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Mama Ruthies

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Latest Celiac Disease News & Research:

Everything posted by Mama Ruthies

  1. Mama Ruthies
    I would say that Celiac is a definite possibility. Here are some of the things that our son had--- the biggest, speech delays (which we have seen a specialist at Vanderbilt for and he told us our son's delays are because of celiac---how I wish I would have known sooner) problems sleeping (would wake overnight in discomfort and was up for some time...
  2. Mama Ruthies
    We got their ice cream (heavenly!!) which states vanilla---want to make sure it's gluten free. I do have a call into them. Also got their organic salsa and some of their spices. We really don't want to take any chances with our son. I am thrilled to find another source for gluten free things (and organic items). Unfortunately, the closest Costco...
  3. Mama Ruthies
    We have picked up some things from Costco and are thrilled to find Lundberg rice and numerous other organic items there. Are any of you familiar as to the gluten status of Costco's Kirkland brand? I did call their customer service number and was told that they don't have gluten in products unless listed but I'm not so sure how much the guy I spoke with...
  4. Mama Ruthies
    From our experience with our 5 year old son, I can tell you definitely that gluten can cause speech delays. We just got back from our second visit with a leading doctor in the country for kids with speech delays (who told us the first time we met that our son presents just as other kids he has seen with delays from celiac). We have seen what happens...
  5. Mama Ruthies
    Hi Tracy, Our son (a little over 5 and gluten free for almost 2 years) also has speech delays which we now know were caused by gluten. We noticed that first month or so was hard (our allergist also had him off milk, egg, yeast and soy) and our son had loved bread, bagels, yogurt, etc. ---all stuff he all of a sudden couldn't have. His speech really...
  6. Mama Ruthies
    Hi Kim, Your daughter sounds so much like our son but we didn't realize he was being affected until much later. He also had rashes, night waking, 4-5 bad diapers a day (not extremely runny), and the biggie for him, speech regression and delays. We found out through Enterolab when he was not quite 3 1/2 that he had DQ8 and DQ7 and he tested high for everything...
  7. Mama Ruthies
    We use a product called Cal Mag Fizz. It is a powder you put into water and it fizzes (thus the name )
  8. Mama Ruthies
    Our 5 year old son reacts to gluten by first having BM issues, then a regression in speech (he already has speech delays), and the last time he got some gluten, he stopped feeding himself (fine motor). He did start feeding himself again after about a month. His speech is usually affected for two months which is very disheartening. What do you do to help...
  9. Mama Ruthies
    Sorry you are having to deal with this. You could get the blood test but as others have said, it has a higher false reading for young kids. You could get the bioposy, but just so you know, adults intestinal tract when all laid out is as big as a tennis court. A child's would be smaller---my point is you could still miss a spot that shows problems....
  10. Mama Ruthies
    Some great ideas on here---I need to be much more aware of possible cross contamination when we are out and about. Our 4 year old reacts to gluten by having bathroom issues for a short time and then a regression in his speech. He already has significant speech delays so it is very disheartening when he does get glutened. We realized he got something...
  11. Mama Ruthies
    Hi Aleshia, Quick background on our 4.5 year old--- His speech started to regress soon after our 2 year old was born, to the point all he said was baby and bye-bye. We had him in Birth to 3 and then decided at 3.5 to put him in the school's speech therapy. We didn't want them to diagnose, just offer services. They tossed around all kinds of labels. ...
  12. Mama Ruthies
    Our son (now 4.5) has been gluten free for 14 months. He definitely has learning issues from gluten. He has delays in his speech, and we saw one of the experts in the country for late talking kids and was told that our son's delays are typical for what this doctor sees with kids with celiac. Our son has improved a lot, but we did have an incident this summer...
  13. Mama Ruthies
    The gene is DQ7. Our son didn't say his first sentence until he was about 3.5. He was saying "I" statements (I go to potty, I go in the car) before he got the "gluten" pizza, but still isn't saying those yet. His longest sentence had been "Mom get the stroller and I get in the stroller" after a long day at the zoo. He hasn't said anything close to that...
  14. Mama Ruthies
    I haven't read all the responses but want to say that Enterolab was an answer to our prayers for our then 3 year old son. I firmly believe in their results and no one can contest their gene testing. Our son had speech delays and bad allergies. We had him tested at the allergist, and he came back positive to all 20 items. This set off a red flag to me....
  15. Mama Ruthies
    Our 4 year old son also has speech delays which we know are related to gluten. He's been off gluten since Nov. and his speech started to really make strides in April. In July, he got a piece of "gluten pizza" and he regressed in speech, pronounciation was bad, and initiation slowed way down. He is finally (after over 9 weeks) starting to get back to where...
  16. Mama Ruthies
    I posted this in the pre-testing forum too (meant to post in post--oops!) Our 4 year old has celiac, and we will be seeing the allergist this week for his environmental allergies. While they are doing a blood draw, I am hoping to get add'l blood drawn to have our pediatrician run a check on his iron and B12 levels. What else should I have her check? He...
  17. Mama Ruthies
    Our 4 year old has celiac, and we will be seeing the allergist this week for his environmental allergies. While they are doing a blood draw, I am hoping to get add'l blood drawn to have our pediatrician run a check on his iron and B12 levels. What else should I have her check? He has been off gluten since November of 2007 with one slip-up in July of this...
  18. Mama Ruthies
    My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.
  19. Mama Ruthies
    Thanks for your responses! We do have health insurance and could have the blood tests run on the older kids---wouldn't do it on our almost 2 year old. One concern I have with that route is if we get a celiac diagnosis, I don't want the kids to have problems getting insurance (my dad had this issue related to heart problems). Plus even with insurance, with...
  20. Mama Ruthies
    Thank you so much for the responses! Texasmama, my concern with just removing the gluten without the test is that none of us have digestive issues---and would I catch changes in neurological ones? I think we will go ahead with the testing through Enterolab. Thanks again! Amy
  21. Mama Ruthies
    One of my concerns is that after two months, if gluten is a problem, would it definitely be evident? The only difference I have noted being gluten free is that I don't have the bloated feeling I would sometimes get after dinner, although I did lose almost ten pounds so my pants have extra room---maybe that's why I don't feel as bloated! I haven't tried...
  22. Mama Ruthies
    We had our 3.5 year old son tested thru Enterolab and he is off gluten. We had our other four kids and my husband and myself genetic tested thru Enterolab---I have one celiac gene and one gluten sensitivity and have been gluten free since December. My husband has two gluten sensitivity genes, and our other four kids have two DQ1 genes. I'm trying to...
  23. Mama Ruthies
    Actually, our son didn't have any digestive symptoms. We had him tested thru Enterolab because he had tested positive to all twenty items the allergist tested him for (10 food/10 environmental). He has speech delays, and we didn't feel he could effectively tell us when food bothered him when we did food elimination trials so we decided to test thru Enterolab...
  24. Mama Ruthies
    We had our 3.5 year old son tested through Enterolab in October and he came back elevated in everything with a celiac gene and a gluten sensitivity gene. We've had him gluten free since. Is there any benefit to seeing a GI doctor? We wouldn't put him back on gluten for additional testing as we trust Enterolabs results. We also wouldn't have him scoped...
  25. Mama Ruthies
    I posted this earlier on the pre-testing forum but haven't gotten any responses so thought I'd check with all of you. We had our 3 year old son tested thru Enterolab about two months ago. We've been gluten free since Halloween and have added dairy, egg and soy (with some mishaps here and there with these three). Can you help me with the results? From...
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