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carolynmay

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Everything posted by carolynmay

  1. carolynmay
    I had significant improvement in my villi after the year on the SCD (having had miinimal improvement over the previous 4 years on a standard gluten-free diet - albeit a very strict one), so I do think grain-free can help. I still don't know if this is because it cuts out cross contamination or there may be a problem at least for some people with other grains...
  2. carolynmay
    Hi there - I haven't tried both, but I did do the SCD for a year, and then a few months later I'm back on it again as I realised it was actually helping my stomach. I have to admit - I don't feel great on the SCD - I think I am a big "carb" person, and have also recently had thyroid blood tests showing that I am right at the bottom of the "normal" scale...
  3. carolynmay
    Whoops - hit the return key in my enthusiasm! Hadn't finished.. It seems that B12 may have a protective effect in the brain against methylated mercury. Anyway, I may be making apples out of onions, but it's all just quite interesting and seems like there may be something going on here.. Sure that's enough for everyone - bye!
  4. carolynmay
    My thoughts are actually more along the lines that mercury is one of the few toxins that passes readily through the placenta, so leaking amalgam fillings can pass from the mother to the unborn foetus and cause a lot of problems. I am very interested in this with respect to autism and auto-immune disorders. From my fairly wide reading on this, it seems that...
  5. carolynmay
    Just out of interest - does / did your mother have a lot of amalgam fillings? Did she have dental work whilst pregnant? As I say - purely out of interest!
  6. carolynmay
    I think a number of the plastic water bottles now incorporate corn derivatives into the plastic don't they? Maybe that is your issue? I buy still water in glass bottles - which is a total and utter pain, especially lugging them around from place to place, but I guess you never know what may help do you?! It may otherwise be worth getting in touch with...
  7. carolynmay
    Yes - it seems to make sense logically. I think the A2 casein can be problematic but nothing like as often as A1. I think though that autistic children generally do best on gluten free and entirely casein free don't they? I understood that goat and sheep casein is similar enough in size and shape to provoke a similar reaction where there is gut damage...
  8. carolynmay
    Good question.. Don't know if that has ever been looked into. I can't think it's one the dairy council would be too keen to investigate..!
  9. carolynmay
    There is a school of thought that they are usually picked up from poorly pasteurised dairy produce - this is what my homeopath tells me at least. She has been treating mine with various homeopathic remedies, but from what I've read other things like olive leaf and colloidal silver can help. I'm nervous about collodial silver, but have been using olive leaf...
  10. carolynmay
    Sorry - "celiac disease" for you guys!
  11. carolynmay
    Hi there - sorry for delay in response - there are lots of articles re possible links between mycobacteria and Crohn's and Type I Diabetes if you google, but see the following for examples: Open Original Shared Link Open Original Shared Link I am quite sure in years to come they will uncover something similar in coeliac disease which triggers the...
  12. carolynmay
    Hi again - thanks for your reply - yes, I totally agree re it being Russian roulette! The tricky thing is that I've been trying to find a probiotic which is gluten free, corn free, dairy free, soya free and doesn't contain any prebiotics (FOS, inulin etc) as they never go down well either. So I thought I had triumphed with Custom Probiotics! Have actually...
  13. carolynmay
    Hello again - I spoke to him a few weeks ago, and in the same way, he had emailed me saying - no corn, no soya, no gluten. It was only that when I phoned and asked him what level the gluten was tested to, he didn't know and told me to "be brave" and not worry about it! I expect they are fine - I just would have liked to have a definitive level to which...
  14. carolynmay
    Well, to throw a slightly different spin into the mix, it seems there is at least suspicion that a bacterial strain in cow's milk (Mycobacterium para-tuberculosis) is what may at least sometimes be involved in triggering Crohn's Disease. so it wouldn't be a ridiculous idea that something similar may happen to trigger Celiac Disease? Especially as I...
  15. carolynmay
    Thanks Irish Heart. I did actually try speaking to the owner, but he was very evasive about what level of gluten the probiotics were tested to (he said he didn't know and that he didn't test them himself) and what they were grown on. This was what has made me feel a bit nervous about them, although I would love to find some probiotics that work, so I may...
  16. carolynmay
    Dear all, It sounds like no-one has had any experience with Kirkman probiotics, so I just wondered about two others that I am considering trying. They are super expensive, so I would really value any experience that other people have. Has anyone tried Organic 3's GUTpro product? Or otherwise Custom Probiotics probiotics? I am thinking of trying...
  17. carolynmay
    Dear all, I have started using Kirkman products, but just wanted to check if any other super sensitives have used them and found them to be ok? In particular, I am just cautiously starting their C.D Biotic probiotic. The trouble is, my gut is never perfect so it's sometimes hard to know if something is causing a problem. Thanks very much for any reports...
  18. carolynmay
    Hi - I hope I'm not too late for you to see the response to this. You sound really similar to me and I think I may have finally solved (at least one of) my issues. I don't think it is cross contamination at all with me when I react in a similar way - I think it's histamine intolerance. Look it up - a lot of what you are eating seems to be really high in...
  19. carolynmay
    Dear all, I know this is probably ridiculous, but someone asked me the other day how I can be sure that duck fat and goose fat are safe given that the animals spend their lives surrounded by grain and are indeed probably covered in grain dust for most of the time, and presumably processing may not be awfully careful in terms of removing grain dust. I guess...
  20. carolynmay
    Hi there - yes of course. In my opinion this oh so unenviable journey is all about helping others if possible - I have been tremendously grateful for some of the incredible advice in the past from this board and also the UK forum (I am based in the UK). Indeed it was reading on this board about someone who had only started to heal on going entirely grain...
  21. carolynmay
    p.s. - I ate grain fed meat all the way through this period, ie chicken, duck, turkey etc. I kind of figured that by the time you reach the muscle of an animal the grain has hopefully been thoroughly digested and reconstituted. I would not eat offal from grain fed birds, as I'm not so sure about that. I also now don't risk going anywhere near the skin,...
  22. carolynmay
    Hi there, I was in a similar situation to you. I had "complete villous atrophy" on diagnosis and after 5 years of the normal gluten free diet, things had healed only very slightly. I was pretty much at my wits' end, especially when a bone scan came back showing osteopenia (aged 35) when I had used to be a junior internationl track and field athlete....
  23. carolynmay
    Thank you all so much - your replies are incredibly informative. I shall start taking fish oil again - I do think that helps, and also look into which probiotics are going to be best (I am based in the UK so cannot get hold of all the same products here unfortunately). Interesting too about the Labcorp test. Thank you all again - I really appreciate...
  24. carolynmay
    Thank you both very much for your replies. I am very unsure about this I have to say. I went completely grain-free for over a year until recently, and it is very clear from endocsopies that it did actually help a lot with healing (after 5 years of a traditional gluten-free diet beforehand really didn't). I am desperate to expand my menu though as it...
  25. carolynmay
    Can't seem to get the link to show fully. Trying again: Open Original Shared Link or with gaps so that it hopefully all shows! http: //www.(Company Name Removed - They Spammed This Forum and are Banned) /genetic-testing-for-gluten-sensitivity/
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