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sandpiper

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Everything posted by sandpiper

  1. sandpiper
    Just a quick thought about your symptoms and your recent tests that are back. Have you had your thyroid panel done recently? If so, did the doctor run more than just the normal TSH? Running your free T4 and free T3 is a better test to check, as these tests will start to be a more accurate judge of how and what your thyroid is doing. Also getting a ultra sound...
  2. sandpiper
    Hi gfpaperdoll, Also sorry for this delay, and do hope that you are feeling better from your cold, this has been a harder seaon than most for alot of us, ( even if we are doing better things for our bodies with our diets), it is hard to dodge the bullet. Enterolab, sounds like the place to start for some answers that have been having us go in circles...
  3. sandpiper
    Hi Glutina, It sounds as if so many of us here are getting the same type of reactions (and that's not fun). You did mentioned that you get a rash on your forehead? Would you please let me know what this looks like? I have had some issues with breakouts on my forehead and don't know if I am getting a hold of some gluten somewhere, I have tried to do the...
  4. sandpiper
    Hi Fedora, Hope that I can give you some insight on this as I just looked into the link a couple of weeks ago. I went with our youngest son to the dermatologist for a mole we were concerned about, and the doctor asked if there was any melanoma in the family ( this was a new doctor, not the doctor that dx my melanoma back in the 90's). I told that I had...
  5. sandpiper
    Hi Kathy, Thank you for your help and percentages, it does help to try and get a whole picture with the input of others and their personal historys. Our sister was not eating alot of gluten for the last few months, but was doing a barley max product from the Hallelujah diet that is supposed to be gluten free? Yikes is all I can say, I myself am not that...
  6. sandpiper
    Hi Nanny B, Thank you for your return post and your input with your experience and family's dietary responses ( which I am glad to read are favorable). What you wrote is also what I was thinking about the lab and their responsible job on their end of testing and handling the tissue/blood samples. I don't think that our sister has been eating too much...
  7. sandpiper
    Hi gfpaperdoll, Thanks for your return. How do they test for the DQ1? Is this by blood? Is it always a accurate result? What I quess I am understanding is that your neurological symptoms are the same as one would have with being dx as a celiac, with the damage to your nerves and the nutritional deficiencies that go together? What kind of neurological symptoms...
  8. sandpiper
    Hi to all, Please let me know with your testing and results with this being a 100% accurate. Our sister today just got the news that she is not a celiac, with the upper endoscopic/blood tests done last week. Are these always right? How often do they miss something? If she is not a true (autoimmune) celiac, then is she having a problem with gluten intolerance...
  9. sandpiper
    Hi to all, Would like to ask if anyone here has had or has a infection of the colon before being dx with celiac or just after stopping the gluten? Our sister, who I have posted about recently, was dx with colon cancer a couple of years ago. She just had a colonoscopy on Monday as she is having 10-12 bowel movements a day, and that would be the D kind...
  10. sandpiper
    Hi to all, I would like to ask if anyone here has tried the gluten free products that are made of barley? I understand that if the barley is harvested before it reaches a certain level that it does not contain gluten. Does anyone have more information on this and if so, if you have tried eating barley that is gluten free if there was any kind of reaction...
  11. sandpiper
    Hi AliB, Thank you for your family and your own personal history with gluten and all of the symptoms you have been through it does help to hear about it. I am sorry that I have not been in contact sooner, I was down for awhile with some bug that lasted for a few days. I always try and get back with people when they are kind enough to respond and help out...
  12. sandpiper
    Hi Nikky, Thank you Nikky for the great suggestions about talking with some of the others here. David is 35, so I am not sure about this particular approach for him and his age. Just to get him started and to stay on track with his desire to check this possible link and connecting the dots will be the very most we can hope for him now. Please keep the...
  13. sandpiper
    Hi Happygirl, Thank you for your return and the postive advice on the not so typical symptoms one sees with this disease, and being over-looked with the correct dx. Would the occipital calcifications include the same end results as migranes? Our son has almost daily headaches, and some would be the true type migranes, which puts him down and out for the...
  14. sandpiper
    Hi ravenwoodglass, I did just join the forum on the 15th, and have posted a couple of message/questions, with no returns. I might not be doing something right, but I would love to hear back with some help and input for our son. Reading your post and your past experiences it sounds as if you might be someone to ask about the neuological aspects of the...
  15. sandpiper
    Hi, Would you please let me know what co-enzyme B's you are talking about. What brand? Is this well tolerated for most of us? Thanks, Susie
  16. sandpiper
    Hi, Just wondering if you would please let me know just how the neurological problems can effect one. I did post a message a few days ago and did not get a return on the experiences of this concern, maybe I was doing something incorrect with posting as I am new here. Can you have foot pain (in just one foot)? This would be daily pain and with four surgeries...
  17. sandpiper
    Hi holdthegluten, So sorry about not reading the complete post with you being 27 and the daddy!!! Yikes really sorry. Not to say that the guys don't have problems with the thyroid, but when we women start to have the childern we do tend to trigger the immune system and the endocrine connection. Again please except my apologies, and congratulations on your...
  18. sandpiper
    Hi holdthegluten, Just read your post, I actually just joined today. Sorry to hear that you are having this problem. This sounds as if it could be thyroid related, you did just have a baby last nov? I have graves disease and was treated, on the daily replacement now and when I am getting too much of the meds I will have leg weakness and in the thigh...
  19. sandpiper
    Hi everyone, This goes out to you all with the experience of yourselfs and families in helping to encourage our oldest son to get tested/or at least do a short trial run of taking gluten out of his diet. Our oldest displays many of the symptoms of being gluten or a true celiac. The big ones are almost daily headaches, that can range from being mangeable...
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