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cmbajb

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cmbajb

  1. cmbajb
    hi. i was diagnosed with fibro in 1996. i have had good results with joint and muscle pain management with magnesium and malic acid. the magnesium amount varies....right now i am on 2000mg, split during the day, per day. i take 1200mg of malic acid. i use vitacost.com for my vitamins. i also take b12 injections, self-injections. 1000mcg per day, in...
  2. cmbajb
    Thanks all. I have a friend who was seen at a "major medical center" and was told he couldn't have celiac disease because he did not have the HLA-DQ2 and 8 markers. They wouldn't do the biopsy because of this. Note that their website site states specifically that if you dont' have these markers you can't have celiac disease. Does anyone have a link...
  3. cmbajb
    I am reading more and more statements by different medical colleges and universities, as well as medical professional groups that a negative HLQ-DQ2 and HLA-DQ8 test results means that you cannot have celiac disease. I am so very concerned that that very small, rare, subset of people that do have celiac diseasel but do not have these genetic markers will...
  4. cmbajb
    Hi. I live in Wisconsin and would recommend going to Froedtert & Medical College of Wisconsin. The gastro dept. will require you to send or fax in the most recent medical records. They then match up the gastro doc to the records so you get the best suited doc. I have not yet been, my appointment is the end of July, but I have a number of other...
  5. cmbajb
    if docs have CBC blood tests, checked your thyroid (TSH, free T4, free T3) and those are normal, you might want to ask to be tested for leaky gut syndrome (intestinal permeability). People who have gluten-intolerant, and find they are having more food allergies, might instead have an autoimmune reaction to food particles leaking through your intestine into...
  6. cmbajb
    First, don't stress. Pick out a list of foods that you know is "safe", like ham, turkey (check the injections on both), potatos, nice veggies, some fruit....or fruit for dessert. YOu could get rolls for the non gluten-free eaters, a nice thing to do. Don't do this meal thing twice. Do your best and anyone that sneers or complains can sit out on the...
  7. cmbajb
    i'm wondering if anyone else has a gut (haha) feeling that doctors often diagnose someone with IBS in order to take the easy way out. in other words, rather than really working with the patient to see what is really wrong (i.e. celiac, food allergies, etc.), they use IBS as a catchall diagnosis. i was diagnosed with IBS many many years ago, and now gluten...
  8. cmbajb
    you could certainly be reacting to something in the paint fumes, a chemical reaction. this makes even more sense if you have problems walking down the cleaning products aisle at store...makes you feel ill because of the smells.
  9. cmbajb
    hi. i was going through alot of what you are currently going through. finally, my brain made a connection. i would eat gluten-free stuff that my celiac friends had no problem with, but it caused a gluten like reaction for me. started me thinking perhaps i had other food allergies. so, i went on a food elimination diet. no dairy, gluten (obviously...
  10. cmbajb
    Lisa, I have been gluten-free since April of 2007 and was doing great. Then, the beginning of this year, all my gastritis, ibs etc. symptoms came back, horribly horribly. I sat down and recognized I was getting these symptoms and others even when eating gluten-free food, and began to wonder if I had problems with other foods. I've been on an elimination...
  11. cmbajb
    Hi, I'm new around here, so I'm learning alot. I have endometriosis and had a surprising horrible flare-up the end of last year. I went gluten-free in April of last year. One thing to consider, too, is food allergies. I have been on an elimination diet for about a month, and have already found that I am allergic to chocolate, eggs and something in beef...
  12. cmbajb
    Hi. I had Cushing's Disease, pituitary tumor, surgery in 1995. Your doctor needs to remember that there is cyclical Cushings, which means that the cortisol levels are not high constantly, they cycle up and down. Good endos will do multiple 24 hour urine tests, morning and evening blood cortisol tests and daytime and during the night saliva tests. There...
  13. cmbajb

    ARCHIVED Hypotyroidism?

    cmbajb replied to Nic's topic in Related Issues & Disorders

    your current son's doc has a screw loose. probably more than one. i have had this happen myself, when i've questioned a doc about lab results....they tend to try and back themselves up, even if they know they're wrong. i had a lab done, with an age-sensitive range. the test came back, and i was "normal." upon reading closer, i saw they had used a range...
  14. cmbajb
    Thanks everyone. I'll have to do some more research into this problem.
  15. cmbajb

    ARCHIVED Hypotyroidism?

    cmbajb replied to Nic's topic in Related Issues & Disorders

    Hi....The 24 hour urine is a good test. If it is not positive, the test should be repeated a few times over the next 2 months. Also, an 8 a.m. and an 8 p.m. blood cortisol test can be done to see how the cortisol level varies from the a.m. to the evening. ideally, it should start out a a normal, high, level, and by 8 p.m. should have dropped down. also...
  16. cmbajb
    Hi. I'm new around here and could use some help. I understand that Sweet Baby Ray's BBQ sauces are gluten free, but when I eat it, I get a reaction like I just ate gluten. Has anyone else had this experience and might have an idea what other ingredient might be causing the reaction? As of now, I've only been diagnosed with gluten intolerance, no other...
  17. cmbajb

    ARCHIVED Hypotyroidism?

    cmbajb replied to Nic's topic in Related Issues & Disorders

    Hi...another thought. Has your son been tested for Cushing's Disease? The rapid weight gain, and the drastic changes back and forth in facial features are signs of pediatric Cushings (I know a little bit about this, because I had adult Cushings, caused by a pituitary tumor). The changes in features, if Cushings, can be caused by cyclical Cushings. ...
  18. cmbajb

    ARCHIVED Hypotyroidism?

    cmbajb replied to Nic's topic in Related Issues & Disorders

    Hi, I'm new here, but am panypopituitary and have been dealing with hypothyroidism for many years. Check the American Association of Clinical Endocrinologists website; they have a statement regarding what the range of TSH should be. The vast majority of labs still have 5.0, or thereabouts, as the upper end. AACE says it should be 3.0, or so, and more testing...
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