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Nanjkay

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Everything posted by Nanjkay

  1. Nanjkay
    April- Thanks for your advice. Sorry you had to find out the hard way... Do you think something like Zeolite by Nutramedix would be OK even though I still have the fillings in? I looked at the website..it looks like it may be a chelator and not a binder? Can you tell? Nancy
  2. Nanjkay
    Hey everyone- Thanks for all the tips. I will steer clear of the cilantro for now. Don't want Mercury all over the place. I was on Alpha Lipoic Acid for years... do you think this harmed or helped the Mercury in the brain? The more I hear, the more I realize that I will need a lot of medical overseeing. I will wait until I see Dr. H and do it with...
  3. Nanjkay
    Rachel- I did some research and found this quote in one article: "One thing that is absolutely certain is that methionine and/or SAMe usually harm low-histamine (overmethylated persons)..... but are wonderful for high-histamine (undermethylated) persons. The reverse in true for histadelic (undermethylated) persons, who thrive on methionine, SAMe, Ca...
  4. Nanjkay
    Carla, I have not heard of this. You take different probiotics at the same time or do you rotate? I rotate. All these supplements...were they all at the recommendation of Dr. H or did you add some of your own? Only asking, again, to help me make a doctor choice. NT factor...is this by Researched Nutritionals? I was...
  5. Nanjkay
    Yes the shots were from the compounding pharmacy. Side effects were like a herx...extreme fatigue, pain and fascia pulling all over my body like saran wrap pulling tighter and tighter. This man from the sulfur stories yahoo group said that methyl B12 could be dangerous for people with mercury poisoning as it creates a methyl/mercury neurotoxin crossing...
  6. Nanjkay
    Carla- I would PM you if I only knew how...I will figure it out! I'm glad you heard good things about Dr.R. I am wondering though, if he will also deal with all the complications from Lyme and if he will deal with them in a holistic manner. I completely trust his instincts with the dealing with the bacteria, etc...I guess it is more down the road...
  7. Nanjkay
    Carla- Thanks for all of your help. I didn't see Dr. H yet, still waiting. It had been gnawing at me that he was far away in case I ever had a Lyme related emergency (my system is very sensitive). I saw a different LLMD in Manhattan, Dr. R. When I called Dr. R's office they didn't have an opening for five weeks. They asked if I know if i have Lyme...
  8. Nanjkay
  9. Nanjkay
    Rachel- Thanks for all the time and effort in your reply. About the metals...I have Graves now for 12 years and although I didn't know I had Lyme I knew I had a metals problem. It is of my opinion that Graves is a mercury problem. And then I have awful endometrioisis, PCOS etc, and as we have all discussed this is a copper toxicity issue. I also...
  10. Nanjkay
    Sherry and all- Thanks for all of the good information. Where can one get Chinese gua sha treatments? (I'll google?). And do chiropractors do ART muscle testing? I think I know a woman who does this. I know this doesn't seem to come up much, but I can't help but wonder about my future, my prognosis. Since things got really, really bad for me about...
  11. Nanjkay
    Hi Sherry and all- Well, guess what? No surprise, I have Lyme!!!! And Babesia and Bartonella. And I am on anti-biotics!!! So, I eat all of my words. I am very late stage Lyme...also no surprise. I wanted to thank all of you for being patient with me, looking at my blood work and gentling guiding me toward the inevitable diagnosis that i was denying...
  12. Nanjkay
    Hi Paula and Rachel- Where do you get the bath ball and where can you get a filtered shower head? i love my baths too, but i am having so many detox issues, I need to start removing the chlorine! Nancy
  13. Nanjkay
    Kassandra- Hi...I am so sorry about what you are going through also. I did mention that I did have PCOS also. I haven't read up on it in a couple of years, but "they" wrote then that high insulin levels caused anovulation which causes the cysts. Or insulin resistance, meaning, you eat, your body produces insulin, the insulin doesn't convert the...
  14. Nanjkay
    Carla- Do you think it would be beneficial to take indole 3 carbinol on its own? (I think that is in Xymogen). I have PCOS and a hidden copper toxicity. And I think the copper toxicity is what causes my terrible endometriosis...plus I am hypothyroid and have all kinds of adrenal issues. Do you find that it helps your symptoms? I still don't...
  15. Nanjkay
    Kassandra- I completely understand what you are saying. It is a huge deal. I agree. I am glad you found the missing piece. I was just trying to say that everything is connected, as we know. I, not you, always gets upset when i get a new diagnosis, so I would tell myself that it is just another name for what I already knew was in there...this was...
  16. Nanjkay
    I just want you to know that I have PCOS or I had PCOS. I freaked out too. But then I realized as I did with every new diagnosis is that these doctors are not telling me anything I don't already know about how I FELT and what I deal with every day except give it a new name. Three things that helped: I started taking progesterone half the month...
  17. Nanjkay
    Hi April- Can't think of any questions but I thought of a story. My best friend's daughter Sarah has also been sick since birth. Severe allergies to everything also. About a year ago, she passed the 'wheat" challenge, she put Sarah on it, which means gluten. Six months later she was constipated, and reversed her potty training. Anyway, I asked my...
  18. Nanjkay
    Donna- I counted. I have 40 of these symptoms. I made an appointment with the LLMD who Carla recommended. He can't see me until the very end of August. I will try to to call occasionally for cancellations. Thanks again for the help. Nancy
  19. Nanjkay
    Hi-- I can't tell from the thread who lives in Ohio but flies to NY to see their LLMD? I live in NJ...where in NY is this doctor and could I have his/her name if that is OK? And what is LN? nancy
  20. Nanjkay
    Sherry and Carla- I can relate to both of you. I recently saw an e-mail my Mom wrote to my brothers about me (we were dealing with my Dad's finances, long story), and she wrote some pretty mean. shallow things about me. I am going through much of the same with my Mom. I love her more than anything but she will never understand, or can she understand...
  21. Nanjkay
  22. Nanjkay
    Nancy, Looking at your signature lines, it seems like something is definately messing with your immune system among other things. Have you been to a LLMD? They will diagnose on symptoms and not completely rely on testing. Sometimes when the immune system is so comprimised you won't show an immune reaction to the lyme bugs. What is an LLMD...
  23. Nanjkay
    Carla, Donna and Andrea- Sorry - here are the results for page 2 for IgG Western Blot IGenex IGG Result - Negative CDC/NYS- Negative I'll list only the bands that have something OTHER than negative: 31 kDa IND 41 kDa ++ both of those are the double starred bands. Tell me what you all think. I read over the Lyme symptoms AGAIN. I do...
  24. Nanjkay
    Can you post your results? My doctor told me mine were negative, but they weren't. Plus, LLMD's have different standards for interpreting them than other doctors .... even the CDC says their standards are for tracking purposes only.
  25. Nanjkay
    If your aunt doesn't have our issues with gluten and alcohol tinctures...Renelix by Pekana is amazing. Last year when the dogs and cats were dying from kidney disease because of contaminated food, some vets recommended Renelix as a last ditch effort and it saved some animal's lives. I hope she will be OK. Nancy
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