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Worriedtodeath

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  1. HI! I didn't know where to post this but does anyone know anything about those bubble wands that come in a long bubble solution tube? My silly received one and of course they cut off the name and contact info to wrap it. I only have marketed by Wal- mart stores made in china and the code wmp60036b on it. I couldn't find it on Wal mart's site. Thanks...
  2. I have to second this. While we have recovered, my daughter's development still lags. She lost so much SO VERY MUCH. We gave digital photo frames to the grandparents for Christmas loaded with picts from the last couple of years. I cried thru them. The obvious change when being flipped by you in a matter of seconds - you go from that happy, fat smiling...
  3. I didn't refuse the biopsy and I should have. All it did was come back with a negative and 3 drs arguing over what might be wrong with my child. When before the biopsy, all involved were 100% positive it was Celiac and would come back positive. Her damage was not enough to qualify and was slight enough to be caused by a possible milk allergy (even though...
  4. If I remember right (the label wears off and I can't read the name ) it is ZUZU Open Original Shared Link expensive UGH Long lasting Good Sometimes clumpy but I can fix that . Wears well and stays on my eyelashes and not my face. Now get it at the local Earth Fare store.
  5. Please be advised that it may take months to feel better or get well. I wanted to say that so you don't get discouraged if you don't feel better in a few weeks. My baby became very ill and still tested negative on blood and biopsy. My mom told me I was like that as a child. Clingy, whiny, grumpy, sick, tummy problems all the time. Identical to the baby...
  6. HEre's what we had to do. Background - my 12 month old stopped growing and had continually worsening diaherra. I had a ped with a clue about Celiac but surrounded by specialists without a clue. Since we used an allergist with the oldest, I went that route first. First thing the allergist wanted after initial IGE testing was to get back to a normal...
  7. Well, our blood work is negative ( there are a percentage of people who will not test positive and I'm not sure if that puts the blood work as unreliable or what) so I can't depend on it to let me know if we ingest gluten or not. I switched because of that. I also switched because of the toddler who likes to drink the bath water, lick her fingers or people...
  8. My kiddo was extremely pale as well. The cbc is not a blood test that lets you know if there are deficiencies nutritional wise. I had to demand a vitamin test and a couple of other ones Her cbc was fine. Her Vit d was in the toilet along with Vit k, A, and calcium and I forgot what all else. It's taken months but her paleness is no longer that deathly...
  9. Agree with Shayesmom! Great post. We jumped through all sorts of hoops with our baby only to discover that playdough used in her classroom during the week was making her sick on Sundays. PLAY DOUGH she didn't even play with!!! And wasn't even in the room at the same time she was. UGH!! Flour bins, oatmeal, cereal..... I would be firm but clear....
  10. never even saw that!!!!! That may explain some things. Soy cheese and heavy soy products upset her stomach but i never paid attention to the almond milk ingredients for soy. Thanks for pointing that out. Stacie
  11. Just wondering if anyone uses these products?? www.purelifesoap.com They don't say gluten free or wheat free but they look okay other than some that use wheat germ. I'm just concerned over the "organic and vegatable source" I emailed and the company was very prompt and very nice and after a couple of emails, said they were in the process of tweaking...
  12. Okay the soap stuff totally mystifies me. What are the bad ingredients? I look at the bottle and nothing screams wheat. I didn't think about using the soap at places. SHe still likes to lick her hands. So some of those chemical names are code words for wheat? Here at home we are suave for kids shampoo (I thought Sauve was safe), equate brand...
  13. The class knows about the glue and paint and playdough. However, we have been using those stickable foamies. Peel the sticker off and stick it. Hadn't even thought about that. I'll have to see what the "sticky" is made from. As for playdough, mine absolutely cannot under any reason even be in the same room with it (or so it seems) If you have a wheat...
  14. She was checked for tree nuts and peanuts. All clear. Is almond a different test?
  15. Forgot to add we are also dairy free and only use Almond milk by blue diamond. I'm pretty sure they have no gluten. We do an occasional cheese pizza since soy makes her sicker than the milk does but that is rare and any issues from that is a one time deal. Not ongoing like this has been. Stacie
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