHIVED Twin Cities Dermatologist

    GFhopeful replied to MNBeth's topic in Doctors

    sorry to hear that - that's silly. so you have to waste your time 1st and then they'll take you, huh? that's annoying. i did have to send slides and paperwork for them to take me but i thought that was because i was questioning the diagnosis and it would be a second opinion. i didn't know they wouldn't take you otherwise. i'll keep me ears open about...
  7. GFhopeful

    ARCHIVED Need Some Opinions

    GFhopeful replied to a topic in Doctors

    I did get the gene tests after not getting all better after Gluten-free Casein-free. I do not have the genes for Celiac but the doctor said that I could still have issues with gluten and will have to try a challenge and see how I feel (once I feel better). I am still having symptoms too and have been really good about eating whole and natural gluten-free...
  8. GFhopeful
    Dr. Murray really emphasized to me that I could have a gluten sensitivity, although I do not have the genes for Celiac. He encouraged me to feel better first and then try gluten and if I feel any raection to get right off of it as there are people out there that do not have Celiac gene but can not handle gluten in their diets. He also wanted me to call...
  9. GFhopeful

    ARCHIVED Twin Cities Dermatologist

    GFhopeful replied to MNBeth's topic in Doctors

    I know it's a bit of a drive but I would consider just driving down to Mayo Clinic. They have a Celiac expert in the GI department who can hook you up with all you will need if it is DH and make you feel confident in the diagnosis. I am on the north side (WHite Bear Lake) and it only took an hour and 15 minutes to drive down there. It's not as far as you...
  10. GFhopeful
    As I understand, you can have the genes for Celiac but not have Celiac - it doesn't mean that you will eventually get it either. If the biopsy did not show damage to the villi and all blood tests (besides gene test) were negative, he does not have Celiac. I think that around 30% of the population has the gene markers (could be wrong but I know it's a much...
  11. GFhopeful
    i'm just throwing another idea out there but i would think that doctor's would have recognized this - my daughter had a skin rash called mollescum contageum (don't know the spelling anymore) and it looked a bit like that. it was one her butt for almost a year and the doctor said it was just a virus and we couldn't do anything but leave it alone. they would...
  12. GFhopeful

    ARCHIVED Stuttering

    GFhopeful replied to ~alex~'s topic in Related Issues & Disorders

    I'm sure you know this but stress is a big factor in stuttering and stuttering is a thing that seems to come and go in people's lives. when your body is under stress (i.e. getting glutened) i think that it would be very likely that especially if you had a history of stuttering, it would emerge again. i will have to think about the idea that gluten may...
  13. GFhopeful
    That feeling that something else must be wrong I think seems to be common from what I've read of others and what I've experienced. i'm thinking it's part of the denial process that we're in when diagnosed. I've had many symptoms that have come and gone over the past months and I am so careful with food (no eating out, whole house is gluten-free, etc) and...
  14. GFhopeful
    me too... before diagnosis the dizziness was becoming worse and worse. i had tingling hands and feet, jerks that would wake me up at night, seeing stars, heart racing to name a few. i also had migraine headaches for several years. it was not until around 2-3 month before diagnosis that i had ANY GI symptoms at all. since going gluten-free, all of these...
  15. GFhopeful
    i would say to get a second opinion from another GI too. i am waiting to get a second look at my endoscopy as i had negative bloodwork but positive biopsy too. brfore going gluten-free, i did have GI symptoms after months of not having GI symptoms but other symptoms (dizziness, headaches, bouts of illness). It seemed to escalate to GI symptoms and weight...
  16. GFhopeful

    ARCHIVED Working

    GFhopeful replied to Lissa's topic in Coping with Celiac Disease

    it's tough i know. i have pretty understanding boss and coworkers and i still feel guilty but i also realize that i need to take care of myself or i could end up back in the hospital and that is good for no one. maybe you could start looking for a new job or different source of income while you keep this job - but it's a hard situation when your health...
  17. GFhopeful
    try re-hydration drops... they really work --you add them to water & drink through out the day.
  18. GFhopeful
    don't know why but i have dizziness and dehydration issues too since pre-dagnosis and then on and off since going gluten-free. just wanted to say you're not alone on this but wish I knew why and how to fix it, besides being extremely careful with food, like I already am and I'm sure you are too. it's a weird disease. recently (never before) i have to burp...
  19. GFhopeful
    Definitely something I'm worried about right now too as I am supposed to be going back to work full-time after the summer off. No stamina, off days, and continued issues make it hard for me to believe that I can be the reliable employee that I was a short while ago. Don't know what I'll do yet but am going to try it out and see from there. I have an upcoming...
  20. GFhopeful
    Thanks, I'll check into that a bit more. I know that when I was in the hospital and eventually got my diagnosis with Celiac, they said that my stool samples were all clear from infections - but I'll read more on Candida. A naturopath also recommended I take a probiotic just to help in my recovery but it's sitting in my fridge and I haven't taken it yet...
  21. GFhopeful

    ARCHIVED Working

    GFhopeful replied to Lissa's topic in Coping with Celiac Disease

    I have been gluten-free for around the same amount of time as you and still have good days and bad days. I had the summer off to recouperate but am really worried about going back to work in a couple of weeks as there is no way I can work how I feel sometimes still. I was so sick and am much better but have bouts and can't imagine being at work when they...
  22. GFhopeful
    I have been very careful with food since going gluten-free but am trying to figure out if I gluten somehow snuck into something I ate or if there is something else going on and wondering if this has happened to anyone else out there as part of recovery or accidental gluten ingestion. Woke up with a headache but it wasn't that bad of one. All of the sudden...
  23. GFhopeful
    i had villi bluting too and a good response to the diet so.... and i didn't even have the positive bloodwork. i am going to mayo clinic next month as i have some remaining symptoms (low thyroid, headaches, fatigue, etc) that are getting better but not all better. i never had the gene test run yet either so i'm guessing they will do it there. but i heard...
  24. GFhopeful
    i get the dizzies too. before diagnosis and before gluten-free it was room-spinning dizziness but ever since going gluten-free that is gone. lately, however, i have been getting more of the light-headed dizziness, kind of like the floor might fall out from under me. it has seemed to help to try to get up from sitting very slowly, to try to have me feet...
  25. GFhopeful
    It takes a while to get better for some- definitely me. I had to cut back to really basic food - not just gluten-free but also dairy free and really just fruit, veggies, chicken, and rice for a while until I started felling better. Also, there are foods that should be ok for gluten-free (corn tortillas, corn chips,etc) that could be contaminated with wheat...
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