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JulesNZN

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JulesNZN

  1. JulesNZN
    I TOOK REGLAN AND IT HAS SIDE EFFECTS WITH THE WAY YOUR BRAIN FUNCTIONS. IT DID NOT HELP ME BUT MADE ME VERY SICK AND I ALMOST DIED. I AM SEEING A SPECIALIST IN BOSTON AT TUFTS MEDICAL AND I HAVE NOT FELT THIS GOOD IN OVER 10 YEARS. I AM NOT SAYING IT DOES NOT HAVE SIDE EFFECTS BUT I HAVE NOT BEEN NAUSEAUS FOR 3 DAYS AND I DON'T GET NAUSEAUS EVERY DAY. I...
  2. JulesNZN
    Open Original Shared Link This is where I learned some of my information, I have several other websites. I also have gastric paresis and I also have Celiacs. It is two separate yet related and I do not have DIABETES. actually the one thing that is good is my blood sugar. What medication are you taking for Gastricparesis?? That could make a difference!...
  3. JulesNZN
    I have had that some times, not so much so more. Talk to your GI specialist, for me it was because my stomach was swelling from irritation and was pushing against my ribs. It was excess acid because I don't eat grain. It may just be that simple. It was for me, thankfully.
  4. JulesNZN
    I was told by several physicians that the ingredients in grain assist in the digestion of dairy. I have been lactose intolerant since I went totally gluten free, it was about a year later that it became obvious to me that it was the problem. Try a lactose medication when you eat dairy, see if it helps. It takes about 2 or 3 days to see results, but it works...
  5. JulesNZN
    I too live alone and my policy is my home is gluten free at all times. If it has gluten and crosses into my house it goes directly into the trash. My friends and family at first were upset but did learn to respect it. At this point, I have decided I that living with others leads to gluten everywhere and that makes sticking to the diet EXTREMELY Tough!! ...
  6. JulesNZN
    Thanks! I will definitely check it out.
  7. JulesNZN
    I have been doing this for a long time over 25 years since i was 6. I got a good handle on it when I moved out on my own but watching others eat gluten and have dessert is still very difficult for me. My family has been supportive around birthdays my immediate family and I have moved all our birthdays to a restaurant and dessert is banned from these occassions...
  8. JulesNZN
    You do not have to do with out Chinese, it is actually one of my primary food groups. True ethnic chinese and Thai food is often gluten free. Just ask at the restaurant, once past the language barrier I have found that these Asian restaurants understand more than an American or Italian restaurant and if a frequent customer will warn you of an ingredient change...
  9. JulesNZN
    At my church growing up my pastor said Erroneously that My faith in God would keep me from getting sick and many ministers might say that to you. I stopped taking communion because of the gluten but depending on the church I have taken the wafer and pretended to eat so as not to draw attention to myself or have quietly wiaved the wafer away when I reached...
  10. JulesNZN
    I had the same problem and it cleared up with Quinine Tonic Water but that is just a quick fix, its usually a potassium deficiency, check into potassium rich foods such as bananas, spinach etc. to keep it from returning. also neuropathy can be anywhere, its in my stomach and has caused gastric paresis and is permanent and degenerative. Get treatment from...
  11. JulesNZN
    Boars Head Deli Meat specifies which meat is gluten free- you can go online or get the ingredients brochure from your deli. Buy Large leaf lettuc and put your meat and condiments on that and roll it together and wrap it with a napkin and it is suprisingly filling (make sure you don't eat the napking I have found that it makes a decent sandwich substitute...
  12. JulesNZN
    I live in Mass on the south shore and am looking to talk to new people who also have a wheat allergy. I have a few relatives with it as it is hereditary in my family and have had it long enought that my friends are familiar but still don't really understand. My other family members with a wheat allergy choose not to follow the diet as strongly as I. I work...
  13. JulesNZN
    I have had Celiac's since I was 6 years old. I have always vomited and still do. It is more severe when I have been religiously gluten free, often eating a 2 crackers with gluten will stop it, it is the increased acid in the stomach according to my GI specialist and he is trying to reduce it through medication. I am sorry to say it won't get better but may...
  14. JulesNZN
    Sadly from experience eating baby food is the best nutritional answer at this time for him and getting the right medication. I am taking a medication I order that is not FDA approved but has saved my life. I did not need to eliminate dairy. I see a specialist in Boston at NEMC for gastroenterology and he specializes in this and is familiar with Celiac's....
  15. JulesNZN
    The test should come out correct if you have been consuming gluten,however if there are still doubts ask for a colonoscopy - they can tell by the damage. Keeping a food log with symptoms - using total honesty for both food eaten and how you feel each day for several months and bringing it to your next apt can diffuse the psychsematic statements that...
  16. JulesNZN
    I see a great gastroenterologist at NEMC in Boston, they have several different MDs all for adults all with different specialties. You should try there, they are very informed about Celiacs I found when I went in for my gastoparesis.
  17. JulesNZN
    Gillian's French Rolls taste like real bread! found em at my supermarket, Micro for 30 seconds to defrost then toast. Tastes Great! I make a sandwich every day now! I have stopped dreaming of Sandwich Shops.
  18. JulesNZN
    Hospitals are VERY BAD about Gluten Free!!! Bring your own food and plan ahead! The hospital is very cooperative when you bring in your own items, they will label it for you and keep it on the same floor you just need to ask for your food. The nutritionists are not usually well informed, be prepared to do a lot of explaining. Do not count on the hospital...
  19. JulesNZN
    Have a motility study done.
  20. JulesNZN
    How are any of you with this diagnose eating/ I was told with gastric paresis to eat low fat, low fiber, with the celiacs thats my primary diet! High fiber and high fat just to keep the weight on but now its working against me and I feel like I'm running in place. I am taking Domperidone as I can not tolerate any of the other medication and I tried them...
  21. JulesNZN
    I have endometriosis, celiacs, and gastric paresis. All of these disorders according to my GI specialist are related. They are immunodifficiency disorders or otherwise your immune system attacks things that are supposed to be left alone. The endometriosis can make intestines flair up and it is caused by similar things but in that way only are they related...
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