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Nikki'smom

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Everything posted by Nikki'smom

  1. Nikki'smom
    Well my DD had her scope yesterday and the dr said he didn't see any serious signs of Celiac but he could tell her villi was swollen so he has no doubt about the diagnosis. Which I knew alreadybut it was kind of nice to hear it. Almost a relief you know? This was the 1st time I meet this dr because we saw another dr in his practice that was new to the...
  2. Nikki'smom
    Costco (Kirkland) does make a children's vitiman. I have them but they don't say gluten free on them and I am still so new at reading labelsI don't even yet trust myself to tell if they are gluten free! LOL I do know costco ahs other vitmans for kids though. I will be going this sat or Sunday and will def check! WE are costco addicts here! LOL
  3. Nikki'smom
    Great list thank you so much! I am thinking about putting together a note for my DD's soccer coaches and team parents. Last yr they always ahd parents bring snacks maybe if they have a list the parents will be kind enough to just buy off that list if not my dd will just have to ahve a snack at home.
  4. Nikki'smom
    Thank youa ll so much! I was looking for a jumping off point and you guys gave it! Thanks! My sister in law works for Dryer's/Edey's and she gave me a list of their gluten free stuf and since Dryer's is owned by Neslte's she said she would work on getting a list of all the Nestle gluten free produsts for me and their subsiderary companies. Here...
  5. Nikki'smom
    Hi all I am very new to this gluten-free eating. Does any one have a list or a link with a list of what to look for on food labels? I know the wheat, barley, oats, rye but what else? I know there are things hidden I am sure that I would never suspect.
  6. Nikki'smom
    Welcome, I am still very new here too. My daughter hasn't been officaly diagnosed yet but I have been pretty much told by all the drs and nurses that can't imagine her not being diagnosed once her scope is done( wed) with how high her blood levals are. I completely understand the over whelming feeling! I still get it at times but the shock is wearing...
  7. Nikki'smom
    that is great! We are very new to this this yr and we still haven't had my DD's endoscopy(Wed) there for nothing is set in stone yet. When we went to meet my DD;s teacher last Thursday she was amazing! She said she wasn't familar with Celiac and my response was I wasn't either until a few weeks ago! She just said then we will learn together! I loved...
  8. Nikki'smom
    this is so wonderful to hear! We love WDW! Since my DD is 7 and about to be diagnosed with Celiec one of my fears was WDW! I guess it really is a magical place!
  9. Nikki'smom
    I just wanted to add I feel the same way! Part of me wants to go through things and get rid of certain things and call the school etc. since her blood work was so positve the drs and nurses told me don't count on the biopsy being negative. So what I decided to do is when I pull something out of the cabinet I check ther ingredients so I know for when the...
  10. Nikki'smom
    Great info THANKS! We haven't been officially diagnosed yet but from my DD's blood work I am sure the biopsy will cme back positive. She hasn't started school for this yr yet (she is going into 2nd grade) Her school has a meet the teacher day this Thursday I was wondering if I should bring up her gluten-free bneed now letting her know that the gluten...
  11. Nikki'smom
    Julie, Good luck to you and you new little one and the new life you have. I am sure we will be joining you in a week or so. What you said is pretty much what our ped and our family gp said as well as bth said if it was their child (and both have childern around my DD's age). So I now feel confident in my choice to go ahead with it. Gemini, you are...
  12. Nikki'smom
    thanks again every one! I think we ahve decided to go through with the endoscopy. I called her ped last night whom I adore and he talked to me for almost a half hour and told me all of the reason that if it where his kid he would do it. Not sure if it will happen tomorrow because of crazy insurance/dr issues but her ped dais if the drs and insurance...
  13. Nikki'smom
    Thanks for you fast responses! She had 4 original blood tests and I believe these are the 2 that the dr said were for Celiac. Transglutaminase IGA AutoABS >100.0 (referance range <4.0) endomysial IGA AUTO ABS >=1:16 (referance range <1.10) I believe those are the 2 main ones for Celiac she had 2 others that came back fin but the...
  14. Nikki'smom
    I am new here and I have tons of questions as you can see from ny introduction post Long story short it looks like my DD's endoscopy might have to be postponed because of insurance reasons. The more i reasearch this the more I wonder how truely important is an endoscopy to get a true diagnosis of Celiac. my DD's dr said her blood tests show she...
  15. Nikki'smom
    Thanks so much for every one's input! Once everything is settled with my daughters situation and we are all adjusted to the guleten free life style for her then i will probably start having us all tested but right now I just need to get her settled then go from there. Any more advice suggestions is wonderful! When you little ones went for their...
  16. Nikki'smom
    I thought I would add my daughters labs/bloodwork : Transglutaminase IGA AutoABS >100.0 (referance range <4.0 endomysial IGA AUTO ABS >=1:16 (referance range <1.10 I believe those are the 2 main ones for Celiac she had 2 others that came back fin but the gasrto said they were good info to have but not needed to tell if it was celiac. ...
  17. Nikki'smom
    Thanks for the info! I can never really have info overload! Heck the gastro even asked me at her appointment if I was a nurse because I already knew so much info! LOL Ever since the allergist suggested celiac's I in my gut just knew she had it. DH and have resigned to the fact she does have it. With the biopsy sample what are they actually testing...
  18. Nikki'smom
    I am so sorry you are going through this! I can only imagine how scared you are. Hang in there hopefully the drs can figure out why your little one lost so much weight so fast.
  19. Nikki'smom
    Hi I am new here. I just found out my 7 yr old daughter probably has Celiac's. she has been Lactos intolorant for a while now but she was still having tummy aches where she was doubled over in pain several times a week. So I figured maybe it was a milk allergy not just intolorance so I took her to my son's allergist and she found tons of air allergies...
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