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ThatlldoGyp

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Everything posted by ThatlldoGyp

  1. ThatlldoGyp
    You still are not getting my point and want to argue about the article for some reason!The point is that I wanted to let the mom know where the doctor was coming from and why they are saying what they are saying. Educating yourself about practice guidelines that they doctors will be using is a good first step in helping one make the decision for or against...
  2. ThatlldoGyp
    thank you. And Ursa, you are great as always.... I think gpf's math is shaky at best, lol! and total villous atrophy is not necessary (uh, refer to marsh scale), and biopsies are not blindly taken. Thanks for taking the time to answer him as I have had enough of this and I have only been on this forum for a few months! Ugh. Medicine is an art and the doctors...
  3. ThatlldoGyp
    Hi, that sounds very fast to me. I would ask what they are looking for and why so fast. Mine did not even want the first one until 6 mos into the diet. Did they find villi changes? were there any "suprises"? The "standard" (and here I go again stepping into it, lol) is 1 yr. after the first one. And usually that one to judge healing. I would really be asking...
  4. ThatlldoGyp
    Hi, back to your question.. kids can heal very fast (lucky them!) Personally, I would wait 6 months and then check again. If the numbers look better, then you are doing the right thing. Discuss the numbers with the doctor and what they think. Don't be afraid of the doctors being mad at you, if your doctor doesn't want to work with you, then find another one...
  5. ThatlldoGyp
    I am not sure what your point is. My statement was just explaining to the mom why the doctors were wanting the endo. and why they have an "attitude" about patients getting one or not. She should be aware why they are saying what they are saying. But in the end, it is really her choice. The debate will go on and on within the celaic and medical community...
  6. ThatlldoGyp
    Wellness Core. Grain free and gluten free pouch foods as well. Everything made in the US,with US suppliers, all human grade ingredients, everything listed, nothing hidden. They even source things. NOT involved with the food recall in any way. It is a high quality food and my cat loves it! Which is amazing as she was a feral cat who adopted us (she is now...
  7. ThatlldoGyp
    B Complex vitamins WEGMANS Brand got me the other day. I returned them, of course, but it was close. The ones I have to stay on my toes about: "Mixed greens" in vitamins that end up including barley grass. How could they possibly avoid getting any seed or other gluten containing material in the vitamins when massed produced? I would not touch anything made...
  8. ThatlldoGyp
    CAUTION! Barley Grass is in the B complex Wegman's brand vitamins, so still be careful. Barley grass is supposed to be gluten free, but I can not imagine that the manufacturer manages to keep ALL of the seeds out of the production line. It is listed as "Mixed greens" on the smaller bottles, I believe. If you can not find the ingredients on the small bottles...
  9. ThatlldoGyp
    Hi,it is a Romanian study, I am trying to find it in English, or try it with a babelfish program that can translate it well enough. I know that isn't much of a help. But roughly translated it said, " that the intake of .5 mg of gliadin per week for 2 yrs on otherwise asymptomatic celiac Catholic women did not show complete recovery of villi". They did duodenual...
  10. ThatlldoGyp
    Hi, I didn't get the endo for validation of diagnosis ( I KNEW I had celiac) , but I did get it for staging so I could judge healing a year later. I am actually ok with getting another one (that is big for me because I have such a sensitive gag reflex I can barely get dental x rays, lol!) a year later. I am also a "minimal invasiveness" person, but in the...
  11. ThatlldoGyp
    Hi, no disrespect, but Irish is confused. Cheese has very LITTLE lactose in it. Go here: Most lactose intolerant people (including myself) can tolerate it just fine! Open Original Shared Link "Most of the lactose is removed from the cheese with the whey during the manufacturing process. As a result, most ripened cheeses contain about 95 percent less lactose...
  12. ThatlldoGyp
    Tell your mom that everyone on this forum will be praying for her and we are asking for God to turn her heart and make her able to see the truth about celiac being a disease (genetic, btw, so be sure to thank her for the genes she gave you and your brother, lol!) If he won't turn her heart, perhaps he will turn her ankle, so we will know her by her limp and...
  13. ThatlldoGyp
    Hi, your son gets to go gluten-free with you (and your ex while he is at your place) . It is better for him anyway. You need to toss or freecycle all your heavily glutened stuff and get new stuff as you can. It will be a big change, but I promise they get used to it. Your ex sounds like he is trying, but he just doesn't get how careful we all have to be...
  14. ThatlldoGyp
    I would do both. It is the "gold standard" of diagnosis for now. And besides, I find it good to know my staging so I can judge my recovery not just on symptoms and bloodwork alone. And, yes, 100% for the rest of your life. I just read a study where duod. biopsies (I meant) were done on Catholic celiacs where their only known exposure was the communion...
  15. ThatlldoGyp
    omg, do I know what you mean.. every time I have the tiniest gut ache I have the dreams... I know it is all that anxiety about the fear of being ill for a whole week, curled up on the sofa in pain, my life on hold until god knows when... I do feel like I lost so much time and so many aspects of my life while I was suffering and waiting for a diagnosis that...
  16. ThatlldoGyp
    yes, if you have celiac, your villi would most likely still show damage. I just read a study... endos taken on Catholic celiacs. Villi damage still seen when their only known gluten intake would be the communion wafer once a week, all participants were asymptomatic yet still showed damage enough to be seen with sb biopsy. So, based on that study, then you...
  17. ThatlldoGyp
    Hi Scott, Dive in, do not wait. The sooner you start the sooner you can start feeling better. Start by eating whole foods for now, and getting all the "gluten free eating" literature that you can find. There are many, many good ones on this site. Then, get a gluten-free shopping book/bible and go through everything in your cabinets. Clean out anything that...
  18. ThatlldoGyp
    March 2008 update: Glenmark Fluconazone IS gluten free per phone verification from Glenmark.
  19. ThatlldoGyp
    Hi, welcome to the site! I am also grateful for this site, there is so much info and everyone is so kind and understanding... I am so glad you are pushing and pushing for a diagnosis. Sadly, it usually takes years and years for people to get diagnosed... and I suspect that almost everyone here was told they were depressed or something like that when the...
  20. ThatlldoGyp
    yes, going gluten-free and walking at least 2-5 miles per day helped me a lot. I hope taking this course will help you! I hated restless leg. Oddly enough, having my dog lie on my legs at night (especially at night) really helped calm me down. I think the pressure blocked some of the impulses. Hope this helps!
  21. ThatlldoGyp
    New Grist- Mixed with dark amber woodchuck cider, it is really good on a hot, summer day. This has a lot of potential, but since I like a stronger beer this is a bit light for me unless I am really hot and thisty and the amber is in there! That's personal taste though, my neighbor loves this. Redbridge- guess all that rice brewing finally paid off for Budwiser...
  22. ThatlldoGyp

    ARCHIVED Blood Test

    ThatlldoGyp replied to totosamnat's topic in Doctors

    Hi, I had the same issue. I almost got into a yelling match with my former Dr. about getting tested. She wanted to do a work up for IBS and Crohn's first, because, "going gluten-free is an expensive and life changing diagnosis". Well, I felt so bad I was ready for a life change, and it is not like the other two possibilites were not going to change my life...
  23. ThatlldoGyp
    easy breakfast that will last until snack or lunch: boiled egg, fruit, and some additional protien. It is weird grabbing chicken or some other meat first thing in the morning, but it really helps making breakfast last long enough to make it to lunch. (I'm back to being a vegetarian now, but in the beginning I just had to say "sorry" to the critter and eat...
  24. ThatlldoGyp
    Hi, just want to add my support. Right now there is a lot of information coming at you, and it is overwhelming...but don't worry, you will get the hang of it quickly! In a week or two you will be feeling so much better you won't believe you lived "like that" before, lol! Gluten is in wheat, barley and rye and anything that is made with the products or by...
  25. ThatlldoGyp
    Has anyone tried the new Cuisinart breadmaker with the special gluten-free mode? what do you all think? My 20 yo Zojirushi (or however you spell it) finally kicked the bucket! I am trying to decide between the Cuisinart and the newest Zojirushi. Anyone have any experience with it? Thanks!
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