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splash

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Latest Celiac Disease News & Research:

Everything posted by splash

  1. splash
    I take New Chapter Organics Woman's One Daily. It is food-based and is the only vitamin I've tried that my body really absorbs. Unfortunately, the New Chapter prenatal vitamin contains oats even though it claims to be "naturally gluten free."
  2. splash
    I agree that 20 ppm is infinitessimal, but for now I'd be more comfortable eating a product that declares that the equipment used is gluten free than eating a product that is 20ppm gluten free but whose manufacturer is not willing to make the same declaration about its equipment. But I do thank you for clarifying the state of things! And to bring it full...
  3. splash
    I'm highly sensitive and have not had any trouble with Amy's products - they are some of my staple items. On the OTHER hand, Trader Joe's "Gluten Free" stocks and soups have made me very sick on many occasions. It has been a major problem because I'm often invited to dinner with family and friends that make a commendable effort to buy special ingredients...
  4. splash
    I really appreciate hearing these points. I have not baked much since going gluten free several years ago, and I definitely haven't shopped in a typical baking aisle recently. So I haven't had the experience but I can definitely visualize the serious frustration with having to purchase something covered in gluten. I'm also extremely sensitive and that...
  5. splash
    Just to add a little reminder to what I'm sure sounds like a fairly unhappy conversation: this diagnosis is GOOD news. Your wife has probably been experiencing confusing and frustrating, and possibly embarrassing symptoms for some time now. Many people go to the doctor and find out that they have permanent illnesses, or that they are doomed to taking medication...
  6. splash
    Many major grocers are taking up the trend of establishing a separate "Gluten Free Aisle" of the store. What does the celiac community think of this idea? As the author of the poll, I have to admit my own bias: while I'm delighted that grocers are making gluten free selections a priority, in the end I find it fairly inconvenient to finish my shopping with...
  7. splash
    Okay that is helpful - so if it takes 2 yrs for the gluten to get out of my system (and my skin) I don't need to start thinking something wacky is going on for at least another 6 months. Somehow that actually is comforting. It still does seem crazy, though, that new blisters keep appearing every day or so for several weeks on end. I just figured a "flare...
  8. splash
    I have been gluten free for 1.5 years and haven't had any major DH symptoms since I started the diet - until now. When I was a teenager I had the worst rashes on my hands, and at the time we thought it was "seasonal" (that seems hilarious now). It would mainly show up on my palms and between my fingers, itchy blisters either like heat blisters or deep below...
  9. splash
    My reactions to barley are much more delayed than for wheat. After eating wheat I'm usually very sick within the hour. Last week I ate a Nanna's cookie that I accidentally overlooked was "No Wheat" instead of "No Gluten" and halfway through wondered why it was so tasty - it was made of barley flour. Aside from some mild geographic tongue that evening,...
  10. splash
    PS I have been seeing a nutritionist, who has been a godsend to help me straighten out my symptoms and know how to listen to my body. It's the kind of help that doctors just don't know how to give. If you're in the DC area check out www.eatinpeace.com - Charlotte really knows what she's talking about and is a total angel!
  11. splash
    I tested negative on both blood test and gene test (I didn't even bother putting myself through the biopsy) but I have severe reactions any time I eat gluten, and the gluten-free diet after one year has changed my whole life. My genetic test showed that I have double DQ1, and apparently DQ1 in some countries is associated with gluten intolerance. They don...
  12. splash
    PS I was shocked that night that I ate the soy sauce (the tuna was drenched in it) that I didn't have a reaction right away. What's up with that??
  13. splash
    I've been gluten free for a year now. Stomach aches are my most noticeable symptom - once the reaction starts my stomach burns intensely and then within about 15 minutes I have urgent diarrhea. (Sorry for the graphics...) So it's pretty easy to tell that I've ingested something bad, but lately it has happened after a couple of possible culprits and I'm...
  14. splash
    As much as I would love to have Guinness for a week, it looks like it didn't take more than half a beer after all. I haven't had any skin problems since going gluten free, but last night I started to get a bunch of blisters on my hands and I'm not entirely GI-comfy right now even though that didn't come on all at once like it would with wheat. What I had...
  15. splash
    I'm double DQ1 and have had twitches under my eye a few times. I've now been gluten free for 8 months but they still come back sometimes and I can't tell if it's connected to accidental glutening. It never lasts more than a few hours for me. My mother, who must have at least one DQ1 since I'm double, had an eye twitch that lasted nonstop for two years...
  16. splash
    I think what is confusing, and frustrating, is that it's really hard to find a doctor who understands both the GI and allergy implications of gluten. There's so much good information on this website - if only doctors would get up to speed! Getting a diagnosis shouldn't be this difficult for something that obviously affects a lot of people. I think grains...
  17. splash
    I do see your point. I don't want to do any long term damage either. A couple of weeks ago I ate at a restaurant in DC called Utopia, and the waitress just plain didn't understand what I was talking about when I asked about gluten. I had a portabello pesto dish that caused my insides to explode within about 30 minutes. I felt like a skeleton for two days...
  18. splash
    That's really interesting information, cruelshoes... So what is the difference between the IgA antibodies for celiac and other antibodies that correspond to a wheat allergy? How would you find out that you are IgA deficient? Could that affect testing for allergies also?
  19. splash
    Well, last night I had a half a bottle of beer. As good as it tasted, I was nervous and couldn't bring myself to drink the whole thing. But... nothing happened. If that had been a cracker I would have been running to the bathroom within minutes, my heart would be pounding and I'd be waking up feeling terrible. But it seems like I'm fine! I am pretty...
  20. splash
    Thanks for the replies. I guess even if I did have an allergy, that wouldn't rule celiac out - I might have both. Maybe I'm just going through stage #24 of celiac diagnosis: Denial due to severe temptation to drink Guinness! For those in the earlier stages, this apparently occurs about 8 months after you first give up gluten Maybe I should just try...
  21. splash
    My doctors diagnosed me with celiac even though my blood IAg and DNA tests were both negative. My symptoms all my life have been so numerous, and were so drastically improved once gluten free, that it just made sense. But is it possible that I just have a wheat allergy, and (more importantly!) that maybe I can have some good old barley based beer? I...
  22. splash
    Another thought: I get residual effects from gluten for a few days until my stomach heals again. I've been gluten-free for several months now and am generally feeling good, but if I have accidental gluten I sometimes get what's like a gluten aftershock with the next few meals - it's like the damage to my stomach makes it react to ANY kind of food, even fruit...
  23. splash
    I hope everyone had a great gluten-free Thanksgiving. I made it through a meal with 13 non-celiacs and had two full delicious plates with nothing that made me sick! Hooray for good family and friends. I'm accepting it all much better after all this good information and - probably even more key - after such overwhelming support from loved ones. I don't...
  24. splash
    I have full blown celiac disease (GI symptoms, skin issues, neurological symptoms) and don't have the "official" celiac disease genes. I see the reasoning to want to test but the only real test is to eliminate gluten from your diet. If that works, stick with it. Some people on this board have additional food intolerances - I don't know if those work in...
  25. splash

    ARCHIVED Oats

    splash replied to JNBunnie1's topic in Coping with Celiac Disease

    So where would one find the certified gluten-free oats? Are these the oats that gluten-free folks decided to harvest on their own dedicated land, or has that not happened yet? I can't tell if there is a consensus on this board about whether certified, dedicated field oats might be okay - it seems like most of the problem with oats is how impossible it...
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