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mama2

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  1. Hi,

    Last year I saw Dr. Michelle Peitzak (sp??) speak at a Celiac conference. She said you should introduce gluten not before 6 months of age but no later than 9 months of age. Hope this helps.

    I had read that too in a book... I belive it was in Celiacs for dummies.

    Even some of the baby rice cereal has gluten in it... but cream of rice does not it says gluten free on the box.

    congrats & best wishes.

  2. I had to give it to my daughter for pooping reasons, reasons like yours. We had used it for about 3mths off and on ... eventually her body worked it all out. My ped said it was naormal for toddlers to go through a period like this. I tried to cut dairy out of her diet... did not work for us... made no diff. The Miralax was wonderful and would use it again if needed.

    I feel your pain ... would cry too along with my DD.

    Hope he starts feeling better.

  3. Or when the doctor directs you to the internet for information.

    That really was good advise, as this is where I met all of you wonderful people.

    Cathy

    I was also sent to the internet for information... had no idea what to eat those first few days. Got a great start here at celiac .com :)

  4. Just an FYI, call Bob Evans and talkto someone knowledgable about the food. I recently found out that my local Bob Evans home fries arrive seasoned, the chicken arrives frozen with dairy items (my kid is allergic to dairy). I left that day eating an awful burger patty and small side of fruit, and still hungry. I won't be back any time soon.

    Thanks I will def do that...won't be going back soon , too.

  5. I am a lactation counselor, but unfortunealty the book we have on meds and nursing is 3 yrs. old, so I don't feel comfortable giving the advice in there. Calling a local lactation consultant is a good idea. If you can't nurse while on this med, you could at least pump and dump your milk until the med is out of your body. You may have to do the formula for a few days, but at least your milk supply won't decrease.

    Thanks, Under my docs new advice I am giving him mainly formula right now and nursing only some. He said it should be ok... my son seems to be happy with that arrangement. I am trusting the doc is right?. This whole nursing thing on what is safe and whats not is hard and never usually a clear cut answer... esp since I have been adjusting to a gluten-free lifestyle.

  6. I think I responded to your previous post... just thinking outloud about her having brian fog...

    but did you see Oprah yesterday?

    I have my masters in special education and I believe that a gluten-free and sugar light diet makes all the difference in a child's ability to think... I also (just my feelings) think that in children with brian fog it makes a difference. I have always told parents to listen to your gut!

    Hope you get this all figured out

  7. I would not take it and try something different. The more you take something you are allergic to sometimes the worse it gets. I learned that the hard way with my DD... after still taking her they me told me to give her the med anyways... well her next reaction sent us to the ER. But I still would want to see the doc b/c new alleregies can happen at any time,

  8. I agree that you should not go behind DH back and get you and your 6y tested. BUT you both need to be tested. So maybe, since you are already gluten-free and have + response why don't you have the test done first and when it comes back + , every doctor then says to have your children tested too. Then have her tested.

    As soon as we found out ... my DH sent my DD to have the blood test done.

  9. was glutened over the weeked and then had some sort of allergic reaction and DH rash... doc gave me a cortisone shot yesterday to help with itching and other things. Today, It BURNS when I go to the bathroom... is this maybe seperate or part of being Glutened? Going back to the doc today... but the more I know b/f I go seems to help the doc.

    Thanks for your support and help.

    Becky

  10. Today I went to see my doctor b/c I had gluten reaction from CC or maybe the saled dressing I had at bob evans... still not sure, they said the dressing was safe. anyway, I was also having some sort of allergic reaction too. ALong with a DH rash. So my doc gave me a cordizone (sp?) shot to help with the reaction and sending me to get food allergey test done. he also finally gave me celiac spure diag , which I have seen many docs for many years and nothing... so huge weight lifted off my shoulders.. don't feel so crazy anymore!

    Well, now for my question I have a 10mth old that I still nurse some and the doc asked me if I was planning to stop soon (gonna take him to a year if my supply lasted)... he does'nt really like the idea of me nursing with the shot but, wants me to decide. Any advice?

  11. I would think by now you should be able to call them, they should have called by now. When I had my biop done they only took two and they cam back inconclusive. They never did the blood wrk?. But I had my results within 3wks or so. I hope you get some answers soon. sry I am not much help about the false neg stuff... I am still trying to figure that all out myself.

  12. Welcome! You will find great suport here!

    I too HAD a lot of unexplained symtoms ... unexplained prego problems left unanswered. since going gluten-free this summer I am feeling much better no more GI problems my aches have too gone away... I also have a family history of it. I had inconclusize biobsey results (could not rule in or out celiac). I finally just went on the diet ... went in to see my doctor for stange skin rash and he gave me some stuff to help with the itch and said it would not hurt to gluten-free and sent me on my way. within 3 days I started to notice a difference ... GI symtoms stoped. I figured trying a gluten-free diet could'nt hurt. Glad I did.

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