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Nanjkay

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Everything posted by Nanjkay

  1. Nanjkay
    Me as well - It is unintended, but I have to be so focused in my job as well and some of it comes from having a rough go so to speak - being sick since i was in my twenties and having to work so hard for so long at our health, something that comes naturally and without effort for most of our peers. When you are sick, your priorities line up much more quickly...
  2. Nanjkay
    Carla- I am so glad you are doing so well. In what ways, specifically are you doing better, or is it more generalized? Will you have to do maintenance? Do you think I should plateau with Dr. H before I go, or is it advantageous to go at any point during treatment? If you could do it all again, would you forego the anti-biotics and go straight...
  3. Nanjkay
    Just to clarify..on the Yasko yahoo group I am a part of, CFS Yasko -it is universally accepted that if you suffer from CFS symptoms, do stay away from Methyl B12. I get much, much worse on Methyl B12. Everyone in this group is also doing the Yasko protocol and about half have done the genetic testing. Many are NOT seeing dramatic results yet and have...
  4. Nanjkay
    Thank you so much Nora. I can't get the Lymenet posts as I am getting an error, I will try to do more searched on Lyme Net. Nancy
  5. Nanjkay
    Nora- Thanks for your info also...I have some questions, though. Is the Biophoton treatment one and the same as the Bionic 880 that Carla is/was doing? By the way, how is Carla doing? I would love to go to Germany, and would like to go sooner than later, but I need to get a bit stronger. Maybe in the spring. How do I find out about the detox...
  6. Nanjkay
    [quote name='aprilh' date='Nov 18 2008, 11:37 PM' post='486270 Happy Belated Birthday Sherry! Hope you are doing okay. Post when you can and let us know whats up.
  7. Nanjkay
    I know they are really good for you - I found this from googling. I was craving them just this morning. Pumpkin seeds Pumpkin seeds are one of nature's almost perfect foods. They are a natural source of beneficial constituents such as carbohydrates, amino acids and unsaturated fatty acids. They contain most of the B vitamins, along with C, D, E,...
  8. Nanjkay
    You could not pay me enough to get a flu shot. God only knows what the vaccines did to us. I heard an awful story yesterday from my naturopath (who is in San Diego, we talk be phone and she was just at the Lyme conference with all of our doctors!) Anyway, she told me a story of twin baby girls who were getting their vaccines. The doctor (not the naturopath...
  9. Nanjkay
    Don't know if this was mentioned but I use Trader Joe's gluten-free brownie mix and then use egg replacer for the eggs. It is DELICIOUS. The only grain used is rice flour. The air hunger has really abated for me. I still get some shortness of breath. I do notice that if I am a bad girl with eating - like I have dairy or nuts, the air hunger...
  10. Nanjkay
    Carla- So the you're doing well and you're feeling the effects so soon, so quickly, that is WONDERFUL. It is also very encouraging for the rest of us as we contemplate taking a trip of our own. Good luck and lots of well wishes. Nancy
  11. Nanjkay
    Hi everyone- Been tolerating the computer better lately. Wishing Donna good thoughts and I hope she recovers well. Hi to Little Lymie, nice to meet you. About the Mercury, where are we getting exposed if not only from the fillings and fish? Is there anything we Americans can do to cut down on our exposure? Also, I am having a...
  12. Nanjkay
    Thanks so much. When you go to the sushi place, do you specifically mention that you can't eat gluten, or do you just request that they not put wasabi on the roll? Thanks again...I am excited to getting out there and eating!! Nancy
  13. Nanjkay
    Hi all- I haven't had sushi since I went off gluten and I MISS IT!! I have gone to supermarkets and read the packaging and I found only one thing of concern; some wasabi contains wheat as an ingredient. Knowing this, I have stayed away from sushi because I know some sushi places put a little wasabi on the roll itself. I don't like the imitation...
  14. Nanjkay
    hey paula, I have been able to be on the computer the past couple of days and I read what you wrote. In case no one else mentioned it, I was told that antibodies for gluten can show for years after you stop gluten. You produce the antibodies for a long time. Also, I read in some book I forgot which (by Shari Lieberman), that there is a protein in...
  15. Nanjkay
    Hi All - I haven't been on line much as it was making me nauseated and sick to my stomach. I just started catching up and reading and Carla is going to Germany....WOW. I am seeing the LLMD Carla recommended and I am starting to feel a little better. I have been there twice and spoken to them once on the phone. They are very responsive and thorough...
  16. Nanjkay
    Kassandra- I too, totally feel for you and I know how much it sucks. I have also been told, even a few weeks ago, by my first LLMD that he has never seen my reaction to anti-biotics...his words "that's a new one for me, never seen anything like it." I have since changed LLMDs...He was perfectly nice, but instilled PANIC in me. After hearing this...
  17. Nanjkay
    Paula= I too have been noticing that I feel very sick when I am on the computer too long. Lots of head symptoms. My vestibular neuritis acts up, I feel pulsing and fullness in the head, I get nauseated and feel just not right and sick. This has been happening for years but only recently has it gotten really bad. Nancy
  18. Nanjkay
    Carla- Just today, the air hunger and cobwebs in my chest came back. I have been off the Mepron for 10 days now. I thought that feeling in the chest (I imagine this is how asthmatics feel) was from the Lyme, not the babs??? Anyway- glad to hear you are doing so well. Kassandra- I'm a little late in posting but glad to hear you are doing better...
  19. Nanjkay
    Sherry- I get sweats from Babesia and most of the time I feel very hot at the time of sweating especially in the morning. When I have night drenching sweats, it is the wetness, not the hotness, that wakes me up (gee, that didn't sound like Babesia, that sounded like something a lot more fun) !!! Nancy
  20. Nanjkay
    You have been waiting this long for that test!!! OMG. The researcher/scientist who will consult with me wants that test to be done first before he starts consulting me. Yikes. What does the lab say when you call? Are they just really busy? Does the methylation panel check for the SAM and ammonia levels or was that another test from the same lab...
  21. Nanjkay
    I am so confused. I have been on a drug called Nortriptyline...a tricyclic anti-depressant in low doses for 15 years. I was put on it for the fibromyalgia to help me sleep. It is not in high enough levels to be an anti-depressant, but it does mess with my norepinephrine. Could this have caused the Graves? Could the Nortriptyline be why I...
  22. Nanjkay
    Birdy- Quoted from one of my herb books "Quercetin directly inhibits several of the initial steps of inflammation and allergy." And my book says to take it twenty minutes before meals...I guess to have it in your system and be available to inhibit those initial steps of an allergic reaction. I never just take it in the middle of the day like a proteolitic...
  23. Nanjkay
    I take quercetin before every meal with bromelain and I think I do take more than 250 mg. each time. Nancy
  24. Nanjkay
    This is great info!!! It is exactly what i am dealing with now and what is stumping my doctors. Let me know what links you have, I would love to see them. I am hypo, but have Graves, can't take my medicine and do have that interferon feeling in my head half of the time. What is LDN? Nancy
  25. Nanjkay
    I have some other names in mind to call "Dr. Setback", but those words are not fit for public viewing!! Nancy
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