
GEF
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GEF
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ARCHIVED Help With Test Interpretation
GEF replied to szl-mom's topic in Parents, Friends and Loved Ones of Celiacs
The tests results indicate a gluten intolerance in the least. The fact that his brother was diagnosed with celiac is important, as this son could have the genes and could develop celiac later in life. Gretchen -
ARCHIVED Testing
GEF replied to JUDI42MIL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm with Richard on your probability of having celiac. Now, apparently you need to be biopsy-proven to participate in some celiac studies... and I'm not sure if the tax-relef would apply to that as well. Perhaps someone could shed a light on that. Gretchen -
I spoke with the nurse yesterday. She is so cool and told me that if I EVER have any questions, that I can always call her.. she was awesome. Anyway, I asked her what test came back "suggestive" of crohn's... and she said it was the Anti-OmpC Iga (weirdest thing I've ever heard). Apparently if your result is less than 16.5, then you're negative. Mine...
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ARCHIVED Do I Really Have Cd?
GEF replied to Karina's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just wanted to clarify and say that although this can occur it is always the case. Genetics play quite the role in celiac and you can be gluten intolerant and never develop it. I too wondered this up until recently.... I feared the risks of not going gluten free (I was positive on igg & iga), but my doctor performed HLA (gene typing) testing and gave... -
Thank you so much, Stacie for your support. My test is on Nov 2nd @ 9am. I pleaded with the scheduler for grace because of my timing issue and she got me in. The thought that acute inflamation is occurring somewhere in my body is a little unsettling... even that it is "suggestive" of crohn's. Either way.. pos or neg, I'm glad that we're getting closer...
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I just received a call from my doctor today that the test for intestinal inflamation came back "suggestive" of crohn's. We have totally ruled out celiac disease with every test imaginable, including the HLA. He wants to do an upper GI and if that's not conclusive, then he wants to do the mini-camera test (the camera that you swallow). I have mixed emotions...
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HLA is a gene typing test where they check for the genes DQ2 & DQ8 (researched to be the celiac gene). If you're intolerant and you carry this gene, there is a risk that you could develop celiac (if you haven't already) later in life. If it is negative, you will not develop it, even though you are gluten intolerant and obviously have symptoms. Gretchen
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In the very least, I'd say you were gluten intolerant. I posted this on the York thread, but you might look into HLA testing if you'd like a definitive answer on whether your intolerance could lead to celiac. It's also important to know that for family history purposes. If you're negative for celiac after it's all said and done and you want to feel better...
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ARCHIVED York Allergy Testing
GEF replied to debmidge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nukapai, It was really important for me to have a definitive answer to whether or not I would develop celiac and I must say that the HLA (gene typing for DQ2 & DQ8) gave me that answer. I was negative, by the way. With all of my inconclusive celiac tests, I didn't feel comfortable just not knowing. My doctor has been very open to exploring the... -
ARCHIVED The Long Awaited Appointment Is Near
GEF replied to GEF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I received a call from my doctor today (less than a week from the test date!!). Anyway, it's good news! He performed the HLA (gene typing) and I'm negative for both DQ2 & DQ8. Apparently I will never develop full blown celiac. After the wedding sometime (which is 11/6), he might want to perform the ELISA testing to see if that's where the cause... -
I also found their website, if anyone would like some more information: Open Original Shared Link
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Hello, I have relocated your original post to the Pre-Diagnostic Testing, Symptoms... area. For responses, please post under the following thread: Open Original Shared Link
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This is a really good article on the ELISA testing: https://www.celiac.com/st_prod.html?p_prodid=1042 I e-mailed it to my new GI doctor and he's looking into it. He's a really cool doctor. GI's deal so much with IBS, that I'm sure they'd like answers as well. It's worth talking with your doctor about. Gretchen
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I asked my GI specialist this just last week and he told me that they could run a few tests, but probably not to the extent that would prove helpful. He did tell me, however that an Allergist would be the person to see for this. There is a test by York Laboratories that tests for 100's of intolerances, called ELISA if you don't want to see a doctor for...
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Billy, In my opinion, I think it's great that you're going back to a doctor... I'm on my 4th and hopefully final on the celiac issue. (It's difficult to find one that really knows about celiac and gluten intolerance). When if your appointment? If you feel it's important that you have accurate testing, you'd have to be back on gluten for some time for...
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Gillian, I don't know if your experience will be like mine, but my first (which was very recent) to my local support group was very good. I found that there were people there from all ages (though, there was slightly more older than younger) and at all stages in their gluten-free life (celiac or not). I'm not even gluten-free (yet) and still felt...
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Don't worry, Freya... but like Tiffany said, I'd surely talk with your doctor about it. Everytime I mention cold intolerance, they want to test my thyroid (which isn't a problem for me). Your doctor will probably want to test this. I always thought I was more cold than most because of my lack of insulation and because I have long fingers and feet , but...
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ARCHIVED Wish Me Luck?
GEF replied to jaycee30's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good luck to you, Jaycee! I don't know if you've had the endoscopy before, but it's not bad at all. Weird to think that someone will put a tube down your throat, but most don't remember much from the procedure due to the drugs they give. Always a great idea to be pro-active about your health! I hope the test offers you some conclusive results. Gretchen -
I mentioned to my doctor today that I have always had cold hands and feet and if I go swimming in cold water that my feet cramp horribly... I even have to wear socks to bed or my feet cramp. He mentioned the possibility of Raynaud's Syndrome. Truly, I'm not very well insulated and I'm tall... I'm sure it could just be poor circulation to the extremities...
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Are your lactose intolerance symptoms worse through times of stress? I have found that is the case with me... just wondering if that could be a factor for you as well. Gretchen
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ARCHIVED The Long Awaited Appointment Is Near
GEF replied to GEF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I must say that I'm very pleased with my visit to the doctor... he was extremely thorough. I spent over an hour in his office speaking with him about everything I knew and why I was there... I didn't leave out a thing! I even mentioned my recent vertigo spells (which haven't occured in a while). They drew about 4 vials of blood and he is re-running the... -
One of the variations I've seen as well included sliced green olives... yum... if you like them. Gretchen
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ARCHIVED Lawry's Response
GEF replied to GEF's topic in Gluten-Free Foods, Products, Shopping & Medications
He doesn't chew that much at all... even when he was a wee puppy. But, we did give him plenty of toys like plush and some chews. I think all dogs like to chew, but he's not that bad at all.. just have to give them lots of toys and they'll stay away from your stuff. Our's is a little "mouthy" when he plays and likes to lick. Maltese hair gets very long... -
This sounds delicious! I'm a big fan of tuna casserole with those egg noodles and this would be a great substitute! Thank you!
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ARCHIVED The Long Awaited Appointment Is Near
GEF posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
After about a 2 month wait, my appointment with the highly recommended celiac specialist is on Friday (10/8). Yeah!! I met him during a local GIG meeting and spoke with him for a few. He's a GI spec and is head of nutrition at one of our leading hospitals. He'll be running the HLA tests (gene typing) and will probably repeat the endoscopy (since I got...