Single mom with two kids. I work full time and go to graduate school.
I was diagnosed with Celiac Disease in 2007 after going to my work's benefit's fair. I did a heal test to find the density of my bones and was surprised when I tested really low. I went to my doctor who found that I had osteoporosis at age 37. We pieced together my extensive medical history and within two weeks I had a confirmed diagnosis - Celiac (she calls it Sprue which gives me the quivers).
It took 10 years to get my correct diagnosis. And it only took a simple heal test at a benefits fair to make it all come together. I also had a new pcp, so I'm sure that helped.
I live in a mixed household with 2 non-gluten-free kids.
Fast forward to May 2010.
I lived a Specific Carbohydrate Diet life for one year. I wasn't feeling very well after almost 3 years on the gluten free diet, so there must have been something else that I couldn't tolerate. I went through skin and blood tests for allergies, but they gave false negatives to everything (later found out I have a specific kind of antibody deficiency that caused this). Plus, I couldn't nail down the offender because I got sick so randomly. The doctor suggested an elimination diet and I chose SCD.
This meant no sugar, lactose, grains, gluten, corn, soy, or starchy veggies for me. I did a lot of home-cooking! This was so much harder than being strictly gluten-free, but I felt wonderful!
Fast forward to May 2011.
I no longer strictly follow the SCD diet, although I mostly eat whole foods and stay away from anything processed and stuff I can't pronounce. I still cook 95% of our meals, but after a year on this elimination diet, I've become a skilled cook.
After a year on the SCD diet, I found that I am allergic to nuts and my other HUGE intolerance is corn.This was the reason I was sick so randomly pre-SCD diet, and why I could never nail-down the offending foods. Corn and nuts are in so many foods - but in varying degrees and in varying forms.
I learned a lot and feel worlds better because of the SCD diet. I highly recommend that Celiacs do an elimination diet (like the SCD diet) for a year if they haven't gotten significantly better from the gluten-free diet, and can't easily nail-down a secondary intolerance. But it takes dedication and perseverance. Make sure you have a strong support system!
After you start reading past posts on this forum, you'll see that doctors don't know everything about nutrition. A lot of people here distrust their doctors because many have been given bad information. There are some people (me) who have good doctors, but I have read some horror stories about doctors...
When I started my restrictive diet, I listed all of the things that I COULD eat and then found ways to mix and match them to make interesting meals. I also found that I grew to like foods that I was previously very picky about. I started eating meat and enjoying it, because I had to eat it. You might...
Tonight it's chili in the crock pot: hamburger, onions, green pepper, kidney beans, chili powder, cumin, salt, pepper. I'll add some cheese on top. Green salad with homemade salad dressing: lemon juice, shallots, mint, mustard, salt, olive oil. That's me on my gluten free/specific carb diet....
I'm sorry this happened to you. This has happened to me so many times... I'm afraid to eat out anymore. I think this happens to many of us - we become paranoid and, in turn, reclusive. When our coworkers decide to go out to lunch or order in, we run in fear, take cover, and sit cowering in the corner...