
trcn
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trcn
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ARCHIVED gluten-free "cards" For Iphone Or Ipod Touch!
trcn replied to DarkIvy's topic in Gluten-Free Restaurants
AWESOME!!!!! -
ARCHIVED Anyone Experienced Dry Itchy Skin After Using Shampoo With Wheat In It?
trcn replied to pellegrino's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't posted in a while, but I am compelled to respond to this one. I, for one, suffer horribly when I use any hair product with gluten in it. I itch for days on my scalp, face and hands. My major symptom is hair loss, whether I eat gluten (or casein, soy or yeast) or get it on my scalp. It's a different mechanism, but results in the same symptoms... -
ARCHIVED Ingredients In Hot Dogs
trcn replied to LuvMoosic4life's topic in Gluten-Free Foods, Products, Shopping & Medications
Applegate Farms has gluten-free, cg, sf dogs and lunch meats, too. I buy that at Publix and Whole Foods. -
ARCHIVED Alcohol Issues/l-glutathione
trcn replied to TFoxx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
One of my many signs of a problem with my gut was when I couldn't tolerate the glasses of wine I would have on a Friday night out with the girls... All of a sudden I would get deathly ill and need 2 days to really recover. I've been gluten free for 5 mos, casein and soy free for 1 month and still am very sensitive to alcohol. More than one glass of wine... -
ARCHIVED Feeling Very Lethargic
trcn replied to TFoxx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When I cut out dairy and soy (at the same time, if that matters... I'm not sure) I was on the couch for 4 days of exhaustion, tremors and light-headedness. FYI! Good luck. -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Die-off Effect
trcn replied to trcn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After a few more days of posting the question about die-off effect I woke up refreshed and ready to go... what a difference. I did find much anecdotal confirmation of the withdrawal and some objective reports of the opiate release that occurs with casein and the withdrawal that happens when it is removed from the diet. I am reacting now to even small... -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I experienced this exact thing, hence the self-medication. All of my issues started with RAI and so I KNEW everything had to be related to thyroid. I was blind but now I see! I think I'll cut back more on the Armour with my next labs. I've been pushing not to lower it too much, but it may relieve my system. My free T3/T4 ranges are at the high end of... -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Rachel, once again thank you for all of your information. I wanted to mention that I have more than hair loss as a symptom, it just happens to be the most persistent and distressing symptom (sadly) I've had throughout, as it has contributed to the general feeling that I have lost my youth to this mysterious group of illnesses. My struggles began in... -
Tracy I've added you to my friends so we can stay in touch, so nice to meet you...Healing wishes to you, Linda
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ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Linda. Thank you for your message. I am very sorry about your sister. My father has been suffering with MS for 20 yrs. I have no answers, for sure. I do know that if you are sensitive to gluten and soy, you are probably sensitive to casein, too. I believe as Rachel says, that we will keep developing sensitivities until the underlying issue is resolved... -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can honestly say I am pretty darn afraid of: " most of us will die of something else before we get that far, & if we do get flattened villi it is usually too late for us to recover & we are the ones that do not heal & ultimately die, & sometimes that does not take too long. " Who is the doctor with the long H name that I should contact... -
ARCHIVED Die-off Effect
trcn replied to trcn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am drinking Pacific Low Fat Rice Milk and Low Fat Vanilla Rice Milk. Their website states they are gluten free. Does anyone know otherwise? I do feel like I'm being glutened (heavy head and arms in morning, extreme fatigue, sinus pressure, but my classic gluten symptom is severe itching of scalp, face and arms and that's not happening now). I'm going... -
ARCHIVED Die-off Effect
trcn replied to trcn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Interesting, Rachel, as Sorghum was definitely not something I tolerated well when I went gluten free. I had worse GI symptoms with that as compared to anything else. I am substituting Rice milk for creamer and cereal milk...so that is new. Wonder if rice is an issue for me. I'll try Hemp tomorrow and see if I feel the same... Withdrawal is a good... -
ARCHIVED Die-off Effect
trcn posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Is there a sort of "die-off" when one goes casein and soy free, as happens with candida when one goes yeast free? I'm 5 days off casein and soy and feel terrible. I have headaches and extreme fatigue. I've been gluten-free for 4 months. Thanks Tracy -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Rachel, your information is so helpful to me. I think the yeast is the biggest issue at this point. It may be completely resulting from mercury toxicity and it may be the root of my other issues. But, I do have 2 genes for gluten sensitivity that apparently kicked in when my system went wacko. I guess DQ1 is a mystery, then. It seems I fall right in... -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you. I had RAI in 2005 and have also tried everything under the sun to relieve my symptoms. I am regulated at 3.5 grains of Armour Thyroid and seem to be doing very well. Hair loss has never stopped and seems to be more related to the food intolerances at this point (?). I am at a great weight and have no symptoms, besides HAIR. I too had 4 months... -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
trcn posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
May I reach out to you all and ask for help deciphering my results. I can tell I have to eliminate soy, casein, gluten (have been gluten-free x 4 months), and yeast (?). I have autoimmune thyroid disease (Graves AND Hashimotos antibodies) and my health trouble started immediately after having radioactive iodine ablation of my thyroid. I am blessed... -
ARCHIVED Speed Stick
trcn replied to trcn's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for contacting us with your question. We appreciate the opportunity to provide information regarding grain derived ingredients in Colgate Palmolive products. We do not intentionally add gluten to the following Colgate Palmolive products. However, we cannot guarantee that the ingredients used are not exposed to any glutens. Afta Shave products... -
I've found some posts on natural, aluminum-free deodorants which I think I will try, but I can't find anywhere that states if regular antiperspirants/deodorants contain gluten? I use Men's Speed Stick Fresh Antiperspirant/Deodorant and Yes, I am sensitive to topical gluten containing products. I'm waiting for response from Colgate-Pamolive. Anyone else...
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ARCHIVED Correllation Between Celiac And Acne
trcn replied to waterfaul's topic in Coping with Celiac Disease
Thank you. I am 'hanging', for sure. I just got my test kit from Enterolab for gluten, dairy, soy, casein, yeast, and genetic test. I am thrilled to dig deeper for answers. I think dairy is getting me now. Darn! Yeast has gotten much better. I've been taking coconut oil (3 tsp per day) and have been gluten free for 3 months (about). I think the combo... -
ARCHIVED Gluten Free Hair Color
trcn posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Has anyone tried Ecocolors? They claim to be gluten free, among other things and specifically developed for consumers prone to allergic reactions... If you haven't heard of them, google "ecocolors". What do you all think? Tracy -
ARCHIVED Giovanni Body Products Formulated From Wheat Protein?
trcn replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
I know this is an old thread but wanted to add this as of April, 2008. I love the 50/50 shampoo and conditioner and the fiber waxes. Hi Tracy, Thank you for your interest in Giovanni products; please be advised that all Giovanni products are gluten free. Giovanni Golden Wheat Shampoo is only named golden wheat, but this product has no gluten.... -
ARCHIVED I Really Need Some Advice
trcn replied to feelingbetter's topic in Coping with Celiac Disease
My exact symptoms, plus nausea and severe dizziness and shaking if I tried to exercise... by exercise I mean 3 minutes at a moderate pace of walking. My thyroid was overactive. Long story there, but thyroid dz and celiac seem to go hand in hand. Tracy