sandpiper
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Latest Celiac Disease News & Research:
Everything posted by sandpiper
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ARCHIVED Dental Surgery And Gluten
sandpiper replied to sandpiper's topic in Related Issues & Disorders
Hi Amy, Thanks for your experience with your symptoms of being glutened, and you are so right about the added assistance with drinking the water and helping it all flush out faster. I really did feel as if I was loaded down with drugs, it not only effected my lower tract but the effect it had on my whole system was pretty scary for a week plus. Yes... -
Hi to all, I have to apologize if this is not the correct area to place this question, and I did try to post it earlier this week, but have not had any responses. I had some dental work done a couple of weeks ago, and the surgery required that I had a general to pull this abcessed tooth, which I before hand was using the amoxicllian medicine to help...
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ARCHIVED Gene Testing Totally Confused
sandpiper replied to sandpiper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sonya, Well I can relate to your post, as I was just finishing my posts ( to all ) this morning my computer crashed. Everything is okay now, but well you know I just can't remember word for word what I wrote, sorry. I will try again..... first thank you so much for your post and you and your daughters experience with the genetic part of testing and... -
ARCHIVED Gene Testing Totally Confused
sandpiper replied to sandpiper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Gene Testing Totally Confused
sandpiper replied to sandpiper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry that this has taken me longer to respond back than I would have liked. Been under the weather. I love your "deer in the headlights look" remark, I really can "get" that one, as I often have the duh look with all of this, and trying to keep it all straight and in my head is just about too much for me, but I do love the learning atleast trying to.... -
ARCHIVED Gene Testing Totally Confused
sandpiper replied to sandpiper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Nora, Thanks for your help, regarding the remaining test and results, it showed as follows : DQ2 Homozygous 31X relative risk, extremely high DQ2/other high risk gene 16X very high risk DQ2/DQ8 14X very high risk, DQ8 Homozygous 10X high risk, DQ2 heterozygous 10X high risk, DQ8 heterozygous 2X moderate risk, DQ2/other low risk gene <1X low risk, DQ... -
ARCHIVED Gene Testing Totally Confused
sandpiper replied to sandpiper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your return. I am wondering what are the other genes you mentioned that are recognized with the disease? I thought that I had read that there are around seven different genes, is this true, and how would you find out more information about them? Yes, you are right about the autoimmune issues that take place with those type of diseases, and how... -
ARCHIVED Gene Testing Totally Confused
sandpiper posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi to all, Please help me out here. Finally got the results back for the genetic from prometheus, which was the celiac plus panel. It reads that it did not show the main two genes the DQ2 and DQ8 to be detected and only in the <0.1X risk to be extremely low. It did result back with the HLA DQA1 *05 Alleles detected. It also reads with a breakdown... -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
Hi Linda, I don't feel that you were off-base with this post and to hear that your little girl is doing well now is wonderful. My own personal experience which puts my view on traditional medicine and the some times over-use of the many pharmaceutical approaches that are used so readily is just that the "over-use" of them and the effects short or long term... -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
Hope that I can respond with enough information with the questions you have asked as this is my sisters grandchild who lives states away from our state and they don't have the day to day phone contact as some might. With as little information that she was given a couple of weeks ago she did mention that the grandchild had a catherized test done, I am sorry... -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
What a great site and read on the benefits of this natural product! Thanks so much Vicky, I will send over the article-site to her mom, this should get her attention right away. I appreciate your help and concern ( big hug )! Best to you, Susie -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
Thanks Rick, Her mom has been following this with the needed flora care, and giving her daily yogurt, just hope that this is not a problem with dairy for her. We try and give our grandson the non-dairy powder form, this is a learning journey all the time for us all. Thanks for the good suggestion! Best to your health, Susie -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
Thanks Vicky, happy to know that you are both in unison with these products and the help that it can give! I am just wondering if maybe her pH is out of balance, we suggested this to her mom and she is going to get the test papers at the store and give it a try. It breaks your heart when you hear of the little ones having to go through these conditions... -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
Okay! You all are so cute! Thank you for the great ideas and the great minds thinking alike! Hope that Emily's mom will try this out and look into the more natural approachs and not resort to the antibiotics. Take care, Susie -
ARCHIVED Orange Juice Which Are Safe
sandpiper posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi to everyone, Please let me know what orange juices are safe and which ones might cause some problems if the companies cannot completely give a 100% answer and respond with the 200 codex concerns for people who are more sensitive than others. Thanks to you all for the incoming suggestions to come, as I am looking forward to a "good, safe " glass... -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper replied to sandpiper's topic in Parents, Friends and Loved Ones of Celiacs
A Big hug and thank-you to you both for the quick suggestions and personal experiences! I will look into this ( D-Mannose ) and cranberry juice and also pass the information to my sis and her family. My thoughts are like many here I am sure, to apply as much of the natural remedies as not to over-tox our bodies and let ourselves ( our bodies ) heal and balance... -
ARCHIVED One Year Old Has Her Third Bout With A Urinary Infection
sandpiper posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi to all, If anyone has some experiences with their little ones or themselves when they were younger and didn't know yet that they were a celiac/gluten intolerant with on-going urinary infections and no tests showing any kidney disease, would you please let me know. My sister has a grandchild by marriage not their own, (second marriage, her husband... -
ARCHIVED Few Product Questions
sandpiper replied to Octoberme's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Cindy, Read your post, and I have also noticed with the Lays potato chips ( I was eating the classic original ) ones, and getting some negative reactions ( and they tasted sooo good )! Just wondering if you or anyone here has this more often than not? Another question to you and everyone, can you suggest a orange juice that has no cc, as I was trying... -
ARCHIVED Blemishes And Breakouts
sandpiper replied to sandpiper's topic in Related Issues & Disorders
Hi Lisa, Thank you so much for this great sounding product(s). I have been trying to reach them, by phone, but have not had any success. Is this the best way to reach them? Did you order on line? I was hoping to actually speak to someone, to get more of an idea of what they are all about. I agree with your thoughts about the food relationship, this could... -
ARCHIVED Blemishes And Breakouts
sandpiper replied to sandpiper's topic in Related Issues & Disorders
Hi Patti, Thanks for your thoughts and support. You know it is pretty hard to take some days with these breakouts and our age factor, thought that was well behind me. I do thank you all for the suggestions with the Everyday Minerals, I want to try this product, but I have not been able to get a hold of anyone by phone the last two days I have tried, and... -
ARCHIVED Blemishes And Breakouts
sandpiper replied to sandpiper's topic in Related Issues & Disorders
Hi, Yes, I have recently had it checked ( I have Graves disease and was treated with the RAI, a few years ago ), and nothing has been the same since then, as I am unable to tolerate the hormone replacement very well, which is maybe some of my problem with the breakouts and reactions. Do you have a thyroid problem as well? Thank you for your input, which is... -
ARCHIVED Is There Any Link Between Celiac And Polycystic Ovaries
sandpiper replied to em4778's topic in Related Issues & Disorders
Hi Rachel, Just read this post and the concerns. Actually endometriosis is an autoimmune disease itself, and I believe that ovarian cysts can greatly be effected by the hormones with a strong emphasis on the over-production of the thyroid in particular. Just some thoughts, hope this helps. Susie -
Hi to All, Please let me know where to turn to concerning finding a product that is gluten free for cover-up facial blemishes/breakouts, that would be hypoallergenic and sensitive-free, as I have very sensitive skin, and need to take extra precautions in whatever I try to use. This has been an on-going problem of late and it is not getting any better...
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ARCHIVED Tooth Problems. What's Your Experience?
sandpiper replied to AliB's topic in Related Issues & Disorders
Hi Rachel, Sorry for the delay, as the last few days have been more hectic for me. I do want to thank you for your quick response and filling me in on some of your experiences ( it is so great to have these forums to do just that with one another and have the very best input from those who have traveled the path). It does sound as if you have had your... -
ARCHIVED Tooth Problems. What's Your Experience?
sandpiper replied to AliB's topic in Related Issues & Disorders
Hi Rachel, Just wondering if you had looked into the epinephrine shots that don't have that in them? I know that like many I can not do this type of shot as I also have Graves disease that was not dx until much later in life ( I am now 59 ). With dental work, and skin cancer and other medical surgeries in the past and even before I was dx with the Graves...