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dadoffiveboys

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  1. You need to talk to your doctor, but I don't believe Flonase is gluten-free!! I know that sounds crazy but if you are going gluten-free you definitely need to check all your medicine. My son on medications (in his case was on the nebulizer inhaled medication pulmicort)... his full effective lung was 420. Off medicine and with gluten it was 300. OFF...
  2. No that was the primary reason I stopped eating gluten - severe back pain. As a note, my dad (who has also stopped eating gluten) was diagnosed with Focal Segmental Glomerial Sclerosis (spelling?) (FSGS) and he was getting nearer to needed a kidney transplant. He went off gluten and his kidney numbers improved to the point where he may NEVER need the transplant...
  3. Bouts of constipation and diarreah can be signs of celiac or gluten intolerance. Some of your symptoms sound alot like my own - including severe constipation and back pain. So far anyone I've known that I've seen put on miralax ended up testing positive for some kind of gluten intolerance. Asthma can be caused by reflux, hence shown by your "gastritis...
  4. Just for those curious, here are the ingredients in the new gluten-free Cinnamon Chex: (Just found them YESTERDAY at our local Super Target) Whole grain rice, corn meal, sugar, fructose, corn starch, canola oil, rice flour, salt, cinnamon, brown sugar syrup, yellow corn flour, soy lecithin, color(Yellow 6/Blue2), Peanut Flour, nonfat milk, Vitamins and...
  5. I had the same reaction you did to the blood tests - only positive to Anti-Gliadin IGA. Every other test and Endoscopy negative. I tested positive for the DQ8 celiac gene and have been on a gluten-free diet for >2 years and feel great! If I eat gluten now though I get a typical 'celiac' reaction - abdominal pain, gas, bloating, diarrhea. #2 (gluten...
  6. My son tested negative to all the testing AND had the endoscopy and was still negative. He had all the same symptoms you described - below the 1th percentile in weight, diagnosed failure to thrive. He never had pain/diarrhea because he just stopped eating when he started to feel sick. Anyhow, he's now been gluten-free for 1-2 years. He gained 15 lbs since...
  7. I am also Catholic and since our church only gives out the Eucharist (and not the cup normally) I had to make special arrangements. The priest has a separate small chalice and keeps it separate. I tried the low-gluten hosts first even though I figured I would react.. and I did. If you react to very small amounts of gluten, then it is the wine (Precious...
  8. My fourth son (of 5) was gluten-free only starting at about 2. We were worried a little because he wasn't talking 'normally' it seemed. When we took him gluten-free, within about 2 weeks his speech picked up dramatically. I would say if you have a strong family history (like I do) of gluten issues, I would definitely keep them off gluten. A 'trial' of...
  9. I was IgA antibody equivocal only and never "positive" on any of the testing. Under age 3 the testing isn't very good either and my son was like your daughter and I went through it all - including the endoscopy - and got NOTHING from it except the doctor "ruling out" celiac in my case. We went gluten-free anyways and I saw a HUGE improvement and have been...
  10. Your daughter should go gluten-free too - she should NOT have to be on miralax all the time - that is ridiculous! If you feel better gluten-free you have a problem with gluten - testing results don't matter as much as how you feel. All of your symptoms are that of celiac disease - ESPECIALLY your daughters! BTW - all the supplements you add won't help...
  11. Only thing to watch for - if you have milk problems, Zyrtec (namebrand) has milk in it.. generic zyrtec does NOT have milk ingredients. (It's part of the inactive ingredients). Allegra I do believe has no allergens at all in the ingredients.
  12. I do believe the "malt vinegar" on Heinz 57 is made with barley malt - so it won't be labeled but it is NOT gluten-free. I think it is labeled as such but it is definitely NOT gluten-free
  13. Are you still on this after going gluten-free? One thing to remember is if you take medicine for a condition (say gluten causes it) and you go gluten-free then you need to re-evaluate ALL medications because you may not need them and taking them could actually put you at risk. My father stopped his antiacids a week after going gluten-free when he started...
  14. Yes - both myself and my oldest son had frequent nosebleeds. Now that he is gluten free, the nosebleeds stopped. He had such frequent nosebleeds he was referred to a specialist to test his sinus for abnormalities (etc..) and they all came back normal, negative, etc. This included tests of blood cell counts, etc because the doctors were extremely puzzled...
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